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Hope_2013's avatar
Hope_2013
Member
8 years ago

It's back again :(((

I'm a BRCA 2 carrier. Had DCIS the first time (2013) at 22 years old. I had a lumpectomy back then, no radiation no medication, have no idea why. 

Now 2017 my DCIS is back again in the same breast (the right). At first, I didn't want to have a mastectomy, but my DCIS is in different locations and I saw two surgeons and they highly recommend it, so I have no other choice. I'm not married, and after this don't if I ever will be. I still wanna keep my other healthy breast and I pray to God every day that it stays away from the devil CANCER. Would love to have the joy of breastfeeding my kids, if I end up having any, although I don't know what the future has for me. It's so hard to be forced to let go of a very precious part of your body and feminine. 

My concern now, I don't know if I shall get implants or not because I don't have much on my body to take from. I'm worried about implants due to the complications that so many women had in term of illness and so on. 

I would really appreciate if anyone of you ladies with implants or had single mastectomy and implants share their experience both negative and positive. 

Thank you in advance.  
BRCA1-BRCA2
dcis
mastectomy
  • Hope_2013's avatar
    Hope_2013
    Member
    8 years ago
    @onemargie Thank you so much, your words are so empowering and touching. And yes no chemotherapy thank God for that just surgery at this stage.  <3 
  • Brenda5's avatar
    Brenda5
    Member
    8 years ago
    Sorry to hear you have it back again. I had a single mastectomy and have no intention of having a reconstruction. My hubby sometimes feels up the wrong side but he soon finds where the other one is, no biggie.
    If you are planning on having children it might be wise to get a few eggs stored for the future. <3
  • onemargie's avatar
    onemargie
    Member
    8 years ago
    HI there @Hope2013 so sorry to hear that you are having a recurrence, but rest assured you will get plenty of advice on this forum, I'm 45 but I have a daughter whos 21 and as a mother I would be just devastated for you if you were my daughter. To be honest with you,  if I had the gene regardless of age but particularly because you are so young and have so much life left to live I would recommend the mastectomy with the implants for sure and you seem to be worrying so much about getting it in the other side so if you wanted to think about the double that's great I know that's what I would suggest to my own daughter if it were her so trust your gut on that one, and would reduce your risk significantly. 

    Don't read too much into the implant horror stories there are far more positive ones than negative ones and if you have a good surgeon that you trust then they will take good care of you. As for you not getting married, goodness me my love you are gorgeous with or without boobs and when you find Mr right he will love you regardless, and as for the breast feeding, your baby will love you just the same whether she or he is breast fed or not. Many women are unable to breast feed for many reasons other than yours so please don't beat yourself up about that too, children need love and good quality baby formulas these days are as the closet you can get to breast milk anyway and you will still be able to bond with your baby. I take care of heaps of mums that bottle feed and they still have that magical bond with their child.  You have plenty of time to think about marriage and babies just focus on yourself for now and I'm assuming you only need the surgery and no chemo?? Margie :)