Forum Discussion
viking1
9 years agoMember
Post lumpectomy two week visit with surgeon to discuss chemo, rad and hormone treatment
Hi, I am not sure if I should go in with a pile of questions or just sit and listen and then go home and do some research? Was there anything in particular people thought was an important question to ask? 3am googling is doing my head in! The surgeon originally said my treatment would be lumpectomy, chemo, radiation and hormone treatment as I have the HER2 positive 'thing'. The sentinel node and one other was removed during surgery and cancer free. At present my prior to surgery 5x core biopsy report was 'infiltrating ductal carcinoma of the breast, Grad 3, (T3, P3, M2), arising in association with a component of high grade intraduct carcinoma'. There was 'focal positive staining for ER (80%, 1-2+), negative staining for PR, and strong positive staining for HER2 (3+). Hopefully whatever results they have from the lumpectomy will be explained as I only understand from the above that Grad3 is the highest Grade wise (and not good!) and HER2 positive requires hormone treatment - which can cause menopause symptoms. (Thought that was over!)The surgeon also sad the chemo would lat a year, but the full treatment was equivalent to a double mastectomy. I think he said double. Thank you for any advice!xx
25 Replies
- UnicornkissesMemberYes, I had Full CT body scan, bone scan, echocardiogram before chemo. Yes, to check nothing has spread, but mostly so they have something to compare it to later on.
The most interesting thing was all the unrelated things they found in the scans like hip bursitis and a bone island, foot arthritis, lung nodules, liver spots. Things a lot of people probably have but never know about.
I asked for copies of all my scan reports as I was interested.
I am also now going for a breast MRI, another full body scan post chemo to check lung nodules. I have also had a brain MRI as I got horrendous headaches with FEC ( and I get migraines) so it can be quite normal to have all these things done during treatment.
Then there can be multiple blood tests especially if you have the misfortune to land in hospital during chemo where they will test everything! And in my case find nothing to indicate why I got the high temperatures.
There won't be too much that you haven't had scanned, tested, discussed or measured by the end of it all. Jennie - NadiMemberI am jealous!!! I don't have that in Canberra. Sounds great. I could have certainly used massage every week! The acupuncture may also help with hot flushes that come from the chemo pushing you into menopause if you are not already in it. Take care
- viking1MemberThank you @Nadi! I found out today the tests were to establish a baseline as you said. Have no idea why they didn't just say that on the phone! Funnily enough the questionnaire I had to fill in first asked 'why are you here to have a bone scan?' and I had to say 'because I was told to come in! No idea but must be something to do my lumpectomy'. All went well and I found a place to hang out between procedures ... although I had the radiation dye in my arm at 10.40am the scan itself was only at 2.30pm! I think I will be learning patience this year! But the place I found was called the Solaris Cancer Foundation and it is a free service run by volunteers. It is for all cancer patients and their carers. Lovely lounges, comfy chairs, huge aquarium, books, tea and coffee plus a free alternative therapy every week of your cancer treatment and 6 weeks after! There was massage, yoga, reiki, aromatherapy, bowen therapy, pranic therapy, acupuncture, counselling etc. I am booked in for a half hour hand massage after my surgeon appointment on Friday! Might as well have a spoon full of sugar to help the medicine go down! I hope people in other states have something similar! I was considering going back to the car and waiting but this was just perfect!☺
- NadiMemberGood luck with it. I had CT, bone scan, Heart echo and series of blood test following biopsies and before seeing my surgeon. They are just creating a baseline of everything. They may suggest a portacath because Herceptin is given over 12 months. If you need information on ports, come on here as plenty of us have had them. Others have decided not to have them. I am really glad I have mine but I wish I had got it sooner ie at time of my surgery. Hugs
- viking1MemberOh thanks so much ladies! That doesn't sound abnormal then as so many of you have had those tests. It's a pity they didn't just tell me that's what it was for instead of making it a mystery. The first thing your mind jumps to is something negative! xx
- LMK74MemberI had the works too. Ct scan, breast mri, bone scan, echocardiogram, ecg all before starting chemo. It's more a pain in the arse than anything as all the scans feel endless. But they do have to rule out any spread. You'll do fine.
- AnonymousNot applicableI also had a bone scan and CT scan before starting chemo. I think it's quite common for high grade tumours. I also had an ECG to have a baseline for my heart which was very quick and easy. I think it's good to get the tests to give you peace of mind. I found a list of questions to ask my doctor in one of the Cancer Council booklets. The list really helped. Best of luck with your treatment.
- primekMemberI had a bone scan and a whole body CT scan before surgery (already had my pathology...same as yours) I can say I was ecstatic to have those results back and given the clear.
- viking1MemberThanks, you have lowered my stress level down two more points!
- AfraserMemberAll pretty normal - scans and checks are useful as they may pick up any problem long before you do (particularly if you are lucky and don't have very obvious unpleasant side effects). Occasional bone scans will check the state of your bone density which is important. Herceptin may sometimes cause some impact on the heart wall (it hasn't done anything to mine) so echocardiograms are normal too. One of the joys of this lark is that you go from someone who sees their local GP once a year (maybe) to someone with a surgeon, an oncologist, a cardiologist, a therapist and so on and so on.