.....WHAT'S THAT?? CAN YOU SPEAK UP?!?!About a week ago all of a sudden I became horribly aware of having tinnitus. I have had ringing in the ears occasionally in life, as you do. Never like this though. I feel like it's now suddenly 24/7 and it is shitting me literally to tears.Any evidence that this is a side effect of AIs or what?I know chemo can damage hearing...but how? Is that what's happening to me? I can't live with tinnitus. I've got too much other crap going on. UGHHHHHHH I don't see my oncologist for a couple of months, but I want to talk to her and say Hey! What is this!

@arpie Thank you, I wish I had a magic cure for you too. I have to say right now I’m FED UP with the never ending bloody list of side effects that we have to live with. If I find out that tinnitus is related or caused by these drugs, and I have evidence....I’m gonna have a lot of stern words for the docs who never warned me of this particular effect >:)

Chemotherapy. Medications that can damage the inner ear are called ototoxic. Certain types of chemotherapy are ototoxic. These include platinum-based drugs such as cisplatin (Platinol) and carboplatin (Paraplatin). The first sign of ototoxicity is often tinnitus. Hearing loss usually occurs when the drug damages the sensory hair cells in the inner ear that help process sound. Typically, it occurs in both ears.Those little hairs in the ears and the nose are there for a reason but we haven't yet got a chemotherapy that can differentiate. At least in the nose, my only long term result so far, after months of a bloody, crusty nose, is a tendency to same whenever I have a sniffle. But apparently damage to the ears may be more crucial. I hear hear you about warnings. Problem is, that at the other end of the process, if my oncologist had laboured every possible side effect, I might have not agreed to have chemo. The list he went through was scary enough. And I didn't get any of the common ones. This end of the process I live with the side effects I have, and am glad I didn't have to make any harder a decision. But it's all highly individual, and almost impossible to know at the time what you are prepared to risk. Nearly everyone looks back in some amazement with what they have encountered and dealt with, somehow.

I developed tinnitus suddenly on Tamoxifen. It never goes away. It's like having cicadas chirping day and night.

Not something that I've heard of, but hearing is precious. I'd suggest a trip to GP to get your ears checked out

I wish I could give you a magic cure .... but Sadly, I've had Tinnitus for decades and my AIs sure haven't got rid of it either! :( It always appears to be worse at night (when it is deadly quiet) .... I have a canary in each ear, singing different notes! :( I DO wear earplugs at night & is somehow reduces it a bit - so I get a good sleep now & then.Back in the 80s they experimented with me, saying that my 'bite' was wrong, causing Tinnitus ... and ground down my rear molars ...... which did NOTHING to remedy the Tinnitus :(All the best - I will follow this thread with interest! xxHere is a link to other mentions of Tinnitus on the forum!!https://onlinenetwork.bcna.org.au/search?Search=tinnitus

Does Anastrozole cause tinnitus? | BCNA Online Network

Brenda5
Member
7 years ago
I developed tinnitus suddenly on Tamoxifen. It never goes away. It's like having cicadas chirping day and night.
arpie
Member
7 years ago
That's really funny, @kmakm - I wear ear plugs for exactly that reason! The slightest noise (even Keith breathing) will keep me awake!! And the bird's chorus starts here at about 4am too! :(
kmakm
Member
7 years ago
Someone I know developed terrible tinnitus and was advised to sleep with his window at night. He said it worked really well. The ambient night noises lessened the drone of his ears.
arpie
Member
7 years ago
I wish I could give you a magic cure .... but Sadly, I've had Tinnitus for decades and my AIs sure haven't got rid of it either! :(

It always appears to be worse at night (when it is deadly quiet) .... I have a canary in each ear, singing different notes! :(

I DO wear earplugs at night & is somehow reduces it a bit - so I get a good sleep now & then.

Back in the 80s they experimented with me, saying that my 'bite' was wrong, causing Tinnitus ... and ground down my rear molars ...... which did NOTHING to remedy the Tinnitus :(

All the best - I will follow this thread with interest! xx

Here is a link to other mentions of Tinnitus on the forum!!
https://onlinenetwork.bcna.org.au/search?Search=tinnitus

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