Newly Diagnosed
Moderator moved discussion for member @manzganz from the activity section to the main forum: manzganz Hi all, I was diagnosed with blood clots in my lungs in January this year and my GP sent me f...
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SO sorry to see you join our 'exclusive' club, @manzganz ... the one NO-ONE queues to join! Ask away ANY questions or topics & we'll do our best to give you honest, helpful answers. xx
Golly Gosh - you've certainly been 'thru the mill' .... great that all your results have been good. Mine is lobular too (you can join the lobular private group if you like - we try & post stuff that is relevant to Lobular ...)
@Cath62 has given you wonderful advice & tips xx
Feel free to jump onto this post for lots of info on the forum - (even fun bits) along with the serious bits -
there's also some tick sheets down the bottom that you can download - & sort of 'self assess' yourself between appointments (which I would suggest that you record on your phone, as it is easy to miss bits at the time.) If you add your 'general area' to your profile - we may even have members nearby who you could catch up for with a coffee when you are up to it. Many of us have made firm friends on the forum & some meet up 'in real life' too .... You can share pics of your garden, your pets, your art & craft ..... or add to the 'funny file' as I reckon we all need a good laugh now & then. xx
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-our-new-members#latest
All the best with your Rads - if you notice any 'skin breakdown' or have areas of concern, always mention them to the Rads nurses (they usually check with you before they start the next session ....) And remember that the skin will continue to feel 'warm' for some weeks even after the treatment stops. You'll feel it 'warming up' in the first week or so, I reckon, too.
In the mean time, just keep doing what you love doing - or even give something new a go ... like you, I was 'fit & healthy' before this darned lump turned up ..... 5 years later, I am still enjoying myself, but slowing up a tad now, as I near 70 ... next month! It doesn't stop me getting out in my kayak, fishing tho! ;)
take care xx
Golly Gosh - you've certainly been 'thru the mill' .... great that all your results have been good. Mine is lobular too (you can join the lobular private group if you like - we try & post stuff that is relevant to Lobular ...)
@Cath62 has given you wonderful advice & tips xx
Feel free to jump onto this post for lots of info on the forum - (even fun bits) along with the serious bits -
there's also some tick sheets down the bottom that you can download - & sort of 'self assess' yourself between appointments (which I would suggest that you record on your phone, as it is easy to miss bits at the time.) If you add your 'general area' to your profile - we may even have members nearby who you could catch up for with a coffee when you are up to it. Many of us have made firm friends on the forum & some meet up 'in real life' too .... You can share pics of your garden, your pets, your art & craft ..... or add to the 'funny file' as I reckon we all need a good laugh now & then. xx
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-our-new-members#latest
All the best with your Rads - if you notice any 'skin breakdown' or have areas of concern, always mention them to the Rads nurses (they usually check with you before they start the next session ....) And remember that the skin will continue to feel 'warm' for some weeks even after the treatment stops. You'll feel it 'warming up' in the first week or so, I reckon, too.
In the mean time, just keep doing what you love doing - or even give something new a go ... like you, I was 'fit & healthy' before this darned lump turned up ..... 5 years later, I am still enjoying myself, but slowing up a tad now, as I near 70 ... next month! It doesn't stop me getting out in my kayak, fishing tho! ;)
take care xx