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SandraS's avatar
SandraS
Member
14 years ago

I have invasive Breast Cancer

6 years ago at age 36 I had a breast lump which proved to be DCIS, Ductal Carcinoma In Situ.  Now that was a ride as I was also pregnant with my fourth son.  I have four boys now aged 13, 11, 8 and 6.  I was told that there would be a 60% chance of return (I had 2 surgeries, 1 to remove the lump - and 1 when I was 20wks pregnant to get a clear margin).  2 years ago I explored the option of a double masectomy which I chose not to take after learning that this would be no simple "boob job"  Hindsight hey?

6 years later, a week before my 42nd birthday, a new lump appeared in the same area, my breast surgeon who I had seen 6 months before with my regular checkup ordered mammo and us and both showed "nothing suspect" , the radiographer even suggesting it was a "pimple"  

The surgeon said she still didn't like it and wanted to remove it.  Had a third surgery on this breast early December to take it out and got a call from her rooms 3 days later - yes, this time you have breast cancer and this time it's invasive.  It's only early she said and thinks I would possibly need hormone therapy.  I wanted the double masectomy there and then and was booked in 20 December for masectomy and initial reconstruction.  Awful experience, one that I will never forget although all the endo has made parts blurry - crap Christmas Day, out on day leave and drugged out of my mind in front of my kids.  And to top it off the old lady across the road from my room up and dies just as I settled back into bed Christmas night. 

The Friday before Christmas was also a treat as my surgeon came in and sat down next to the bed with a nurse and told me the sentinel node was also affected, more surgery that night to remove a further 14 which thank god were clear - now, I would need chemo - frightened the bejesus out of me - I would be bald, I would look like a skeleton, yeah forget about the fact that now this thing could well and truly kill you !!

Tissue expanders were filled up quickly over 3 sessions,  they are lopsided, uneven and feel like rocks sewn into my chest (all normal apparently) and then chemo started on 9 Feb, I sooked like a baby while they were slapping my hand trying to find a vein.  A close friend came and stayed for the session we then went to get me a buzz cut and I picked up my wig.  I didn't feel that great for 4 days after. Nausea, heartburn and surprisingly eating like a pig.  (so much for the skeleton) and lots of early nights, Last night I beat my boys to bed by about 2 hours !

I first came to this site when I was diagnosed in December 2011 but somehow didn't feel like I 'fit in" .  Everyone was so positive and upbeat, I felt angry, betrayed and resentful.  Merry F^%$in Christmas.  I have edged back in slowly learning about genetics, ovaries, side effects from chemo etc.  I don't know if anyone will read this but if you do "Thank You" I have learned so much from all of you.   I still don't feel very positive or upbeat but each day I feel is a step forward.

10 Replies

  • Hi Di, thank you for your message - I have already learnt far more from this site than I have through a breast surgeon, plastic surgeon, oncologist, GP's and nurses !  regards, Sandra xx

  • Hi Chris, thank you for reading my story - I appreciate you telling your story with the tissue expanders and glad you had such a positive result in the end.  As this was all rushed the week before Christmas my breast surgeon had a hard time finding a plastic surgeon willing to operate.  I feel he was really rushed and not that interested so therefore only I found the true story re: the tissue expanders a few weeks after they were in.  And the worse thing is that now I'm having chemo they can't be replaced with the permanent impants in 3 months I have to wait until at least 6 weeks after the chemo finishes.  I am hoping that in the years to come they will discover something far less barbaric than what we have now! Thanks again, Sandra xx

  • Hi Kathryne, Thank you for reading my story, I appreciate your response and I also like your pillow idea ! sandra xx

  • Hi Tonya, thank you for your response - wow - there are people who have read my story.  My first brush with cancer was the DCIS and somehow I never really thought "I have cancer" as it was all contained and apart from the lumpectomies I never had any further treatment.  But boy this time around I'm certainly aware, chemo is really frightening, the first session is down and I'm sure not looking forward to the rest but I'm glad to see that you are on the other side of it now, gives me hope that I will be one day too ! thanks again, sandra xx

