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Andrea_Byrne's avatar
10 years ago

Andrea66

hi everybody, well this is my first time of posting so hope I'm doing it right!  6 months ago I made the decision to move from central coast of NSW to QLD. My beautiful family with grandchildren are much closer now. And so my new life was beginning or so I thought! In April I was contacted by breast screen to go for another " precautionary " mammogram as a recent scan had shown an abnormality???? Nothing really to worry about???? All of the staff were lovely and I was poked,prodded,biopsies but still confident it was all just " precautionary "  1 week later I had to return for the results. Is there anyone you can bring with you I was asked? Now I'm starting to worry!! The dr was lovely, the nurse was lovely as they gave me the " unfortunately it's not good news "!!! My head was spinning, I didn't cry, just sat like a stunned mullet !!! My daughter in law held one hand and the nurse the other. Invasive ductal carcinoma, only very small, which was a good sign!  One week later I'm meeting with my surgeon who said it looks like it hasn't spread so the plan was to have a lumpectomy and sentinel node removal then most likely a course of radiotherapy.  4 weeks later operation ! Dr seemed quite pleased and confident but would have to wait for pathology. 1 week later bad news, not clear margins and sentinel node had cancer. Dr was so supportive and explained everything and gave me options as to further action.  5 days later I went back with my decision to have left mastectomy with node clearance. Operation scheduled for the following week. CT and bone scan were done and unfortunately the CT scan revealed a clot near my collar bone, operation would now be delayed 2 weeks as I now had to give myself daily clexane injections!!! Not to be outdone under my arm developed a huge infection which meant a course of antibiotics. 2 nd operation finally happened almost 4 weeks after the first!! Waking up after that operation with a drain inserted was quite a shock as before surgery my dr had said normally she doesn't use them. I was beginning to realise by then that I was far from normal !!!! After spending 3 days in hospital I went home drain had become my new best friend.... Not!!! 5 days later I'm back for my check up and results. Feeling very positive, I can do this and then.... Unfortunately out of the 19 nodes that were taken another 5 have cancer and the original size of the tumour was to be found somewhat larger!!! 2 weeks on I have now seen my oncologist and decided to go with all the recommended treatment , 6 months chemo, 3 months radiotherapy and 5 years hormone therapy! I feel my whole being has been turned upside down, inside out and exposed for the whole world to see!!! I feel as though I have gone from a strong confident person to a quivering mass of jelly! My family are so supportive and my sister and niece have come out from England to spend sometime with me. I feel surrounded by love but at the end of the day I am so very scared. I've been poked, prodded, had every test,scan imagaginable and wonder how I'm ever going to get through this. For the last couple of months I read all of your blogs and I am amazed by your stories, your strengths and your courage. I just hope some of it rubs of on me!!! So sorry for going on and on but I will end now. Take care everybody and hopefully I will get a bit more positivity back soon! Xx

19 Replies

  • thank you for caring and your encouragement. One of my sons keeps reminding me to take one day at a time. Some days I seem to be able to do that and others I find myself drifting from the plan! I'm hoping there aren't going to be too many hurdles at least not for a while! But I fully intend to hang in there no matter what. 

  • Thank you for sharing your journey it's good to know there's light at the end of the tunnel and I think once I have started treatment I might get to see it!

  • Thank you so much for your support. I'm trying to fill my days doing nice things with my family before treatment starts in a few weeks. I'm so happy you are coming out the other side of this insidious disease and I know I will too eventually! 

  • Hi Andrea - Goodness it is a roller coaster that you've found yourself on! Don't every say sorry for going on and on as you just did in your closing thoughts.  I along with everyone else on this forum, along with the great BCNA staff, understand totally the need to vent or talk and talk and talk; helps you get through and form some sort of understanding of where you are now at.

    We are hear to read your posts and offer sage advice where we can or give you some tips.  On the day of my diagnosis I was put with a Counsellor prior to diagnosis, so I figured there is something going on here - anyhow, her advice to me was when you start to feel anxious pat yourself down, pat your legs and your arms and say yes I am still here and it will bring you back into the now instead of the racing thoughts of who the, what the, what if.............you too are strong, an inner strength comes that you didn't know you had!

