Forum Discussion
Timeline on treatment
My treatment seems to be taking so long... I hear of people that were diagnosed well after me are almost finished radiotherapy.... I was diagnosed in August have had a 2nd lumpectomy to get the margins...still havent a date for radiotherapy ....will be seeing my surgeon again this week i guess for pathology on the tissue taken ....then hoping for the go ahead for radiotherapy although its getting so close to christmas i wonder if it will be postponed till after christmas due to public holidays.... is there anyone else that feels like their treatment is taking forever..... is this normal ☹
18 Replies
- I’m nearly to the end of my rads only 4 more to go and had a variety of appointment times the key is to start the conversation for preferences early! This week I have herceptin Friday morning so requested a late afternoon appointment for radiation which I’ve been given. The rest of them I asked for after 2 when I was notionally finishing work at 1pm generally they will try to accomodate you especially if they know you are working.
- I work 7am-3pm so will go after work. I have been told the early and morning appointments are popular, so hopefully I will be fine.
Work has been fantastic as I have already had to say I can’t work a few times at short notice or change my hours to fit around appointments. I am lucky they are being supportive. I also know that if I am not up to working I can just say I am not coming in that day. I am slowly accumulating sick leave again. - What hours do you work and how will you work around it....if i go back to work i would have to do all afternoon shifts....im not even sure what hours rad onc is open to.
- Unfortunately I have not a lot of choice. I do not have sufficient income protection 😞
- Im seeing my rad onc friday...so hopefully can go straight into it...prepared to have to wait tho...it will just mess up my income protection....il bw going back to work....are you planning on working through it?....
- @Chelley59, I had my surgery on the 5th of November and am now not having radiotherapy until the New Year for exactly that reason. Ideally my Radiation oncologist said I would start on the 17th of December, however that has been postponed and I will be starting 2nd January for 5 weeks.
I hope you get some clarification soon.
Take care,
Michelle xx - @Chelley59 unfortunately, treatment is often a long road. Regardless of what your treatment plan is, you are going to be in the BC zone for some time. It's not something that can be dealt with quickly and then you go back to "normal".
Everyone's plan is different, depending on their situation. Mine: Friday 30 will be my first anniversary of diagnosis. 20 days later first consultation with surgeon. 8 days later medical oncologist, when her advice triggered me to refuse surgeon's desire for me to have chemo first. Then followed a heap of scans etc. and Hormone Blockers (Letrozole) for about 5 weeks while I waited for surgery mid-Feb. Chemo started 3 wks later - I did 20 wks. A few weeks' break (during which I took Letrozole again) then 25 days of radiation. It was a long slog. Now on Letrozole again until whenever. Implant changeover surgery will be in March-ish.
We all have our own particular pattern of treatment and reactions. But usually there'll be someone on this forum who understands what you're experiencing at any time. Just share. Wishing you strength. - Thankyou @Zoffiel and @Wonk for your comments. I know in my life I am very shy and a wallflower. I like to give rather than recieve. My family will support me, but in the meantime I will gather my own strength the only way I know how and that is by keeping my cards close to me. It's one way of making sure others opinions and emotions don't control me.
All will be well.
I trust the science.
Just not the waiting. @sjd_barra I think we handle breast cancer diagnosis and treatment the same way we handle any significant stress in our lives. Some people want to surround themselves with support, others--like myself--prefer to go to appointments and treatment on their own. Some of us are younger than others, but we are all grown ups and have developed out own ways of dealing with complications in our lives.
Yes, sometimes we do need help, but if you are inherently independent learning to accept that help with grace is yet another difficult lesson. You need to do it in your own time and I totally understand your keeping quiet until such time as you can answer the inevitable avalanche of questions and advice with something more considered than 'I don't know yet.' Mxx
- Hi @sjd_barra welcome to the site, you’ve come to the best place for support, not that any of us ever thought we’d find ourselves here.
I understand where you are coming from with not wanting to worry others. I wanted to hear the diagnosis myself, on my own. I had an inkling it was going to be bad because the doctor kept saying she was very concerned during the biopsy. I knew I had to hear it myself first and then choose when I was going to share it. Because once you share it with a loved one, you’ve then changed their life too. Everyone loves you and cares and you will work out when to let them know. I waited to tell my children 2 days before surgery, because they were in the middle of exams. The doctor told me to use the words ‘treatable’ breast cancer, which I found helpful. As you become more knowledge about your surgery and treatment plan you will find it easier to share, because you will feel slightly in control again over this horrible diagnosis. Remember everyone is here for you, and the beautiful ladies here got me through those early days.
Sending you hugs xxx
