Forum Discussion
Cab
8 years agoMember
Positive for both hormones and her2
Hi
I am 36 years old and have just been told the results from my surgery. Positive for both hormones and her2. Has anyone been through this. I am also being tested for the gene. Starting chemo amd herceptin and then radiation and further hormone drugs. 10cm dcis with 1cm invasive and spread to sentinel node. Just looking for someone to talk to about this. I am freaking out with the staging and percentage of life expectancy. My kids are just 4 and 8. I am not coping with this at all
I am 36 years old and have just been told the results from my surgery. Positive for both hormones and her2. Has anyone been through this. I am also being tested for the gene. Starting chemo amd herceptin and then radiation and further hormone drugs. 10cm dcis with 1cm invasive and spread to sentinel node. Just looking for someone to talk to about this. I am freaking out with the staging and percentage of life expectancy. My kids are just 4 and 8. I am not coping with this at all
13 Replies
- CabMemberOmg thank you @primek. That has helped so much.
- primekMemberHi there. When you read about Her2 it is frightening. ...but wow ... we now have Herceptin. Your type of bc responds really well to chemo and herceptin.
I had similar diagnosis to you and had ACT-H chemo regime. I'm now almost 2 years out from chemo.
My niece also had similar diagnosis. She had 10 positive nodes from 20 removed.
14 years on she continues with no evidence of disease. She described her treatment as liquid gold.
So take heart...many many survivors out there due to science and research.
Kath x - SisterMemberDouble have for that!
- CabMemberSo in for genetic testing. So much fun. Needles are going to be my best friend. Lol
- kmakmMemberShe is a warrior! As are you. K xox
- CabMemberThank you so much @SoldierCrab. I really appreciate it. Wow triple neg and canver free. Good on you you are a soldier indeed. Xx
- SoldierCrabMemberI hope you have been able to touch base with either a Breast Care Nurse link is above it needed and or BCNA helpline they will be able to give you specific information relating to your diagnosis.
I am Triple Negative and I am cancer free and nearly 6 yrs from diagnosis ...
Just ask any questions on here or have a cry, vent etc we get it .... and nothing is a stupid question on here.
hugs Soldier crab - SoldierCrabMemberhi Cab,
So sorry you have had to join us here on BCNA but this is a great supportive bunch and they will share their experiences and help you navigate the Roller Coaster ride called BCBelow are a couple of links to help you find your way around the forum and also how to find a breast care nurse and how to order a MY journey Kit if you haven't got one yet.
It can be a whirlwind when we first get a diagnosed.... Breathe and take it one step at a time.
Navigating the online community formerly the what and how thread.
Breast Care Nurses
https://www.mcgrathfoundation.com.au/OurMission/OurNurses/FindANurse.aspx
My Journey Kits and other resources.
https://www.bcna.org.au/resources/
BCNA Helpline 1800 500 258
If you have any questions, concerns or require any further information or support please call 1800 500 258. BCNA’s helpline will now be open from 9am-6pm Monday to Thursday and 9am to 5pm Fridays.
How to understand your pathology reports
https://www.cancer.org/treatment/understanding-your-diagnosis/tests/understanding-your-pathology-report/breast-pathology/breast-cancer-pathology.html
Soldiercrab - Riki_BCNAMemberHello @Cab it can be an overwhelming and very frightening time when provided with a lot of information and decisions to make. Please don't hesitate to contact BCNA and speak to a cancer nurse on 1800 500 258 for support.
- CabMemberThank you sister. I appreciate your words and wisdom. Xx