Stage 3 Invasive Lobular Cancer diagnosis

Hi @KezzaG  There are a few of us on here that have had ILC.  It's a particularly sneaky type of BC and often not detected until it has advanced.  You can read my story by clicking on my profile but it's a similar story to yours re: lumpectomy then mastectomy, etc.  I was fortunate in that I went for a screening mammogram and amazingly, a tiny, slightly abnormal feature was picked up. I had all of the diagnostic tests before the first surgery and the cancer showed as 2.5cm with no nodes involved.  Path report after first surgery came back with 4.5cm tumour with no clear margins and node involvement.  My initial diagnosis came on 5 December last year so my 12 month scan is coming up.  My surgeon didn't think I needed the other breast removed but that option is still there and I guess, things may or may not become clearer when I have the scan.  I have now finished active treatment - 6 months of AC-T chemo and 3 weeks of radiation - and I'm on Letrozole for 5-10 years.

It does come as a complete shock but you've come to the right place for personal experiences and understanding.