Letrozole Ladies

@Brenda5
thanks for that info, I’ll look into it and run it past the oncologist next time. I have been using magnesium oil at night & find that it helps. It’s been helping my back pain as well. The muscles are super tight. I have been getting a little more sleep. Touch wood, it keeps helping. 

Tenille ,I looked at all the side effects in horror, but knew I had to be on this medication. Fortunately I have not suffered any as yet. Losing my libido would be the worst when in fact the thought of losing it has made it increase. Anyway,  its one day at a time with all of this crap. Be positive and the boss

Hey @positivity

I've got a Hobie Pedal Sport (the smallest of their pedal yaks) and LOVE IT!  I go out fishing a couple of times a week, at least.  Sometimes more.  Where do you plan on trying it out?  Let me know if you are ever up Forster way - we can hit the water!  :)   Make sure you have a life jacket on (by law) and go out on a calm day to start off with!  ;)    Getting IN to the yak ...... go in Bottom first!  NEVER try to stand up in them (unless you have a Pro Angler!)  You 'flutter' the mirage drive (legs fairly straight so the fins are retracted) when you are in shallow water! 

My pain seems to 'move' from spot to spot - but am generally achey all the time!  You should watch me walking up the steps to the dining room/kitchen!  Hilarious  .... sometimes I ache all over, sometimes shoulder, sometimes feet, sometimes hip ..... last night it appeared to be around behind my right side (almost kidney spot!)  Luckily it wasn't there this morning when I woke up - but I was awake til well after 2.30am (even after taking a temase at 12.30am!)  grrrr   It is a pain in the proverbial!

I find Panadol Osteo doesn't 'cut it' for me, sadly.  I am trying Indocid (anti inflams) at night time.  A friend has suggested Lyrica - but it seems to be more for nerve ending pain tho can be used for general pain as well.

@Anne94 My husband has suffered for years with restless leg syndrome. He changed doctors recently for a younger doctor who put him on Sifrol 0.125mg Pramipexole Dihydrocholide. Its just one tab at night and he says he is loads better but rather cranky his old doctor never suggested anything.

@positivity

positivity said:

I have been on letrozol for about 3 months and I have really bad heel pain.  I have noticed my feet getting sore by the end of the day   Does anyone else suffer sore feet(heels)?

Yep sore feet drive me bananas!  I find if I am overly tired or stressed about something they start.  I also find it is spasmodic and sometimes I can walk it out, thank goodness! 

My left ankle sometimes aches but I have had injuries in the past so I think that is a weakness that Letrozole has picked on and it can be very achy at night!

Thank goodness for Panadol Osteo even though I despise having to take them but they do work!

Hope you can find a happy medium and have the chance to try and do some light exercise that will work through the discomfort

Take care

Thanks arpie.  I also have my right arm that is unusually sore too( the side of my lumpectomy) so it makes it hard to do strengthening exercises.  I bought a hobie pedal canoe just before i was diagnosed with cancer and it is sitting in the garage just waiting to be launched. I should get it up and running.  looks so much fun and i don't need to use my arm!

Hi @positivity
Interesting what you say about the ankle pain - quite a few of our ladies have commented on that!!   With me, it has been my whole feet have been 'sore as' - as if the bones are now all 'separate' - so can really sympathise with you on this!  Luckily, it doesn't last for too long tho - just on & off - and more on the balls of the feet than the heels!  Weird how the effects are so different for so many of us!  :(  

I still endeavour to get out on my kayak as often as I can tho .... !  

I hope things ease up for you .... I am now into my 2nd month of treatment.

I have been on letrozol for about 3 months and I have really bad heel pain.  I have noticed my feet getting sore by the end of the day but gradually getting worse to the point where i cannot put my foot on the ground.  I am finding this really depressing as walking is my main form of exercise and you literally can't do much at all without the use of your feet.  My joints all over my body are a bit stiff but my feet are ridiculous.  Does anyone else suffer sore feet(heels)?

Thanks for that @iserbrown   @Romla   @kmakm

Great site & explanation, @iserbrown

I guess I really just found it weird that they hadn't mentioned Letrozole in any meeting previously, when they all knew I was 65, and well & truly past menopause & already full of aches & pains! 

All the best, Kate ..... so far, my side effects haven't been too bad .... still got plenty of time for the extra aches & pains, hot flushes, thinning hair, possibly 'more' facial hair - FUN FUN FUN ...... I had enough of that for 10 years, starting 20 years ago! grrr

@arpie My understanding of it is that Tamoxifen competes with estrogen, aromatase inhibitors stop/change the production of it in the first place. Therefore it's considered a more complete treatment of the estrogen 'problem'. If you are pre-menopausal in theory it's kinder to your body to allow the production of estrogen to continue. If you are post-menopausal the theory is what do you want with estrogen anymore anyway?

Well I can think of more than a few things, but cancer sucks and I'd rather have wrinkly old skin, aching joints and an atrophied vagina than the alternative... Got to maximise my chances. I've thrown the kitchen sink at this mother f*****r and I'm not stopping now.

Four days to go until I start my 10 year sentence.  :/