Forum Discussion

sue_b's avatar
sue_b
Member
14 years ago

what is going on.....

Hi there,

I am 41 and have recently been diagnosed with breast cancer on January 11. I underwent surgery for a lumpectomy and removal of sentinel node and one additional lymph node on January 13.

My lypmh node results came back clear, unfortunately my margin was not clear so I am scheduled for round two of surgery this coming Friday.

Whilst things seem to be moving along quickly in relation to diagnosis, surgery, results and now further surgery all within two weeks,  I am experiencing alot of anxiety and my appetite has disappeared. Has anyone else experienced this?

I have a 16 month old baby boy who thankfully, doesnt seem to know what is going on, but I feel sad about the impending Chemotherapy and that I may not be able to enjoy him as much as I would like to. Add to this, the thought of my Chemotherapy treatment and side effects scares me.

I feel as though the mornings are the hardest and I constantly need to remind myself to have positive thoughts and try to regain a moderate state of calm within my body. My head feels as though it is "whurring" from all the medical terms and most of the time, I feel overwhelmed.

Today is my first day of joining this network and I must say, after reading your posts of support and reassurance, I am beginning to feel stronger and that "I will get through this"

I would greatly appreciate tips and/or strategies on dealing with anxiety please.

Thanking you all in advance
Sue

10 Replies

  • Hi, I was 42; not quite under 40, for younger women affected by BC, but still relatively young at the time. My children were 10 and 14 at the time.

    I am now nearly 56....

    Kathy.

  • Hi Sue Goodluck with your second surgery on Friday. My thoughts will be with you. Mel xxx
  • Hi Linda Good luck with your oncologist appointment tomorrow. It was very hard for me to walk through the door for my first oncologist appointment earlier this month. It made me a " cancer" patient which is something I didn't want to be. I felt very overwhelmed that first appointment, even though I knew that Chemo was a given. Sitting there and hearing the oncologist talk about it was quite difficult. I knew from my surgeon that I would be starting Chemo asap. My oncologist made the arrangements for s chest port to be inserted and my Chemo started the next day which happened to be Friday 13 th January. Please feel free to contact me for any questions or support. I am only just ahead of you in this journey.I was diagnosed with multiple cancers in both breasts mid October. Had a double mastectomy beginning nov and full node clearance both sides 1st Dec. I'm very lucky.., someone was watching out for me when I had a dream to have a mammogram as I had no lumps or bumps. I now know I have the best chance of getting through this challenge and seeing my 3 children continue to grow as young adults and blossom. Just wanted to add... I was petrified of Chemo... More so than loosing both my breasts. I don't miss my breasts st all. I'm happy knowing my fabulous surgeon did everything possible to rid me of my 6 cancers. I am two weeks post first chemosnd feel good. It is stressful, my first few days wernt fabulous but it really is doable. I have 3 more fortnightly chemos then 12 weekly chemos followed up with 6 weeks radiation to my neck andchest wall. I was 43 yesterday. I'm very blessed to have celebratedy bday with my 3 gorgeous children and my parents. They have been a huge comfort and support to me. My email is [email protected]
  • So glad you found this site.  As you can see there are lots of others who have "gone before you" and some who "will travel with you".  I was terrified of chemo but before too long it was finished.  Sure I have some "lasting" after effects but I did it and survived.  There are some very brave people on this site and also out there in the community.  Once you have had chemo you will also be one of us.  A lovely fella who had half of his face missing due to cancer told me before I started chemo "Chemo is only for a short time" and I have remembered that to help me keep going.  Looks like you have found a "buddy" in Linda.  I had a "buddy" whilst I did my chemo and it was so good to compare notes.  Good luck to you and keep enjoying your little one. XLeonie

  • Hi Sue, I too was diagnosed on dec 1st had a lumpectomy on the 14 dec and needed a second surgery on 3rd jan. I do have lymph node involvement. I see the oncologist tomorrow. Im 43. Good luck with your second surgery. Im sure we can compare notes along the way.

     

    Take care, Linda xx

  • Hi Sue, I too was diagnosed on dec 1st had a lumpectomy on the 14 dec and needed a second surgery on 3rd jan. I do have lymph node involvement. I see the oncologist tomorrow. Im 43. Good luck with your second surgery. Im sure we can compare notes along the way.

     

    Take care, Linda xx

  • Everything you are going through is normal so  be gentle on yourself!Your whole life has been turned upside both phsically and emotionally and waiting is the worst. Look at other peoples posts, take from them what helps you...this is your life, so it is important to do what helps you.

    I had a 15 month old when I was diagnosed...I can understand your concern....remeber that quality time with your little one is important so let others help you when you are tired.

    Take care

  • Anonymous's avatar
    Anonymous
    Not applicable

    Firstly, my condolences that you've had to join us all on the BC roller-coaster ride! It's a frightening, confusing ride and it sucks...simple as that! Secondly, I'm so pleased you've found this site...due to the fact that you'll find some incredible inspirational women on here who you can vent to, ask questions of and share experiences, thoughts and feelings with . Thirdly and most importantly though....you WILL get through this!?

    I am a 43 year old sole parent of a 13 year old daughter. Feel free to read my blog for more info, but basically I was diagnosed with EBC (Early Breast Cancer) in 2008. My world was shattered...I was absolutely rocked to the core, but most of all TERRIFIED....I thought that there was a possibility that I'd die at any minute! Like you, my anxiety levels went through the roof. I too lost my appetite and lost a lot of weight quite quickly...to be honest I think I was in absolute shock! I cried alot, didn't sleep well at all and my mind was a complete blurr. I felt incredibly sad, angry, frightened...sometimes all at the same time. Infact I felt like I was in a terrible nightmare, waiting to wake up! Instead of waking up, I ended up feeling as though I was trapped in a whirlwind of medical jargon, trips to the hospital, important decisions to be made...my 'normal' life had just stopped in its tracks! I imagine you can relate to some of this at the moment Sue, but try to take some comfort in knowing that it does actually get better! Time is definately a factor in this roller-coaster ride!

