Stage 3 Invasive Lobular Cancer diagnosis

Hi @KezzaG, I had 2 lobular tumours, neither of which were detectable as lumps but my nipple became inverted so that was my first clue something was wrong. Like you I had a lumpectomy but due to unclear margins needed a mastectomy. That's where I learnt the extent of the tumours - spread out over 9cm of breast. The spiderweb analogy is a good one and my breast surgeon said that lobular tumours were tricky to detect so that the mammogram and ultrasounds before my surgery didn't show anything like the extent of it - it was thought that maybe it was spread 2-3cm. The surgery also showed another "surprise" - a very small but aggressive HER2+ ductal tumour. That was 6 years ago now and so far all is going well. Best wishes to you xx