Forum Discussion

Al's avatar
Al
Member
14 years ago

Yet another bump in the road!

Hi all,

I went into have my PICC line dressed this morning and ended up staying for 21/2 hours! I had a slight temp which prompted them to remove the PICC to rule it out as the source of the infection. Bloods were taken yet again! So over this now. I am now on oral antibiotics as I fought to stay out of hospital as I am on my own with my 11 year old. My husband is coming home tonight now as he insisted on being here! They still don't know for sure the source of the bug but I'm now set to have another PICC put in on Mon. GRRR!  Just want an end to all this now. My support network has also waned - must be something to do with school holidays but people certainly have not been on contact. Feeling just a bit vulnerable and lonely. Also trying to be supermum which I've realised I can't.

Sorry for the grumble but it does get to me once in a while. It isn't all plain sailing as I've been told. I'm still only 1/2 way through!!

Thinking of you all,

Take care,

Alison xx

8 Replies

  • Cheryl_D's avatar
    Cheryl_D
    Member
    14 years ago

    Ah my dear but you are a supermum, superwife, superfamily member, superfriend and superwoman, we all are!

    We just have to remember it sometimes and if we dont just come  to this site and you will see why I state this.

    Best wishes to you and yours,

    Cheryl

  • Al's avatar
    Al
    Member
    14 years ago

    Lovely words Alysia! Yes it does get the better of me some days. I am beginning to realise what is important and starting to prioritise.

    You are also in Perth I see. I'm being treated at SJOG in Subi. They are absolutely wonderful. Such a fabulously caring staff.

    Have a lovely time with your brother. Special times. I hope everything goes well for you in November so you can spend some quality time with him and your family.

    It's hard staying strong all the time but I for one has to realise that I am only human and that this is a life changing event that most people don't really understand.

    Take care and good luck

    Thanks again and thinking of you

    Alison

     

  • Al's avatar
    Al
    Member
    14 years ago

    Lovely words Alysia! Yes it does get the better of me some days. I am beginning to realise what is important and starting to prioritise.

    You are also in Perth I see. I'm being treated at SJOG in Subi. They are absolutely wonderful. Such a fabulously caring staff.

    Have a lovely time with your brother. Special times. I hope everything goes well for you in November so you can spend some quality time with him and your family.

    It's hard staying strong all the time but I for one has to realise that I am only human and that this is a life changing event that most people don't really understand.

    Take care and good luck

    Thanks again and thinking of you

    Alison

     

  • Al's avatar
    Al
    Member
    14 years ago

    Thanks Dette for such lovely words. Yes I think I've realised that I need to slow down and take it a little more easy. I'm not super woman and shouldn't feel guilty.

    The direct request is definitely on the cards. So many people offer initially but when it comes to asking they seem less forthcoming. Something I have to work on, I think.

    Thanks again for you wonderful support, hugs and best wishes. My thoughts are with you too. The journey, I'm discovering wasn't meant to be easy.

    Take care and stay positive also,

    Love Al xxx

  • Al's avatar
    Al
    Member
    14 years ago

    Thanks Dette for such lovely words. Yes I think I've realised that I need to slow down and take it a little more easy. I'm not super woman and shouldn't feel guilty.

    The direct request is definitely on the cards. So many people offer initially but when it comes to asking they seem less forthcoming. Something I have to work on, I think.

    Thanks again for you wonderful support, hugs and best wishes. My thoughts are with you too. The journey, I'm discovering wasn't meant to be easy.

    Take care and stay positive also,

    Love Al xxx

  • Al's avatar
    Al
    Member
    14 years ago

    Thanks Dette for such lovely words. Yes I think I've realised that I need to slow down and take it a little more easy. I'm not super woman and shouldn't feel guilty.

    The direct request is definitely on the cards. So many people offer initially but when it comes to asking they seem less forthcoming. Something I have to work on, I think.

    Thanks again for you wonderful support, hugs and best wishes. My thoughts are with you too. The journey, I'm discovering wasn't meant to be easy.

    Take care and stay positive also,

    Love Al xxx

  • Al's avatar
    Al
    Member
    14 years ago

    Thanks Sam for your kind comments. Yes I do get a lot of chemo brain. Some days I think I going mad!

    My Matt has actually resigned and is due to start another job in the city at the end of this month. A weight off our minds!

    Hopefully last PICC line for me - 3 months to go!

    Thanks again and take care too,

    Alison xx

  • Samantha_Cunnin's avatar
    Samantha_Cunnin
    Member
    14 years ago

    Hi Al, feel free to grumble away to ur hearts content right here..this is what we are for. Us girls know exactly how u feel and at times we need to grumble too..

    I've not had a PICC line-i have a chest port, definately a better option for me, maybe consider it for u if u have more infection issues with the new line..Ports can be removed again when ur done.

    Its good hubby wants to be home with u..prob peace of mind for him. My Steve comes to all appointments with our oncologist-an extra pair of ears in the room and my memory seems to be hopeless sonce chemo-bit like pregnancy brain-have u experienced that yet?? if not, u prob will!

    Anyway, u take care and i hope u don't get any more infection problems

    Sam :)