Forum Discussion
Rosetta
10 years agoMember
Post surgery, pre radio
This is my first entry here. I was diagnosed with BC in October 2015 - yes, Breast Cancer Awareness month :) Lots of pink around to make me feel like I'm certainly not alone. I'm yet to read entries of anyone in very similar circumstances as myself. I have had therapeutic mammoplasty/lift style surgery - a wonderful option given my pre-surgery generous size - and Sentinel Lymph Node Biopsy. The surgery style allowed for very large margins or as I said "take what you need and then take some more". So surgical incisions have been quite different to those I've read in posts so far - I describe it as an anchor style scar. I'm fortunate to have my grade downgraded from an initial grade 2 (via biopsy) to grade 1 (surgical specimen pathology) Invasive Ductal Carcinoma - clear margins and negative lymph nodes. I commence radiotherapy tomorrow and am having Mepitel dressing applied prior to first treatment with dressing being replaced as needed. I'm having 25 treatments/roughly 5 weeks. Once radio is finished the plan is to go on Tamoxifen for a couple of years, then Arimidex. Later this year, I have surgery on the non BC side to even things up - that surgery I'm excited about......going down a few sizes, a life-long dream = silver lining :) My query mainly lies in the surgical style, followed by radio, Tamoxifen, then follow up surgery approximately 9 months after initial surgery. Would love any specific advice anyone has to offer. I returned to work two and a half weeks after initial surgery. I am still working my 4 days per week as I have to financially - have run out of paid leave but earn a number of weeks at about week 3 of radio so I have that option then. I'm taking vitamins & resting as much as possible, I get very tired most days still - I'm 7.5 weeks post-op.
Thanks, Rosetta :)
14 Replies
- RosettaMember
Thanks Adean, glad your burns didn't hurt.
Take care,
Rosetta ??
- adeanMember
just to let you know my burns did not hurt at all they look bad I only needed panadol, solugel crème which I kept in the fridge was my best friend and I forgot to mention the berlie post surgery bra was a lifesaver. adean
- RosettaMember
Thanks Adean,
congrats on your 4th year all clear :) The burns you had sound very painful. Will check re: deodorant recommendation, thanks. I'm still doing my post-op exercises every day. I love your idea of the cold pack, will borrow that idea, thanks :) There's always other people around, they all seem to be there for different body areas so far and a vast range of ages :)
Take care,Rosetta :)
- RosettaMember
Thanks Karen,
yes a large sisterhood unfortunately, but that also means there's so many that understand :) I'm definitely paying attention to lethargy. Today makes 8 weeks post-op so still listening to my body on that one whilst having started radio on Monday. Playing it by ear :)
Take care,
Rosetta :)
- RosettaMember
Thanks Tracey,
yes the irony wasn't lost on me. The day after I'd been diagnosed at the screening office, I went to my GP's surgery to have a referral written. Right above and next to the receptionist's desk was rows of pink ladies and posters advertising October Breast Cancer Awareness - it's a little funny now.... The bar you went to must have felt confronting.
I've now had 3 of 25 radio treatments. Mepitel doesn't want to stick. Taking it a day at a time :) Best wishes for your treatment.
Take care,
Rosetta :) - RosettaMember
Thanks Ann-Marie :)
- RosettaMember
Thanks MONA63 :)
- RosettaMember
Hi Tracy, thanks :) Mine's also hormone reactive :) The dates you had for tests and results would have made your Xmas & New Year's awful. There's never a good time to find out but that would have added stress for you :( Yes my E/F world is evolving ;) Yes, I try to laugh about some aspects in particular ;) :)
Best wishes for your final results and you'll be in my thoughts for your treatment. My areas that are numb seem to be slowly improving. We've got this :)
Take care,
Rosetta :)
- adeanMember
Hi there, I just wanted to say it gets easy I was diagnosed in 2012 and yesterday got my 4th year of all clear had tamoxifen for a year with zoladex injections then had a hysterectomy and now take femara,.although it only seems like yesterday that I had so many appointments. Radiotherapy is different for everyone but the main thing is you will get tired towards the end I use to go in the morning and then onto work I survived but boy at the end I was exhausted, I regret not taking time out. Using a special deodarent ask the breast care nurse and moisturize, there are so many recommendations I used alovera as it was so cooling but I did burn badly for the last 5 sessions and had to have dressings 3 times a day. And do your post op exercises the radio aggravated my post op cording. I used to take a gel freezer pack and use it after to cool my breast down as I drove to work this was great, you will feel all kinds of weird pains but its normal. I used to enjoy the chit chat with the others who were waiting also its amazing that there are so many people with different cancers as you seem to feel a kinship with them, I wouldn't normaly talk to complete strangers but its amazing you do. I wish you all the best adean
- Cook65Member
Hi Rosetta
welcome to the forum but sorry you have had to join us.
i had a lumpectomy, 6 months TCH chemo, 33 radio therapy sessions and 12 months herceptin. I am 6 months post treatment now. I worked part time throughout my whole treatment. Chemo was the hardest and I look back now and wonder how I did it as chemo made me very ill. Generally the first week after chemo was a complete write off and then I would work Mondays, Wednesdays and Fridays so I could have a break in between. Like you financially, I had no choice. It definitely takes it out of you and you have to make sure that you rest when you need to. There were times I just had to go home and sleep. Take each day one at a time. Good luck. Karen xox