Hi my name is Nat I am 42 years old and this is my first post....I have been reading others posts and collecting my thoughts for a few days before I decided to start my blog...so here goes! I am newly diagnosed 12/02/15 and have an Invasive Ductal Carcinonma Grade 3 and am Triple Negative. Wow cant believe I got that out!
\nI'm feeling very overwhelmed at the moment with a million thoughts going through my head and questions to ask, not to mention wanting to talk anyone who can give me advice or is going through what I am.
\nI have a booking for a Staging CT and Bone Scan on Monday and then see the Onologist to start Chemo before surgery (around 6 months chemo so I have been told) and then am having a double mastectomy with node clearance.
\nThere it is my first post....phew I feel better that is out and done!
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Hi my name is Nat I am 42 years old and this is my first post....I have been reading others posts and collecting my thoughts for a few days before I decided to start my blog...so here goes! I am newly diagnosed 12/02/15 and have an Invasive Ductal Carcinonma Grade 3 and am Triple Negative. Wow cant believe I got that out!
\nI'm feeling very overwhelmed at the moment with a million thoughts going through my head and questions to ask, not to mention wanting to talk anyone who can give me advice or is going through what I am.
\nI have a booking for a Staging CT and Bone Scan on Monday and then see the Onologist to start Chemo before surgery (around 6 months chemo so I have been told) and then am having a double mastectomy with node clearance.
\nThere it is my first post....phew I feel better that is out and done!
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Thank you Jessica...wow your words are so comforting at this time and already I am happy to say that I have made a great decision to start blogging! As for the drugs they are going to giving me I am unsure as I have CT and bone scans Monday and then the Onologist with the Chemo plan Wednesday and then it is all systmes go! So will keep the blog up to date with all that so I can connect with others and talk it out if I feel the need.
\nOne day at a time is defintley my motto at the moment and I will try to be ready for anything that comes my way...so I will expect the curve balls and use this amazing tool to help me get through this new journey I am about to embark on.
\nThank you for your kind words and advice,
\nNatty xxx
","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":0,"repliesCount":0,"postTime":"2015-02-20T17:40:14.000-08:00","lastPublishTime":"2015-02-20T17:40:14.000-08:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:general-newly-diagnosed/message:16407/message:16410","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"772","rawBody":"Thank you Jessica...wow your words are so comforting at this time and already I am happy to say that I have made a great decision to start blogging! As for the drugs they are going to giving me I am unsure as I have CT and bone scans Monday and then the Onologist with the Chemo plan Wednesday and then it is all systmes go! So will keep the blog up to date with all that so I can connect with others and talk it out if I feel the need.
\nOne day at a time is defintley my motto at the moment and I will try to be ready for anything that comes my way...so I will expect the curve balls and use this amazing tool to help me get through this new journey I am about to embark on.
\nThank you for your kind words and advice,
\nNatty xxx
","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:16410_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"ModerationData:moderation_data:16409":{"__typename":"ModerationData","id":"moderation_data:16409","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:16409":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:16435"},"id":"message:16409","revisionNum":1,"uid":16409,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"parent":{"__ref":"ForumTopicMessage:message:16407"},"conversation":{"__ref":"Conversation:conversation:16407"},"subject":"Re: Overwhelmed!","moderationData":{"__ref":"ModerationData:moderation_data:16409"},"body":"Thankyou Anne, just having you reply and saying you have the same is so comforting! I will be in touch and update how I go...any advice for the treatment journey I am about to embark on is most welcomed.
\nI will try and take it one day at a time for sure!
\nThank you again,
\nNatty xxx
","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":0,"repliesCount":0,"postTime":"2015-02-20T17:25:44.000-08:00","lastPublishTime":"2015-02-20T17:25:44.000-08:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:general-newly-diagnosed/message:16407/message:16409","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"315","rawBody":"Thankyou Anne, just having you reply and saying you have the same is so comforting! I will be in touch and update how I go...any advice for the treatment journey I am about to embark on is most welcomed.
