Feeling lost
I am newly diagnosed and just feel lost. My appointments and tests have been so close to each other. I have had mammogram, ultrasound, biopsy of the breast, FNA of my lymph node, a pet scan and havin...
Forum Discussion
I’m sorry for your diagnosisND87
I had HER2+, ER+ PR+ too - in January 2023; the waiting before you get started treatment is very hard - some great suggestions fromBoobVoyage
I had Neo adjuvant treatment and it shrank my tumour from about 3.8cm to less than 1 cm - in some cases it can actually disappear. After my lumpectomy I also had radiation therapy and then 11 cycles (doses) over a period of a period of another 6-7 months. It’s now over 2 years since I finished the treatment and was started on Letrozole (an oestrogen suppressing medication (called an Aromatase Inhibitor) after the radiation.
The treatment has been very effective so far - I have a check up every six months- no sign of recurrence so far.
It is really different for everyone but I found the following things were helpful: having a portacath in my arm for the IV treatment; Betadene for mouth ulcers and a very soft toothbrush; signing up to an oncology exercise rehabilitation program; having a very soft cotton beanie to sleep in (I lost my hair) to keep my head snug, and having soups and bone broths. LikeBoobVoyage my tastebuds and appetite were a bit knocked around, it’s important to try and stay hydrated, somehow I found having a soda stream made it easier to keep up my fluids.
We have a Triple Positive group thread here and it might be helpful for you if you join it? It’s not as common a breast cancer type as hormone positive only, maybe the nurse you have been assigned has not encountered it before.
Sending you lots of virtual hugs and best wishes. Sing out with any questions- it’s great that you have found the online forum- there’s a lot of care and wisdom in this group.