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Anonymous's avatar
Anonymous
8 years ago

Arimidex side effects

Hi Everyone,
Ive been on Arimidex since July 2015, and up until the last few weeks have been experiencing cramps in my hands and feet, ankles and wrists. My Achilles' tendons go on strike first thing in the morning, so I walk like an egg bound chook on the initial trip to the loo.
About 6 weeks ago, my trapezius muscle went on strike, causing sore shoulders and neck. At one stage I couldn't lift my arms up past my shoulders without pulling and pain. This has now become more localised to the right side of my neck, and my lower back is now on strike with lumbar pain and into my gluteus maximus. 
With the assistance of tiger balm and panadol, I'm doing my best until my oncology appointment in 2 weeks time.
Does anyone else have side effects from this bloody medication, and what do you do to manage it?
Cuddles, Trace xx

17 Replies

  • Tracey!!
    I'd love to know how you go, because its exactly where I am at. 

    I think its also interesting of the switch Martine between Femara and Arimidex. See I had no symptoms on Tamoxifen at all. The reason I think I do on Arimidex is mostly as Chemo threw me into menopause which seems to play havoc with everything. I guess I have a stupid question, but if Ive been menopause since 2015 am I NOT producing Oestrogen anymore? I must ask him at my next appt. I figure too if for some bizarre reason and they don't know why but Prolia Injections for bones has a high success rate in no recurrence. Lots to talk about, obviously if I was in serious risk I wouldnt just come off it without some plan. I just know after doing the exercise he asked me to do, the difference was massive. I already have Osteoporosis in my neck and lower back, exercising is really difficult and this medication makes it impossible....he even stated in his report to my Income Protection that Exercise will not rehabilitate me back to full time capacity, literally impossible whilst Im on the medication. Ummm I have to work full time regardless next year, so I have to sort this out now. 
  • Anonymous's avatar
    Anonymous

    I think as i had a recurrence im questioning how effective they are. The added bonus i have is i have 2 prolia injections a year due to bone scan comi g back not good due to chemo. Apparently it helps in preventing BC as well weird lol. I use turmeric in all my cooking so im interested in taking a tablet form. X
    Hi Mel, 
    I did a bit of reading up on turmeric and initially started buying the root form of it, chopping a little bit off and chewing it. It is better absorbed if you have it with an oily meal,like fish or including avocado, and it was hard to know if I was having the right amount. So I discussed this with my chemist, and he recommended the tablet form, mine is only 1 a day (1000mg), so I'll let you know how it goes. My friend said that it took about a week to notice any difference so early days yet 
    Cheers xx
  • Anonymous's avatar
    Anonymous
    Hi Martine, 
    that gives me some hope, I had to stop going to the gym for light circuit class due to muscle and bone pain and am just walking to try and maintain some fitness. That is so interesting about the switch between medications. Should be interesting to see what my onc has to say, don't want to continue like this for much longer.
    Cuddles Trace xx
  • Hi everyone
    i started Femara in June 2015 and whilst the first three months was fine it all went downhill after that. With the constant aches and bone pain I felt like an 80 yr old crone.  I persevered until May 2016 when my onc said enough.  I am now on Arimidex and the improvement in everything is priceless.  Mr onc said whilst Femara and Arimidex are basically the same there is a slight difference in the chemicals and for some reason he cannot explain switching from one to another can make a big difference to some women . Whilst I do have a few aches and pains, it is nothing I cannot cope with and perhaps I will last the next 8 years on this medication.
    cheers
    martine
  • I think as i had a recurrence im questioning how effective they are. The added bonus i have is i have 2 prolia injections a year due to bone scan comi g back not good due to chemo. Apparently it helps in preventing BC as well weird lol. I use turmeric in all my cooking so im interested in taking a tablet form. X
  • Anonymous's avatar
    Anonymous
    Thanks Melinda,
    thought that I was turning into a hypochondriac !! Have started myself on turmeric for its anti inflammatory properties, as a friend of mine was using it for arthritis. Just started it last weekend, so giving it some time. I know that there are other medication options out there like Femera and Tamoxifen, however the side effects all seem similar, and I'm not game to stop the Arimidex due to the risk of recurrence.
    Hugs right back at you with thanks, Trace xx

  • Hey Tracey!

    I've actually done a few posts on Arimidex, Ive been on it since January 2016 and side effects are beyond ridiculous! My Oncologist told me to stop for 6 weeks keep a journal and at the time I was going into surgery for Mastectomy/Diep flap recon so Im 6 weeks today post surgery LOL. Ok sooo first 2 weeks didnt notice much then...it was HUGE! I didnt walk like an old lady, I got out of bed with ease and no pain and mainly no pain all over my body!! I had to go back on it regardless he said at 6 weeks, so started a week ago..and OMG!! back I go...can hardly walk the pain in my ankles, feet, legs, hips, lower back, neck, shoulders, wrists and hands is RIDICULOUS!!!! So you are not alone. I dont see him til May but I think I'll go sooner, I honestly dont think I can live my life like this popping panadol osteo/nurofen together every 8hrs to feel semi-normal. I did Tamoxifen for 4yrs and had a recurrence, so Im not convinced to be honest on taking it. Hugs Melinda xo