\nI will try and take it one day at a time for sure!
\nThank you again,
\nNatty xxx
","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:16409_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:13211":{"__typename":"User","id":"user:13211","uid":13211,"login":"JessicaV","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2014-01-12T00:00:56.000-08:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/m_assets/avatars/default/avatar-4.svg?time=0"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:13211"},"ModerationData:moderation_data:16408":{"__typename":"ModerationData","id":"moderation_data:16408","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:16408":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:13211"},"id":"message:16408","revisionNum":1,"uid":16408,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"parent":{"__ref":"ForumTopicMessage:message:16407"},"conversation":{"__ref":"Conversation:conversation:16407"},"subject":"Re: Overwhelmed!","moderationData":{"__ref":"ModerationData:moderation_data:16408"},"body":"Hi, it is natural for it to feel quite overwhelmed at the beginning: it feels like life and death and it is all such a shockingly different place to be.
\nThe chemo you are going to have is called neo-adjuvant chemo, and I have heard people who have had it saying how great it is being able to see the effect the chemo has on the tumor, watching it shrink and sometimes even vanish completely, which of course you can't do if they take out the tumor first and then do chemo. What drugs are they using for you?
\nThe fear and overwhelm are natural, but learning how to settle yourself despite these things becomes an important job. Along with trying to understand all about breast cancer and all about what is going to happen next. Early on, I had an old hand kindly point out to me that it is important to understand that whenever you think you know what the plan is and what to expect next, it is very probably going to change. The car will break down, your doctor will go on holiday and you see the breast nurse for some process instead of the doctor, or the pathology result from your surgery will show some new factor and suddenly they will add something to your treatment, or change it completely. So expect the unexpected, expect change, expect to be surprised, and maybe even keep a score of how often it happens each week.
\nYou are now part of a wonderful group of women who are travelling with you or in front of you, who will be reading your blogs and care about how you are coping, and want to hear from you and support you. So if you wake in the night freaking out, go online and write to us about it, Someone will probably be there within a day or so, maybe even in the middle of the night, and your blog will brighten their sleepless night or tough day, and they will send back to you to brighten yours
\nAll the best, keep in touch
\nJessica
","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2015-02-20T16:42:04.000-08:00","lastPublishTime":"2015-02-20T16:42:04.000-08:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"category:newly-diagnosed/community:nkyiu94732board:general-newly-diagnosed/message:16407/message:16408","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"1907","rawBody":"Hi, it is natural for it to feel quite overwhelmed at the beginning: it feels like life and death and it is all such a shockingly different place to be.
\nThe chemo you are going to have is called neo-adjuvant chemo, and I have heard people who have had it saying how great it is being able to see the effect the chemo has on the tumor, watching it shrink and sometimes even vanish completely, which of course you can't do if they take out the tumor first and then do chemo. What drugs are they using for you?
\nThe fear and overwhelm are natural, but learning how to settle yourself despite these things becomes an important job. Along with trying to understand all about breast cancer and all about what is going to happen next. Early on, I had an old hand kindly point out to me that it is important to understand that whenever you think you know what the plan is and what to expect next, it is very probably going to change. The car will break down, your doctor will go on holiday and you see the breast nurse for some process instead of the doctor, or the pathology result from your surgery will show some new factor and suddenly they will add something to your treatment, or change it completely. So expect the unexpected, expect change, expect to be surprised, and maybe even keep a score of how often it happens each week.
\nYou are now part of a wonderful group of women who are travelling with you or in front of you, who will be reading your blogs and care about how you are coping, and want to hear from you and support you. So if you wake in the night freaking out, go online and write to us about it, Someone will probably be there within a day or so, maybe even in the middle of the night, and your blog will brighten their sleepless night or tough day, and they will send back to you to brighten yours
\nAll the best, keep in touch
\nJessica
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