Forum Discussion
TripleTea
9 years agoMember
Starting Chemo tomorrow
Hi everyone.
I had my oncologist appointment late yesterday(wed) and am starting my chemo tomorrow(Fri) Feeling very nervous but also glad to be getting on with it.
I am having 3 x FEC 3 weeks apart and then 3 x Doxetaxel 3 weeks apart. He said most of his patients are older than me and they switch to 12 weekly Paclitaxel after the FEC as it's easier on them but he said I am young and fit and should be able to handle the doxetaxel 3 weekly and it will get it all finished a month earlier and I won't have weekly hospital visits. I had no idea which option to go with so he said if I were you I would do the shorter one and get it over with. So that's the plan.
I have a few questions if anyone can help please....
Has anyone had this combination?
Is Doxetaxel the same as when people on here refer to Taxol?( Sorry I would normally google but I have stayed well clear of googling stuff since my diagnosis)
I noticed on another feed people mentioning they take neurofen but the info sheet the oncologist gave me with the '8000' possible symptoms said to not take ibuprofen?
Thanks Ladies
I had my oncologist appointment late yesterday(wed) and am starting my chemo tomorrow(Fri) Feeling very nervous but also glad to be getting on with it.
I am having 3 x FEC 3 weeks apart and then 3 x Doxetaxel 3 weeks apart. He said most of his patients are older than me and they switch to 12 weekly Paclitaxel after the FEC as it's easier on them but he said I am young and fit and should be able to handle the doxetaxel 3 weekly and it will get it all finished a month earlier and I won't have weekly hospital visits. I had no idea which option to go with so he said if I were you I would do the shorter one and get it over with. So that's the plan.
I have a few questions if anyone can help please....
Has anyone had this combination?
Is Doxetaxel the same as when people on here refer to Taxol?( Sorry I would normally google but I have stayed well clear of googling stuff since my diagnosis)
I noticed on another feed people mentioning they take neurofen but the info sheet the oncologist gave me with the '8000' possible symptoms said to not take ibuprofen?
Thanks Ladies
20 Replies
- AnnettedMemberI'm going through 4 treatments of doxetel and ( can't think of the other one) I keep forgetting things.. nausea a killer but I find peppermint tea is great, plus I take Nexium and maxillon ..remember to rest when you can ..I'm on my second round and thought I would be be ok ..I was wrong .. did far to much after chemo last week and I'm now paying the price .. good luck with your treatment each one you go through is one step closer to the end xx
- lgray3911MemberMake sure you ask for better anti nausea drugs you don't need to be feeing sick
- primekMemberI couldn't tolerate water but could handle bubbly water with a slice of lemon. I'm so glad you are feeling better. Remember....it's the complications that put your health at risk. If in doubt go to nearest Emergency Dept...always...better to feel silly than suffer in silence and put yourself at lethal risk. Take care. Kath x
- UnicornkissesMemberDo you have Kennelog for the ulcers?
It is the best stuff, but sets like cement on the ulcer, so best used at night, clears them up very quickly. Use a different ulcer medication during the day if you need to.
Are you rinsing your mouth 4 times a day with the bicarbonate solution?
I used it religiously and only had one ulcer the whole time, but others have not been so lucky.
Glad you finally have something that helps the nausea.
I found ginger ale and ginger beer helped settle my stomach a bit, as well as small meals, not drinking a lot on an empty stomach.
Others have suggested ginger gummy bears.
Drinking Sustagen when I really didn't want to eat anything, and tea.
I was not a tea drinker before, but a nice cup of tea was quite soothing to the stomach.
Each day should get better, and the next dose could be quite different again, and you will be better at managing it too. - TripleTeaMember@Unicornkisses @primek thank you for your replys.
I am now taking 8mg ondansetron and it is helping more than the maxalon. Still nauseous but tolerable and I am eating ok now. I didn't go to the hospital as I figured that it was normal. Being a long weekend I didn't speak to my breast nurse till the Tuesday(day4) and she said I should have gone to ED for a drip & for me to let the Dr know & hopefully he can do something so it doesn't happen next time.
