Forum Discussion
Rona
2 years agoMember
Struggling through Chemo
Hi all,
My nurse has just introduced me to this group.
I’m hoping to connect and share my story and hopefully somehow feel better.
After being diagnosed and a short time later having a mastectomy and all lymph nodes removed, chemo started just before Christmas and I am struggling with it!
Ive got another 2 months of chemo before 5 weeks of Radiation…… would love to hear other stories.
I have a fantastic support group of family, friends and colleagues but they just can’t possibly understand what I’m going through.
My nurse has just introduced me to this group.
I’m hoping to connect and share my story and hopefully somehow feel better.
After being diagnosed and a short time later having a mastectomy and all lymph nodes removed, chemo started just before Christmas and I am struggling with it!
Ive got another 2 months of chemo before 5 weeks of Radiation…… would love to hear other stories.
I have a fantastic support group of family, friends and colleagues but they just can’t possibly understand what I’m going through.
Looking forward to connecting 😊
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344 Replies
- Katie46MemberWelcome @Coastiejas 🙂Sign in to react to this post
- Katie46MemberHi all, I had my first paclitaxel this morning. They gave me steroids and antihistamines before and I had to wait 1 hour before they could give me the infusion. They have sent me home with the medication to take in the morning before I head in for the treatment, which will speed up the process. The infusion took 1 hour. You can get a reaction from this one when it's administered, and they'll watch you very closely, which is why you get the antihistamines. They can adjust things to deal with that if it happens. I was fine, and at the moment feeling ok, no nausea so far.🤞I feel less weird than after the AC, Hopefully it lasts!Sign in to react to this post
- CoastiejasMemberHi All
Also my first time posting....thanks for your comments, they make me feel more "normal ". I've had 4 AC chemo rounds and start the weekly taxanes this week. I am hoping it will be easier....can't be any worse right??😉Sign in to react to this post - GorgySMemberI've had two sessions of AC, and I felt much better after the second than the first. With the PICC catheter, I've been doing fine so far. My oncologist is pleased with how I'm coping but mentioned that this is just the beginning and to expect more severe side effects. Honestly, I was hoping for the opposite. It is true, it was his comment when I told him that I plan to work from home when I finish AC. He just told me to take care because of my age ( 64 years old) and when I feel unwell to have break from work. I'm not sure how I'll be with paclitaxel, which I'll start at the beginning of April. The side effects I'm dealing now are cravings and tiredness, which I manage by indulging myself with the foods I love, and when I'm tired, I rest. I still cook and do some light household chores. What I don't enjoy is going out. I also have an elliptical and spend time in my backyard. This is what suits me. My 'outings' are limited to visits to the oncologist, blood tests, PICC catheter management, and chemo sessions. All the best Rona and Katie46 with you Paclitaxel and I hope it will be easier than AC.Sign in to react to this post
- RonaMemberHey Katie, just wanted to wish you well for tomorrow. Hopefully you will be as well as me, I truly feel “ok” on the Paclitaxel.
I have my second infusion on Tuesday. I have struggled a bit with fatigue but I have become anemic, part and parcel of it I guess.
Still no nausea and food is tasting a bit better.
I look forward to hearing how you go.
Take care, all the best and don’t worry 😊Sign in to react to this post - Katie46MemberThat's great Rona, your property sounds lovely, the chooks must be happy to see you. We live in an apartment with one live plant, which I am determined to keep alive 😆Sign in to react to this post
- RonaMemberKatie, you will be just fine. I’m having double dose Paclitaxel and easily managing. Word on the street it this drug is so much easier 😂, it’s true.
I couldn’t walk to let my chooks out each morning let alone use a treadmill on AC. I used to be a very active person, never stopped, grow all my own fruit and veg, manage my 6 acre property and I was dissolved into nothing on AC. I can see my life coming back and I’m excited! I can hang out with the chooks again and cook meals……. I’m just so happy.
You will be able to sell that treadmill soon, buy yourself something nice with the money and get back to walking. 😊Sign in to react to this post - Katie46MemberHi Rona, good to hear you are doing better on paclitaxel 🙂. I start on Monday next week, once a week for 12 weeks, so I'm hoping I'll be ok, at least less fatigue, and hopefully no nausea. I had an easier time on AC than you did, so I'm just worried I won't be as lucky on paclitaxel, fear of the unknown I suppose. I hope the heatwave breaks soon. I'm used to the heat in Darwin, but have been much more reliant on the aircon since I started treatment, and really haven't been able to get out walking as much as I'd like. I bought a walking pad/treadmill and watch TV while I walk. I'm looking forward to the cool mornings in the dry season.Sign in to react to this post
- RonaMemberGood morning Katie, I’m still going great! Had a crash from my “high” day 4 and 5, fatigue hit me and my body ached from head to toe. I’ve only experienced mild shooting pains from the lipegfilgrastim before and I suspect it was that that caused the pain. I had to take ibuprofen for a couple of days but still NO nausea and no where near as bad as the AC. I’m day 8 today and feeling really good.
My hands feel a little weird but nothing like what I was expecting. My heels hurt a little and I have a few blisters on my toes but again…… this is a walk in the park and I truly don’t want you to worry.
Is your first Paclitaxel infusion next week? Are you having it weekly? If you’re having it weekly then you will be even better than me.
This heatwave 😩, it’s hot, what can I say? 😂.
I live rural and we often lose power here for no reason. Thankfully we haven’t the past few days!
It’s cool here this morning so I’m guessing we are in for an early sea breeze 😊.Sign in to react to this post - Katie46MemberHi @Rona, how are you going with paclitaxel? My 4th AC is pretty much running the same course as the last 3. Hope you're coping with the heat down there.Sign in to react to this post