Forum Discussion
arpie
6 years agoMember
Heart Palpitations without chemo - could it be a side effect of AIs?
Hi guys
Has anyone else had heart palpitations who HASN'T been on chemo, but IS on AIs? I've been on Arimidex for 12 months now. I guess it would be similar to 'panic attacks'? Tho pretty sure it isn't this!
I've had a scary few days this week, with thumping heart palpitations (skipping beats every 5 or 6 beats, then maybe after 10-15 beats) but yesterday morning at 3am, it was after EVERY beat & it scared the crap out of me. I also had a 'throat blockage' that felt a bit like indigestion & I know this can be a sign of a heart attack, but didn't have the pressure, pain or clamminess associated with a heart attack. I was awake from 3am on ..... So I 'sat it out' til 10am with the thumping skipped beats still happening - then went to the GP. They did an ECG but it didn't show up - and wanted bloods done to make sure the troponin levels weren't 'up' (showing an enzyme related to heart attacks) but there were no pathology centres open on Sat in our towns which surprised me as they always used to be open - maybe they closed due to Covid? So now I had to go to the closest hospital (and waste THEIR time) to get a simple blood test, ECG etc, when the pathology place should have been open. :(
I said I would drive to the closest town where the hospital would do the bloods - but they didn't want me to drive in case I had an episode on the way ... so they called the ambos to take me. This really upset me as it is a waste of an emergency service & I felt guilty that I was using the Ambulance when a more serious case could be impacted by it not being available! :(
So at the hospital, they did another ECG (the beat abnormality didn't show, even tho the skipping continued throughout the day.) Chest xray was clear. Bloods were good. I finally got home at 6pm with one of my uke ladies driving up to pick me up. Hubby thought I'd been out kayak fishing all day! His dementia at least stopped him being worried! LOL
I go back to the GP for more bloods tomorrow (thyroid etc) and hopefully get fitted with a Holter monitor to check my heart beat over the next day or so - and I truly hope that it will pick up on the skipped beats. My dad died young from heart (had his first one at 40 and died at 50 with numerous attacks in between.) My brother was fitted with a pacemaker 2 years ago after a single catastrophic incident (he is incredibly fit & thin so that was a real surprise!) My sister now tells me she has had palpitations for years - I didn't know! So it is possibly inherited, could be age related, or could be a side effect from my AI tablets!
I see my Onc on Tues, so will be mentioning both the ticker problems & the urinary urgency (which started about 4-6 weeks ago) as my main concerns.
Who else has had heart issues when they've NOT been on chemo but HAVE been on AIs? (I know that chemo can cause heart problems - and they now check patients before & after chemo - tho the problems can start years after the treatment - so everyone needs to be aware of this.)
Hopefully this will all settle down soon without the need for too much medical intervention - I DO need to drink more water, as this can upset the electrolyte balance in the body (as can drinking TOO much water - it washes the electrolytes OUT of the body. This happened to my neighbour - she ended up with a pacemaker.) So I have my fingers crossed.
It has also raised fears about what will happen to my husband if something adverse DOES happen to me - as we don't have family nearby - and I can't rely on friends to take over the care of hubby (with dementia) if I am unable to do so. I will be contacting My Aged Care this week to kick start getting him 'on the books' even if we don't use their services initially.
What sort of Plan B do you have for your elderly partner/parents, in case something happens to you? We don't have children tho we do have 2 stepchildren in NZ - but can't expect them to take over his care.
Has anyone else had heart palpitations who HASN'T been on chemo, but IS on AIs? I've been on Arimidex for 12 months now. I guess it would be similar to 'panic attacks'? Tho pretty sure it isn't this!
I've had a scary few days this week, with thumping heart palpitations (skipping beats every 5 or 6 beats, then maybe after 10-15 beats) but yesterday morning at 3am, it was after EVERY beat & it scared the crap out of me. I also had a 'throat blockage' that felt a bit like indigestion & I know this can be a sign of a heart attack, but didn't have the pressure, pain or clamminess associated with a heart attack. I was awake from 3am on ..... So I 'sat it out' til 10am with the thumping skipped beats still happening - then went to the GP. They did an ECG but it didn't show up - and wanted bloods done to make sure the troponin levels weren't 'up' (showing an enzyme related to heart attacks) but there were no pathology centres open on Sat in our towns which surprised me as they always used to be open - maybe they closed due to Covid? So now I had to go to the closest hospital (and waste THEIR time) to get a simple blood test, ECG etc, when the pathology place should have been open. :(
I said I would drive to the closest town where the hospital would do the bloods - but they didn't want me to drive in case I had an episode on the way ... so they called the ambos to take me. This really upset me as it is a waste of an emergency service & I felt guilty that I was using the Ambulance when a more serious case could be impacted by it not being available! :(
So at the hospital, they did another ECG (the beat abnormality didn't show, even tho the skipping continued throughout the day.) Chest xray was clear. Bloods were good. I finally got home at 6pm with one of my uke ladies driving up to pick me up. Hubby thought I'd been out kayak fishing all day! His dementia at least stopped him being worried! LOL
I go back to the GP for more bloods tomorrow (thyroid etc) and hopefully get fitted with a Holter monitor to check my heart beat over the next day or so - and I truly hope that it will pick up on the skipped beats. My dad died young from heart (had his first one at 40 and died at 50 with numerous attacks in between.) My brother was fitted with a pacemaker 2 years ago after a single catastrophic incident (he is incredibly fit & thin so that was a real surprise!) My sister now tells me she has had palpitations for years - I didn't know! So it is possibly inherited, could be age related, or could be a side effect from my AI tablets!