Getting the ondansetron script wasn't easy with the oncologist away all week they told me to call my GP. Called my GP & she was away that day so I had to wait till the next day then the next day came and receptionist kept saying sorry It hasn't been done yet. In the end my mum went in and told them I needed it and they did it straight away. Go mum!
I have dexamethasone for the 2 days after treatment but it obviously wasn't helping this round. Hopefully next time.
Other than that Im improving strength wise daily as the first 2 days really took it out of me. I have a couple of ulcers today but otherwise going ok. - primekMemberOMG @TripleTea Did you ring the oncology team about that vomiting? Dehydration huge risk and no need for it. I needed dexamethasone for 4 days, stemitil 8 hourly strictly plus ondasteron just prior meals. I still felt squarmy but no vomiting. Sedation is also another option...you just need reminding to drink. There is no reason you should be vomiting that much and really if you do you should be in hospital so your kidneys not at risk from dehydration. It's not okay. Please keep in close contact with your team. They can't help if they don't know.
- UnicornkissesMemberHi TripleTea, by now you will have had the first FEC, I hope the nausea has eased for you and there are not too many other nasty side effects.
I too had the 3x FEC and 3 X Docetaxel.
It is pretty hard hitting but at least by the third week I came good and felt excitedly normal.
Sometimes people refer to Docetaxol as Taxol, but usually it is Paclitaxel they are referring to.
My Oncologist said I could increase the days of steroids to help the nausea if I felt I needed to, but I decided not to as I didn't like the other side effects of the steroids. I believe it is an option though.
There are other anti nauseas as others have mentioned, which may be better for you too.
My Oncologist said I was not to take Ibuprofen - Panadol, Endone or Panadeine Forte only.
I could not take my Migraine relievers either as they reacted adversely with the anti nausea medication they give before the chemo.
My hair started to grow back on Docetaxel, fine, whispy and White at first, but it definitely started to grow.
Now, 14 weeks after the last Docetaxel, I have eyebrows, fine short eyelashes and a full covering of hair even though it is very short.
I did get some unpleasant side effects, but not enough for me to change the drugs.
Good luck with the chemo, you have done one, so only 5 more to go.
Feel free to ask about anything bothering you, I think I got about every side effect going, fortunately some not too badly. - TripleTeaMember@Piccme thanks so much for your reply. I' m so happy for you that you have finished the 6 cycles.
The night of chemo I vomited for 14hrs straight and from then the maxalon & ondancetron haven't really helped. If the oncologist can help settle the vomiting next time that would be great.
Today's day 4 and I'm still nauseous but feeling a bit stronger.
Its good to hear there may be things the oncologist can do to help.
thanks xx - PiccmeMemberHi @TripleTea, I had 3 x FEC and 3 x Docetaxel 3 weekly and finished 2nd August. It is a nerve racking time as you never are quite sure how these drugs are going to affect you even when armed with the list of side effects. We each react differently, chemo can be tough no matter which regime you choose but as so many ladies have attested to on the network it is doable. For me I too was quite nauseous on FEC and unfortunately maxillon and ondansatron were not effective for me but by working with the oncologist we got it sorted. I found Docetaxel a little more difficult as I had a bad reaction to it. The side effects for Docetaxel don't kick in until day 3 or 4. I had bad bone pain and it affected my mouth and digestive system. Once again the oncologist worked through this with me giving me a dose reduction for cycle 5 & 6 and appropriate pain relief. Keep in mind that this was how I reacted. I also went through chemo with a lady who coped really well with Docetaxel. Keeping a list of your side effects as @Zoffiel suggests is a great idea as it is amazing how easy it is to forget to mention them to your oncologist. Your oncologist is there to help you get through this. Be kind to yourself, tick the cycles off, already one down. The unknown can often be more nerve racking than the reality. All the best. Sophie
- TripleTeaMemberThanks @primek. I will discuss this with my oncologist on my next visit. I would be happy to do weekly if it was not going to be as bad as this weekly. I am managing to keep some food down now which is great and I have been staying hydrated.
Thanks everyone xx