    My experience with counselling may or may not help you. I went to see a Psychologist (specialising in counselling cancer patients) at the hospital where I receive treatment and she told me my reaction was a completely normal reaction to a very abnormal situation! Counselling helped me to manage my anxiety through talking through how I was feeling with someone who really understood, helped me with meditation, deep breathing exercises, positive self-talk etc. She also reminded me that it's ok to feel flat, sad and angry...it's impossible to feel positive ALL time. I remember telling the Psychologist that if one more person says to me "you just have to remain positive" I would seriously want to SLAP them! LOL! Then later I found this site, the lovely ladies I chat with on here have been a wonderful source of strength and support. 

    I also take a low dose anti-depressant which is wonderful with mild depression and anxiety. Did you know that statistics show that 50% of women diagoned with BC develop depression as a result?...it's very common. Anti-depressants have helped me enormously to get up and moving in the morning and I swear by them! ? I was also prescribed sleeping tablets and these helped my mind to stop racing at night and gave me the opportunity to sleep which was great.

    I had a lumpectomy, chemotherapy, radiotherapy and hormonal therapy in 2008/2009. The thought of chemo frightened me...i didn't know anything about it and had heard all the horror stories. Please know that everyone is different when it comes to chemo. One person can have every side effect under the sun, while someone else may have 1 or 2, or another may just breeze through it, wondering what all the fuss is about! My advice is to go into it with an open mind....think that it is the "good juice" that is going to help you recover. If you get any side effects, tell your treatment team straight away and no doubt they will gladly help you.

    Take all of this one step at a time Sue....day by day....hour by hour if that's better. It's scary, confusing and hard to stop your mind racing to the "what if's?", but you WILL get through this!

    All the best for your second surgery on Friday. Please visit this site to find support when you need it, take care Celeste x

    (ps- sorry for my extra long rant..LOL!..I was where you are not so long ago so I hope some of what I've offered has helped ?).

  • Anonymous's avatar
    Anonymous
    Not applicable

    Firstly, my condolences that you've had to join us all on the BC roller-coaster ride! It's a frightening, confusing ride and it sucks...simple as that! Secondly, I'm so pleased you've found this site...due to the fact that you'll find some incredible inspirational women on here who you can vent to, ask questions of and share experiences, thoughts and feelings with . Thirdly and most importantly though....you WILL get through this!?

    I am a 43 year old sole parent of a 13 year old daughter. Feel free to read my blog for more info, but basically I was diagnosed with EBC (Early Breast Cancer) in 2008. My world was shattered...I was absolutely rocked to the core, but most of all TERRIFIED....I thought that there was a possibility that I'd die at any minute! Like you, my anxiety levels went through the roof. I too lost my appetite and lost a lot of weight quite quickly...to be honest I think I was in absolute shock! I cried alot, didn't sleep well at all and my mind was a complete blurr. I felt incredibly sad, angry, frightened...sometimes all at the same time. Infact I felt like I was in a terrible nightmare, waiting to wake up! Instead of waking up, I ended up feeling as though I was trapped in a whirlwind of medical jargon, trips to the hospital, important decisions to be made...my 'normal' life had just stopped in its tracks! I imagine you can relate to some of this at the moment Sue, but try to take some comfort in knowing that it does actually get better! Time is definately a factor in this roller-coaster ride!

    My experience with counselling may or may not help you. I went to see a Psychologist (specialising in counselling cancer patients) at the hospital where I receive treatment and she told me my reaction was a completely normal reaction to a very abnormal situation! Counselling helped me to manage my anxiety through talking through how I was feeling with someone who really understood, helped me with meditation, deep breathing exercises, positive self-talk etc. She also reminded me that it's ok to feel flat, sad and angry...it's impossible to feel positive ALL time. I remember telling the Psychologist that if one more person says to me "you just have to remain positive" I would seriously want to SLAP them! LOL! Then later I found this site, the lovely ladies I chat with on here have been a wonderful source of strength and support. 

    I also take a low dose anti-depressant which is wonderful with mild depression and anxiety. Did you know that statistics show that 50% of women diagoned with BC develop depression as a result?...it's very common. Anti-depressants have helped me enormously to get up and moving in the morning and I swear by them! ? I was also prescribed sleeping tablets and these helped my mind to stop racing at night and gave me the opportunity to sleep which was great.

    I had a lumpectomy, chemotherapy, radiotherapy and hormonal therapy in 2008/2009. The thought of chemo frightened me...i didn't know anything about it and had heard all the horror stories. Please know that everyone is different when it comes to chemo. One person can have every side effect under the sun, while someone else may have 1 or 2, or another may just breeze through it, wondering what all the fuss is about! My advice is to go into it with an open mind....think that it is the "good juice" that is going to help you recover. If you get any side effects, tell your treatment team straight away and no doubt they will gladly help you.

    Take all of this one step at a time Sue....day by day....hour by hour if that's better. It's scary, confusing and hard to stop your mind racing to the "what if's?", but you WILL get through this!

    All the best for your second surgery on Friday. Please visit this site to find support when you need it, take care Celeste x

    (ps- sorry for my extra long rant..LOL!..I was where you are not so long ago so I hope some of what I've offered has helped ?).