I have invasive lobular cancer.Ive been told to go on letrozole.Anyone on it and any side effects?

Thx ArpieI'm new to this, love the quick response.Cheers

Hi @Jessiemydog. Some of us have fairly vigorous reactions to AI meds. After 4 years on Letrazole, I can honestly say that the side effect I find most remarkable is that I'm still alive and, as far as I'm aware, disease free. 2016, when I had my recurrence, I honestly didn't think I'd see out the decade. But here I am. I'm fatter and stiffer and achier and crabbier, but I'm still here. Mxx

Hi @Jessiemydog 🙂. Many of us on it, with many different results in terms of side effects. I’ve been on it 3 months, including Zoladex injections, and I have joint and muscle pain. Also have hot flushes but they’re not too bad. Recently I got carpal tunnel, which is no fun at all. There are remedies, including natural, for a lot of these side effects so give it a go, as it is the best treatment for preventing recurrence. You might not have any side effects, or have mild and manageable ones. If they’re really bad, you can request a change to a different one. Good luck 🍀

I have been on Femara (Letrazole) since early November this year. Ie about 7weeks.So far, I don't believe i am suffering side effects.But I do not know what is happening to my bones yet.I have sore knees and hip, but this is not new, I have Osteoarthritis.It's hard to know what is age related, I'm 62.Like all of my treatments, I have gone with the treatment advice given.I believe that this has been my best chance to be cancer free.I have gone into each treatment with an open mind, re possible side effects.

Hi @Mazbeth ... I’ve been taking the magic oil for nearly 2 years now and I believe it is really helping me cope. As you know, the longer we are on the AIs, the better chance of not getting recurrences (or so we hope!) I started taking it shortly after starting Arimidex (after 6 weeks on Letrozole and 6 months on Exemestane.)I am still a bit achy and creaky, but that ‘extreme pain edge’ has been reduced bigtime. My Onc and surgeon are aware that I am on it and my Onc has written me a letter saying I am on it - which I keep in my wallet, in case I have a positive roadside test (which is highly unlikely as the oil I take is not ‘activated’ so should not have any ‘high’ content.)take cate xx

hormone therapy | BCNA Online Network

21 Replies

FLClover
Member
5 years ago
Hi @Jessiemydog 🙂.
Many of us on it, with many different results in terms of side effects. I’ve been on it 3 months, including Zoladex injections, and I have joint and muscle pain. Also have hot flushes but they’re not too bad.
Recently I got carpal tunnel, which is no fun at all. There are remedies, including natural, for a lot of these side effects so give it a go, as it is the best treatment for preventing recurrence. You might not have any side effects, or have mild and manageable ones. If they’re really bad, you can request a change to a different one. Good luck 🍀

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hormone therapy

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