Stage 3 Invasive Lobular Cancer diagnosis
Hi everyone, this is my first time on here and I've been reading everyone's stories and comments. What an amazing bunch of people that are here. Having read so many stories has encouraged me to post...
Forum Discussion
Oh Kezza, I'm so sorry that you've had to join us here. What a shocker of a time you've had of it with this bugger of a disease. Welcome, and I hope you find the forum as helpful and supportive as I have.
There are quite a few lobular people here, @Sister, and @Eastmum come to mind. I was ductal, and found my tumour due to a regular mammogram. It was so deep in my large breast that I would have been in much more serious trouble by the time it made itself known.
However, 17 months earlier my sister had died from breast cancer (I'm now raising her kids along with my own), and my mother had had it and survived, at my age. There's something going on in my family (not BRCA1 or 2, I'm currently waiting on test results for the CHEK2 gene mutation) so after a lumpectomy, a re-excision for margins (which discovered a previously unseen 4cm of DCIS), chemotherapy, and a lot of thought and discussion, I had a double mastectomy (which found more unseen DCIS) and DIEP reconstruction.
It was one of the hardest decisions I've ever made as well. It was helped that I had a good amount of time to make it, and it has not been easy, but I have no regrets. I know it was the right thing for me.
Humans are remarkably adaptable. We get used to stuff! BC is definitely something that challenges us and I'm still having trouble adjusting. But I trust I'll get there one day. It's great that you have a wonderful support group. If you feel you're getting 'stuck' with your emotions, get some counselling. It helped me a lot in the early days when I was devastated and furious.
Deep breaths, and hang in there Kezza. Big hug, K xox
There are quite a few lobular people here, @Sister, and @Eastmum come to mind. I was ductal, and found my tumour due to a regular mammogram. It was so deep in my large breast that I would have been in much more serious trouble by the time it made itself known.
However, 17 months earlier my sister had died from breast cancer (I'm now raising her kids along with my own), and my mother had had it and survived, at my age. There's something going on in my family (not BRCA1 or 2, I'm currently waiting on test results for the CHEK2 gene mutation) so after a lumpectomy, a re-excision for margins (which discovered a previously unseen 4cm of DCIS), chemotherapy, and a lot of thought and discussion, I had a double mastectomy (which found more unseen DCIS) and DIEP reconstruction.
It was one of the hardest decisions I've ever made as well. It was helped that I had a good amount of time to make it, and it has not been easy, but I have no regrets. I know it was the right thing for me.
Humans are remarkably adaptable. We get used to stuff! BC is definitely something that challenges us and I'm still having trouble adjusting. But I trust I'll get there one day. It's great that you have a wonderful support group. If you feel you're getting 'stuck' with your emotions, get some counselling. It helped me a lot in the early days when I was devastated and furious.
Deep breaths, and hang in there Kezza. Big hug, K xox