    Take care and sending you a virtual hug from Christine xx

  • Hi Kath - just read your post and picked up on your vulnerability - just want to send you a virtual hug.  Take care from Christine xx

  • For all of us this is a frightening  journey full of unknowns any many fears. How lucky that you did move and have family close by. I know the feeling of having your new life robbed though. After years of the Supermum workholic...and a breakdown to boot...I restarted my life with a less pressured job and started having much more hubby time and general family time...more presence etc. Aah ...3 months on a cancer diagnosis...5 weeks after a clear mammogram and found 9 days before Xmas. I chose straight up on a mastectomy as I live 500km from a breast surgeon and also readons being that they couldn't find it with a mammogram before how would I be sure recurrance could be detected. Also my cancer is es+pg-Her2+ grade 3. Node neg. It was less the 2 cms. As I have a sucky family history I also  was fearful of a second primary undetectable so a bilateral was done. 

    I feel emotionally rung out and very vulnerable. I have days I cry a lot...the fear of metastases remain. I am almost through my chemo and have been emotionally and physically exhausted but I have been lucky. No hospital admission. No secondary infections. Just tiredness, lifting toenail and a bit of mild balance issues and reflux. I can only imagine how a non clear margin and an infection would impact on me, as well as a clot.

    You are doing incredibly well. Once this infection is sorted and drain gone you can heal from that. Chemo is your friend and even though we are all scared to death of it...you feel at least you are doing something to ensure tbe cancer is gone for good.

    Just so you know my niece had a tiny cancer but 10 nodes pos out of 20 taken. She was her2 positive grade 2. 14 years on she is still cancer free. I think of her when I have chemo blues.

    No guilt about your family support. Embrace it. It will draw you all closer. Feel free to talk about your fears and tears here as we all feel terribly alone in this journey regardless of that support. It's  great to talk with others who get it.

    Take care 

    Kath x

  • Hi Andrea,

    it is so confronting when you are told one thing and another thing happens. You get your head around what to expect and then that is blown completely out of the water. It's amazing though, once you are over the surgeries and you know exactly what you are dealing with, you just seem to put your head down and do what you have to. Just do one day at a time and one appointment at a time.  Cancer does knock your confidence. I think it is the confidence in your own body. It has let you down.  It's ok to be a quivering jelly. It's ok to be scared. They are all normal reactions to what you at going through. The fact is you will get through this!  You have no choice.  I used to get angry when people would say I was an inspiration or brave as I was just doing what I had to to survive. It's not easy going but you will get there. My mantra was short term pain for long term gain.  Be prepared that you still may have some unexpected hurdles as you go along. You are doing what you need to to get well. Hang in there. Take care. Karen xox

  • Sounds a bit like my journey which started with a move to a new town too. Second surgery for the axillary clearance as well. My chemo was only 3 months and they said I didn't need the radiation, just hormone therapy for years. Counting myself lucky as that chemo is ruff stuff. You do get by though and it gives a good feeling that any stray cancer cells missed are copping hell. We're here for you.

  • OH Andrea,

    You have had a rough ride so far on a journey none of us chose, 

    It is great that you have support around. YOU are strong you have already gone thru so much of the journey. None of us are normal  we all have quirks with this stupid Breast Cancer that go left or right when we hope it will be plain sailing. I want you to know you can come and rant rave cry on here we will understand and listen.... even laugh with you and allow you to know we understand your pain and emotional rollercoaster of having to walk this bloody journey of BC. 

    I want to give you some hope  2012 diagnosed with BC  had spread to nodes, double mastectomy followed by 9mths of chemo due to allergic reactions to it .... 6 weeks of radiation and I am here reasonably healthy nearly 4 years later .... Yes we all get the dreaded side effects some of which like to hang around. But know there is life after BC we do stop the treatments and we can regain our health. 

    no need to apologise for going on ..... we all need to be able to let the pressure of this journey out somewhere safe this forum is a safe place to do that with lots of support around and people who understand.

    HUGS and energy

    Alice aka Soldier Crab