Hi everyone, just wanted to say thank you all. This community is amazing and I'm so grateful to have stumbled across this site. I'm newly diagnosed (4th June 2021) with invasive lobular carcinoma. Several lumps in my right breast and I'll need a mastectomy. Like everyone else at this stage I'm overwhelmed, terrified, in denial, then accepting, then distraught, then calm, then totally panicked. It does feel like my lovely middle-aged life has been suddenly and shockingly smacked onto pause and I simply have to deal with this. I have no choice even as my mind shouts 'no no no not me! Not fair! I don't want to do this!' But while reeling for the past few weeks and thrust into this horrible new world of undergoing biopsies and MRIs and surgeon appointments, I've been so grateful for the support of this website. Reading the articles and especially your stories and posts has been so very reassuring and given me tons of information. Plus speaking with the amazing bcna support ladies Anna and Giovanna, has been a godsend. Anyway I just wanted to say thank you, this has all helped so much in these turbulent early stages.

Hi @annajjj , isn't this group amazing. I couldn't have got through my treatment without people here. I was diagnosed on 30th April 2020. I finished all my treatment a few months ago now, surgery chemo and radium but I feel good now. It is so overwhelming but it really is one day at a time and there is light at the end of the tunnel. Best wishes to you 🌺

Hi @annajjj,Sorry to see you here but totally agree. I was like you nearly 1 year ago. I was diagnosed with ilc and had a mastectomy shortly thereafter. Just want to give you a light at the end of the tunnel. Im 3 months out of active treatment. I feel well and im getting told im looking well. Im back at work part time.Sending you a hug x

Hi @annajjj - I'm so glad you found the forum - it has been the best support for so many of us! And well done on ringing the help line too - everyone is just so lovely!The waiting really sucks .... I hope you get your surgery date soon. I was really spooked, leading up to the surgery - and was amazed at how good I felt immediately after it was over! Like a boulder has been lifted off you! I was diagnosed with ILC back in early 2018 - we have an ILC group you can join if you'd like .... some interesting stuff is put on there, specific to ILC. All the best for your surgery .... I hope you have lots of support at home too xx. Take care

Oh, And I changed Oncs mid stream, too - so it happens ... (I was very lucky that my surgeon and RadOnc were both lovely.) My original Onc was totally disinterested in me both as a person and a patient - almost as if I wasn’t ‘ill enough’ for his valuable attention.... I have a lovely female Onc now, who is also treating my husband’s cancer too - so I am very happy that I made the change! Take care xx

Hello @annajjj 🙂. I felt the same as you when I was diagnosed just over a year ago, and stalked this forum for months. It wasn’t necessary to post cos all the info I needed was already there, in all the comments. I spent months reading and getting informed. I also felt indirectly supported in what was the worst time of my life. It helped me so much. I’m glad you found it too. Good luck in your bc ride. There’s always someone here for a chat. And it gets better as hard as it seems, and you get stronger ♥️.

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FLClover
Member
4 years ago
Hello @annajjj 🙂. I felt the same as you when I was diagnosed just over a year ago, and stalked this forum for months. It wasn’t necessary to post cos all the info I needed was already there, in all the comments. I spent months reading and getting informed. I also felt indirectly supported in what was the worst time of my life. It helped me so much. I’m glad you found it too. Good luck in your bc ride. There’s always someone here for a chat. And it gets better as hard as it seems, and you get stronger ♥️.
arpie
Member
4 years ago
Hi @annajjj - I'm so glad you found the forum - it has been the best support for so many of us! And well done on ringing the help line too - everyone is just so lovely!

The waiting really sucks .... I hope you get your surgery date soon. I was really spooked, leading up to the surgery - and was amazed at how good I felt immediately after it was over! Like a boulder has been lifted off you!

I was diagnosed with ILC back in early 2018 - we have an ILC group you can join if you'd like .... some interesting stuff is put on there, specific to ILC.

All the best for your surgery .... I hope you have lots of support at home too xx. Take care
MicheleR
Member
4 years ago
Hi @annajjj,

Sorry to see you here but totally agree. I was like you nearly 1 year ago. I was diagnosed with ilc and had a mastectomy shortly thereafter.

Just want to give you a light at the end of the tunnel. Im 3 months out of active treatment. I feel well and im getting told im looking well. Im back at work part time.

Sending you a hug x

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