Forum Discussion

starsinmypocket's avatar
15 years ago

Hello there

Well, hello there. Is anyone there? I feel like I am a pea sized body rocking around in a tin...hoping for someone, anyone to hear me.

This is Post 1. I hope to write others but I don't know. It has been a long year and I have felt pretty bad for most of it.

Here is me, in short:

Diagnosis, May DCIS and invasive cancer in the right breast 2.2 cm, 34 (now 35) years old. Oestrogen and progesterone positive, no family history.  Lumpectomy, radiation, Tamoxifen and waiting for the dreaded day I have to take Zoladex. I have an 18 month old and I work part time.

This has rocked my world. I am lucky, I caught it early etc but I can't shake the feeling of sadness and exhaustion that permeates everything. 

I can feel life creeping by day by day and I am worried that I spend too much time scared, too much time worried. 

Mostly, I am tired.

So this is it. It is all I want to say today. Maybe this will help me work out some of this mess in my head.

If you are out there, if you happened to read this...just say hello. 

S

24 Replies

  • Hi Sarah,  this is my first post, so I hope I have done it right.  I was dagnosed with advanced cancer in 2005 and have managed to stay well and relatively unchanged in that time.  I think everyone here understands about the loneliness.  I have been having the Zoladex implant once a month since I was first diagnosed.  Everyone is different and we all have different responses to it.  Lucky for me I haven't had much of a problem with it, just the hot flushes more than anything.  I too work part time and have only missed about two days of work.  My girls are older now, but I know it must be hard for you with such a little one. 

    It's great that you have written something.  I find writing down my feelings and how I am feeling is a great way to think about it and then get over it.  I write exactly how I am and I even use the "rude" words.  Writing stops me staying at the bottom of the barrel too long.

    Good luck on your journey and feel free to add me as a contact if you like.

    All the best. Tracey

  • Hello All

    This is also my first post and I am glad to have the opportunity to join this group. Strage for someone who has resisted opening up about anything through my life journey let alone my illness.

     I was diagnosed last November, just in time for my son's 21st Birthday and Christmas. A  Mastectomy, Chemotherapy, Radiotherapy, Herceptin and Tamoxifen  have taken up most of this year. There is always a list of common side effects but I always seemed to get the the ones in the uncommon list as well. The tiredness lingers as well as ongoing issues with joint pain and numb toes. I haven't had time for fear yet because like most families everyone else is counting on me(mum) to be on top of things so that they can cope. My daughter is doing year 12 which is a struggle for her and I decided to leave my job so I can be there for my daughter and focus on getting well. My husband and I decided to sell our house in Melbourne and move back to SA to a small acerage just out of Victor Harbor. We just feel  that we want to do things we want to now and not wait until retirement age. We want the next 5 years to be about us and our family rather than working so hard all the time.

    I haven't really shed a tear about my cancer yet I'm sure I will one day but I get the feeling that if I breakdown everyone else will too and then I will end up having to support everyone else. Right now it's easier to plough on,take one day at a time and remember that there are others who are a whole lot worse off than me.

    I am looking forward to getting through the move to our new home, helping my kids set up their new lives and keeping my mind off the fear that lingers in the background. 

    Sara, like you I hope there is someone out there - I'm sure there is - and I look forward to learnig more about other people and how I can contribute to the cause.

     

    Kay

  • Hi Sara, this is my very first post and I'm not sure if it will end up in the right place! LOL

    The hardest thing to deal with is the loneliness. You have to stay positive because the ones you love are so desperately scared and you feel you have to be brave on the outside so that they can cope! I know that sounds silly but that's how it was and still is for me.

    I was diagnosed in September 2005 and had a mastectomy in October and started Chemo in November. I went through those first two months as if in a dream.

    My beloved daughter-in-law who was a travel agent came to visit me after my first chemo and gave me a beautiful bunch of tea roses. She was on her way to the airport accompanying a group of tourists and she looked very smart in her uniform. She gave me a hug and said she would be thinking of me on the day of my second chemo treatment although she had no idea where she would be ... we laughed and hugged and as I waved goodbye I had no idea that I would never see her again. She died of a heart attack in Marrakesh, Morocco leaving a heartbroken husband and three children aged 11, 14 and 16.

    Dealing with Cancer and Chemo, Radiotherapy and subsequent Herceptin and trying to help my grieving family nearly broke me. I couldn't die because too many people were relying on me so I suppressed my own feelings and struggled on.

    I was blessed to have had the support of a wonderful husband, daughter, sister and mother without them I would have drowned in misery.

    I'm still struggling and dealing with the side effects of Arimidex but my own problems pale into insignificance compared to those of my beloved grandchildren.

    I have been reluctant to join any support group as my depression seems less to do with Cancer than with other problems. However, Sara, your post touched me and I identify with your feelings of sadness and being scared.

    This is a wonderful network and hopefully we can all feel less alone and helpless just by posting to each other.

    I hope this helps.

    Rennay

  • hi ladies

    glad to see you participating, thats what this site is all about.  W have a great bunch on women, who have been on the journey for themselves or with loved ones, so a mine full of information and support can be had right here.  I was diagnosed in jul 2008, had lumpectomy, lymph nodes clear, chemo, radiotherapy and am now on Arimidex hormone for 5 years.  After treatment was finished i felt great, then a couple of months down the road, i fell flat, teary etc, Me thinking i'm a strong person thought i will get through this, but tebest thing i done was talk o my doctoner who prescribed mild anti depressants, i argued the point with him i didnt need them.... who's the proffesional, and having spoke to a few women since, it seems its a natural thing after treatment. i am off them now, and feeling great, intent on supporting others, having just been on the bcna community liaison course, i am able to help others in the rural area where i live, so it goes to show, in this day and age you are not alone, there is always someone to help along the way.  There are people of all ages on here, so keep on visiting and participating. GREAT TO SEE YOU HERE!!! feel free to add me as a contact .  Moira