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elisaw's avatar
elisaw
Member
14 years ago

a journey opening new doors

i was first diagnosed with breast cancer of my left breast in 2005.  I had a lumpectomy, auxillary clearance  and radiation as i refused chemo and tamoxifin due to side affects.  I recovered and was clear for 5 years.  In jan 2011 i was diagnosed with breast cancer again in the left breast which was a stage 3 and 49ml 10 times bigger than onocoligist expected so hav just had a full masectomy with a latissimus dorsi reconstruction, chemotherapy and wil probably hav to take tamoxifin due to my cancer being estrogen fed. This does put a halt in your life and your emotions are like a roller coaster.  I feel that you hav to keep it together and be very brave as it has been a challenging year when you hav to face reality and not wanting or understanding why this is all happening especially with a fitness background and not smoking or drinking alcohol however cancer doesnt discriminate.  I find it difficult as you dont know what the future holds and the fact that you cant work makes it financially harder and then you cant even enjoy or look forward to a holiday.  I think its the independance that you lose and the constant association with the hospital which makes it diffiucult.  I somtimes wish i could get a one way ticket to the bahamas and not hav to face anymore pain, drugs, test, surgery just be totally free from everything. One good thing that has come out of my cancer is i did get to go to the bahamas after my first diagnosis and hav been there 3 times at an ashram on paradise island this has helped me even today get through as my thougths and memories were healing.

  • Thanks dette for sharing your journey with me we practically hav had the same thing only a few months apart.  You were very lucky that they did all the surgery my breast came out really well it just looks bald so in a tshirt you only hav one head light flashing im not too fussed over that but its  better just to get eveything over so you can move forward at least my breast can totally heal i suppose before they do the nipple i just hope it doesnt look like a peice of skin hanging off.  I always think of the worse but am grateful to at least hav a breast.  Hope you will be okay with chemo the raditaion is fine i didnt get any side effects so thanks once again and hoping it all goes well for you ill be here if you need me for anything cheers elisa xx

  • Thankyou Kathy i really felt you knew what i had been through and i enjoyed reading your reply.  It does put a hault on your life and you really hav to re evaluate what you want to do and how you really want to live your life happily.  I find that im an easy going person and i dont like to waste any energy on frivolus things or bickering for unecessary arguments and at times i wish i was on my own just to hav peace and quiet and to really be able to do as i please its not easy living with someone who doesnt understand you or appreciate simple things that you appreciate and i realised this after having cancer and also when i was in the bahamas i was on my own didnt hav to think or do anything for anyone but myself and it felt so good i didnt miss anyone apart from my children.  So sometimes it leads you to open other doors but financially i cant at the moment and am waiting till i get well enough to continue working then saving in case i need to make my dreams a reality.  So many people say to live now dont wait too long for the future so im hoping i will hav that opportunity whatever the universe throws at me i will deal with it.  ive been longing to hav some animals around me to love and nuture so hoping this will be the next step i take as i hav to please myself now not others.  i find after having cancer and being through what i hav it makes you stronger im so grateful to be able to open up and chat and i thankyou for your time and hope things are going well for you also kathy.  i teach water exercise classes they are great for mobility and well being.  i just started to get back in to taking aqua classes and i  feel so good to be part of society now and not the hospital.  I will start tamoxifin soon and hope it doesnt make me put weight on as i hav hypothroidism as well which slows down your metablism so hav 2 things to worry about.  thanks once again i appreciated and valued your thoughts and hope we all hav a better outcome love and light to you xx

  • hi elisaw, you have been through so much this year.  grief is a common reaction to what we have to go through; the loss and adjustment. life may not be  the " same" again.  you are a fitness instructor and i am guessing having a fit and working/ strong body was / is something you appreciate. maybe you feel your body has let you down? as you say breast cancer does not discriminate.

    you seem to have your sense of humour which can help a lot. positive thoughts on getting better/ healing and taking time to be still and reflect on things helped me also, plus eating well, and learning to " accept" what life throws at you and adjusting to it. ( not always easy )

    it is a shock at diagnosis, also body image, capacity to work, discomfort from surgery and treatments, tiredness and on going hospital appointments and tests.

    perhaps talk to someone/ breast care nurse? we all have  breaking point, and even though we might be strong, it is ok to ask for " help". we do not have to be " strong" all the time. it is a very challenging time,and keeping it together is not easy.

    good luck with reconstruction of nipple and tattoo.

     take it easy. after all you have been through it takes some time to recover, emotionally and physically.  financial problems also would be challenging.

     i think you work out your priorities with this illness.

    hope you get back to the bahamas again soon.

    kathy.

     

  • hi just wanting to know if there is anyone who has had a nipple reconstruction as i hav had the masectomy in feb 2011 and finished chemo now waiting on further surgery.  At the moment being in winter i only hav one head light flashing so am eager to get this nipple done before summer as im sure it will be noticeable in bikinis but with no hair yet wont be wanting to head down to the beach with a wig on either.  Everything is a procedure and takes time i suppose we just want to look and feel normal it just makes us feel that little bit better.  am looking forward to my first tattoo also but hav to wait several months till nipple reconstruction is healed.  if anyone has experienced either would love to hear from you cheers elisa

  • hi just wanting to know if there is anyone who has had a nipple reconstruction as i hav had the masectomy in feb 2011 and finished chemo now waiting on further surgery.  At the moment being in winter i only hav one head light flashing so am eager to get this nipple done before summer as im sure it will be noticeable in bikinis but with no hair yet wont be wanting to head down to the beach with a wig on either.  Everything is a procedure and takes time i suppose we just want to look and feel normal it just makes us feel that little bit better.  am looking forward to my first tattoo also but hav to wait several months till nipple reconstruction is healed.  if anyone has experienced either would love to hear from you cheers elisa