I see my Onc on Tues, so will be mentioning both the ticker problems & the urinary urgency (which started about 4-6 weeks ago) as my main concerns.
Who else has had heart issues when they've NOT been on chemo but HAVE been on AIs? (I know that chemo can cause heart problems - and they now check patients before & after chemo - tho the problems can start years after the treatment - so everyone needs to be aware of this.)
Hopefully this will all settle down soon without the need for too much medical intervention - I DO need to drink more water, as this can upset the electrolyte balance in the body (as can drinking TOO much water - it washes the electrolytes OUT of the body. This happened to my neighbour - she ended up with a pacemaker.) So I have my fingers crossed.
It has also raised fears about what will happen to my husband if something adverse DOES happen to me - as we don't have family nearby - and I can't rely on friends to take over the care of hubby (with dementia) if I am unable to do so. I will be contacting My Aged Care this week to kick start getting him 'on the books' even if we don't use their services initially.
What sort of Plan B do you have for your elderly partner/parents, in case something happens to you? We don't have children tho we do have 2 stepchildren in NZ - but can't expect them to take over his care.
38 Replies
- ddonMemberYes, the radiation oncology nurse is wonderful - I have flamazine cream and twice daily dressings. Lots of pandeine forte. It took me by surprise how bad it has become. Anyway, it will heal no doubt.
- arpieMemberThat's a real bugger about your rads burns @ddon - I hope you are getting good advice on the healing. :( I hope you get pain relief too! grr
- ddonMemberThat’s so good that the beta blockers have worked - they do for me also.It’s so difficult when you can’t do your activities that you enjoy - I hope you can get your shoulders sorted. I am so grumpy this week because my radiation burns have ended up severe enough that I can’t jog and even brisk walking is difficult. I am in pain and so itchy, and coupled with hot flushes and no exercise I am not happy.
- arpieMemberI’ve been on the 1/2 strength beta blockers for just over a week now and they have stopped the palpitations completely! Woohoo! I am taking them at night, @ddon and it seems to be working for me.
No other side effects that I am aware of, so all good.
Sadly, For some weeks now, I have been having major shoulder problems which is impacting my kayaking and life In General. I had my first procedure on the left shoulder 20 years ago and had surgery on the right shoulder about 8 years ago. My left shoulder is playing up ... but the right one is way worse. :( I’ll try and organise an X-ray and ultrasound hopefully on both shoulders next week, tho there is usually a 2 week delay here for ultrasounds. :(
I don’t know if the AIs are contributing to it.
I am not looking forward to having more surgery/procedures as it can take 1-2 years to get full movement back and it will impact my uke and kayak activities, badly. :( But it is already impacting my day to day life, so I need to get it checked out.
The shoulder is the most complicated set of bones, muscles and tendons in the whole body. - FLCloverMember@arpie you have the same thing I have, ectopic beats. Have had them for a few years now and yes, can be unsettling once they start. I’m not taking anything for mine atm but not sure if that will change with all this heavy bc medication. Glad you got answers and that it’s not serious. I find the less I think about it the less it happens BUT yes, easier said than done. Hope you enjoyed your kayaking Xx
- ddonMemberThat’s good you got some answers. I am on beta blockers for the extra beats and they do a great job. I don’t have any side effects from them except that exercise is hard because the medication prevents your heart from responding as it needs to. I just fiddle with the time I take it so I exercise early in the morning and then take tablet when I am finished. That’s what my cardiologist recommended.
- iserbrownMemberPleased to read you got an early appointment and a logical explanation! Goodness our bodies certainly keeps us on our toes at times.
Best wishes and happy kayaking when you can
Take care - arpieMember
I Had the echo last week and had palps all thru it! LOL .
Saw Dr yesterday (heart specialist - Got lucky with an earlier appt.) He is very happy that I don't have a 'real problem' - no damage or leaky valves, but he suggested getting beta blockers to control any future attacks! So I have ‘ectopic’ beats = ‘extra beats’ (even tho to me it feels like ‘missed beats’!)
It seems to have largely settled down for now. I was in the kayak yesterday for 5hrs with no issues.
So looks like I just have to get used the it when it kicks in. Had a shocker sleep last night tho! Probably just thinking about it! Grrr Looks like I've just gotta learn not to stress about it! Tricky tho it is!
Many Thanks for your support xx
- FLCloverMember@arpie I hope you get clear answers and good results 🤞🏼😊
- arpieMemberWoohoo! Echo next Thurs & cardiologist in Mid July unless a cancellation becomes available!
That's not as long a wait as I thought it would be!!