  • Hi Sandra, sorry to hear about your cancer returning again. What a bugger. The year before you, I also was in hospital around Christmas. Infact I came out on Christmas morning. I decided after this time to have a double mastectomy and went back 9months later to do this and have tissue expanders put in. I appreciate what you are saying about how uneven the expanders are, and how uncomfortable they are. I also experienced this odd shape, and one was placed about 2 cm higher than the other, and one seemed to stretch the skin with ease,and the other always seemed tight and small. I had these removed about 5 weeks ago, and let me reassure you, that now I am very happy with the result. I even asked my plastic surgeon to sit me up and check that they were level before he finished. I have 2 boobs which are now a 14B ( what I was before), and they are perfectly level on my chest and even in size. It feels so much better than the tissue expanders. I had some laser work done on the one that was always tight, from the physio, and that helped soften the muscle and relax it very well. The laser apparantly also helps to reduce the risk of capsular contracture. Sorry that you have had to endure this again, and it is ok to feel angry and cross. We have all felt this emotion many times, but gradually after the shock and despair, you can slowly start to see things a bit differently. I am always inspired by the strength that so women on this site display. It has helped me hugely. All the best. Love form Chris xx
  • Hi Sandra, sorry to hear about your cancer returning again. What a bugger. The year before you, I also was in hospital around Christmas. Infact I came out on Christmas morning. I decided after this time to have a double mastectomy and went back 9months later to do this and have tissue expanders put in. I appreciate what you are saying about how uneven the expanders are, and how uncomfortable they are. I also experienced this odd shape, and one was placed about 2 cm higher than the other, and one seemed to stretch the skin with ease,and the other always seemed tight and small. I had these removed about 5 weeks ago, and let me reassure you, that now I am very happy with the result. I even asked my plastic surgeon to sit me up and check that they were level before he finished. I have 2 boobs which are now a 14B ( what I was before), and they are perfectly level on my chest and even in size. It feels so much better than the tissue expanders. I had some laser work done on the one that was always tight, from the physio, and that helped soften the muscle and relax it very well. The laser apparantly also helps to reduce the risk of capsular contracture. Sorry that you have had to endure this again, and it is ok to feel angry and cross. We have all felt this emotion many times, but gradually after the shock and despair, you can slowly start to see things a bit differently. I am always inspired by the strength that so women on this site display. It has helped me hugely. All the best. Love form Chris xx
  • Hello Sandra

    Sorry you had such a bad Christmas, I know how you feel as mine was crap too.. Dont worry about being angry it is better to vent and get it out rather than sit on it and stew which will only make you feel sicker. Having Cancer is like being on a roller coaster of emotions one minute you are up and the next you are going down. Anger is an emotion we all feel from time to time and this is a good place to vent , we all have something in common= CANCER.  It is ok to sit and have a good cry too, screaming into a pillow helps me get it all out maybe you should try it too. Keep blogging, we are all here for you.

    Kathryne XXXX

  • Hello Sandra

    Sorry you had such a bad Christmas, I know how you feel as mine was crap too.. Dont worry about being angry it is better to vent and get it out rather than sit on it and stew which will only make you feel sicker. Having Cancer is like being on a roller coaster of emotions one minute you are up and the next you are going down. Anger is an emotion we all feel from time to time and this is a good place to vent , we all have something in common= CANCER.  It is ok to sit and have a good cry too, screaming into a pillow helps me get it all out maybe you should try it too. Keep blogging, we are all here for you.

    Kathryne XXXX

  • Hello Sandra

    Sorry you had such a bad Christmas, I know how you feel as mine was crap too.. Dont worry about being angry it is better to vent and get it out rather than sit on it and stew which will only make you feel sicker. Having Cancer is like being on a roller coaster of emotions one minute you are up and the next you are going down. Anger is an emotion we all feel from time to time and this is a good place to vent , we all have something in common= CANCER.  It is ok to sit and have a good cry too, screaming into a pillow helps me get it all out maybe you should try it too. Keep blogging, we are all here for you.

    Kathryne XXXX

  • I read your blog and am sorry to hear you had to go through so much and right on Christmas as well.I have a similar story to yours in that my breast cancer came back 7 years later in the same breast despite clear margins,full node clearance and radiation.I thought I was home and hosed after all that time. So in 2011 it was picked up on my routine mammogram.I had a mastectomy and then some chemo. Most of the time I whinged on this site about being bald but I managed to keep my sense of humour(not on really bad days).I'm about 21mths on now from the mastectomy.My hair is back and I've made lots of changes to my life. I haven't got confidence in my health just yet but that takes time.It's a real kick in the guts when you get it a second time so I really feel for you.This is truly a great site to come to - lots of info and support or just to vent. Hope you'll blog again,take care.

                                          Tonya xx