Hi,Just wanting to see what others have done in my situation.My breast cancer is oestrogen and progesterone negative but her2 positive.I have recently completed chemo, radiation and have herceptin until july.My oncologist seems confused on what to do now, he has mentioned hormone therapy, but has said he doesnt think it will do alot for me, he has also mentioned removing my ovaries which i wasnt too keen on because im not 30 yet and havnt had the chance to have kids. I live a fair distance from a major city so its not easy to get a second opinion.Would love to hear what treatment options you got, thanks alot!

Thanks guys! My gp is away on holidays at the moment, i can see about talking to my breast care nurse next time i go to the hospital and i see my surgeon the day after. I will ask about second opinion options. Thanks again!

I am actually wondering if he forgot you are estrogen negative. I know my oncologist sees so many people I have to remind...mastectomy and no nodes when he starts talking about treatments.

Hi @Samtasia! We are the same situation but it would be wise if you get a second opinion especially if you wanted to have children.However, did you do gene testing? If so, you can be positive for the BRCA gene and the likelihood of you getting ovarian cancer is high thats why probably he suggested removing the ovaries. But you can always double check with your breast surgeon as well. All the best.

Hi @Samtasia, I am out the other side of Her2 treatment like you. I am having Herceptin till June and then nothing. No one has every suggested hormonal treatments as my cancer isn't receptive. I would ask your oncologist again why they though about that and get them to explain. Perhaps it is to do with your young age. There are other immunotherapy drugs that may be considered in light of that. Perjeta and Nerlynx and Kadcyla? I've been told they are only considered for advanced disease. Good luck with it. I will be interested to hear any advice you get for further treatment.

I can't understand why they would consider hormone or ovary removal if estrogen negative. Can you talk to your breast surgeon? They may be able to link you with someone.

Help! Oestrogen And progesterone negative but her2 positive

kmakm
Member
6 years ago
Gargh! I don't like the sound of a confused oncologist... Can you ask your GP if there's a telehealth option available to you for seeking a second opinion? Perhaps if you give us a rough idea of your location another member might be able to help more specifically.

And welcome to the forum! K xox
arpie
Member
6 years ago
Welcome to the forum @Samtasia - glad you found us! Well done on completing your chemo and rads and all the best for the herceptin xx

Gosh, what a dork ... that Onc is certainly adding unwarranted stress to your situation with his suggestions. Yep, as @kmakm says .... see if you can get another opinion and maybe even consider changing Oncs. (I did.)

Re living in rural areas .. each state has a Patient Assistance Scheme to help out with fuel and accommodation costs, to try and minimise inconvenience yet allow you access to city Drs.

All the best ... I hope you can see someone soon. Xx
primek
Member
6 years ago
I can't understand why they would consider hormone or ovary removal if estrogen negative. Can you talk to your breast surgeon? They may be able to link you with someone.
Samtasia
Member
6 years ago
Thanks guys! My gp is away on holidays at the moment, i can see about talking to my breast care nurse next time i go to the hospital and i see my surgeon the day after.
I will ask about second opinion options. Thanks again!
Blossom1961
Member
6 years ago
@Samtasia I was her2+ and hormone-ve. Chemo, surgery and Herceptin.I didn’t have rads. No hormone therapy required. Not sure why your onc would suggest it or ovary removal. Definitely get a second opinion. This is stressful enough without adding treatment you don’t need. I am a lot older than you at 58 but feel free to ask anything you want. Sending big hugs.
Samtasia
Member
6 years ago
Thanks! So you didnt have any other treatments after the chemo?
Blossom1961
Member
6 years ago
I had chemo first, started Herceptin, then mastectomy then continued with the Herceptin. I was strongly offered radio but it didn’t offer any extra protection in my case so I politely declined (please read, forget it mate, why would I bother?) response. Sometimes we need to stick up for our own well being.
iserbrown
Member
6 years ago
https://www.bcna.org.au/understanding-breast-cancer/what-is-breast-cancer/types-of-breast-cancer/

https://www.bcna.org.au/understanding-breast-cancer/treatment/

I know you are through treatment however the links above are good reading and may help you with questions for your team

Best wishes
Take care and keep asking questions
iserbrown
Member
6 years ago
https://www.bcna.org.au/news/2019/12/fertility-resource/

Also this link about fertility
primek
Member
6 years ago
I am actually wondering if he forgot you are estrogen negative. I know my oncologist sees so many people I have to remind...mastectomy and no nodes when he starts talking about treatments.