TNBC & question re chemo

Question

Hi, I was recently diagnosed with tnbc on 7th march. I’ve since had a lumpectomy & a few lymph nodes removed for biopsy. My tnbc was 12 mm, the lymph nodes clear but I think the margin behind the tumour was only .6 of a mm.
At my post surgery appointment, it was suggested that I may not need chemo & the doctor thought that I may need further surgery to test more tissue or go straight to radiation. His decision isn’t final as the medical team will be discussing my case late next week.
I’m a little confused as I thought that chemo was pretty much mandatory for tnbc. Has anyone ever heard or had any experience of tnbc not being treated with chemo?

kitkatb · Answer

Yeah its a strange one isn't it @kmakm&nbsp; as mentioned my surgeon was quite happy to go with the 1 mm ,&nbsp; I think he was quite put out with the decision as he commented on it&nbsp; again to me he would have still been happy with the lesser amount.Its hard to fathom the measurements they talk about isn't it especially as you mentioned even one cell between is a difference.have an awesome day.everyone.&nbsp; &nbsp;Am heading to work to do my 4 hours this morning. feels really strange.&nbsp; &nbsp;xo

kitkatb · Answer

Hi @Scaredycat&nbsp; &nbsp;Welcome to the forum but so sorry you have to be here.&nbsp; I was TNBC and right from the beginning I was told chemo was a no brainer&nbsp; &nbsp; ( I'm sure someone will jump in presently with some advice )&nbsp; I know treatment is so individualised now and it might be a good question to ask your breast care nurse or surgeon. Ask as many questions you need to to get a full understanding of your situation.&nbsp; ( no question is too silly ) and definitely take some one with you as a support system as our brain or at least mine was on overload with so much information at the time.&nbsp; &nbsp; &nbsp;Also I thought the international guidelines for margins was 2 mm.&nbsp; My initial surgery had a margin of 1 mm on one side only and even though my surgeon was okay with this he got out voted at the team meeting and I had to go in for a re excision to go over the 2 mm.&nbsp; &nbsp;As it turned out they found high grade DCIS so I ended up with Mastectomy.&nbsp; But you might just want to clarify that as well.The waiting just sucks but try to keep yourself occupied. ( Yep I know easier said than done )&nbsp; &nbsp; Hope you are recovering well and getting pampered rotten.&nbsp; &nbsp;I wish you all the luck.&nbsp; Let us know how you go with the results.&nbsp; Big Hugs . xo

kmakm · Answer

Re margins, for what it's worth, my BS said a margin is a margin, be it as little as one cell. He said that 2mm was accepted as the standard but that in the USA they mostly work on a 1mm basis. I queried all of this because he kept saying "small but clear margin" about my re-excision. K xox

scaredycat · Answer

Thank you both for your information &amp; experience. I didn’t know that there was an international standard. The team meeting will be interesting this coming Friday.p but I won’t know the outcome until Thursday next week. The waiting is the hardest part.&nbsp;I’m going to see my GP today to have a chat about it as well as getting another script for thyroxine &amp; possibly a blood test as my hair has been moulting again lol &nbsp;....... I had a total thyroidectomy a few years ago.&nbsp;I’ve also found a painless lump in my upper arm on the opposite side of the tnbc. I’m hoping it’s just a lipoma &amp; nothing serious. I’ll show it to the hospital on Thursday week as well as my GP today. I’m actually weirdly calm about everything even though I do suffer from anxiety/depression.&nbsp;I hope everyone has a great day today.

kmakm · Answer

You too @kitkatb and @Scaredycat

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