Forum Discussion
jomaree
7 years agoMember
new diagnosis
New to this so not sure if i'm in the right place. Diagnosed in October, have had 2 surgeries. Lumpectomy and sentinel node biopsy and 2 weeks ago axiliary dissection. Have seen the medical oncologist and know I will have hormone therapy as oestrogen + also radiation therapy still waiting for appointment. Oncologist says my choice to have Chemo but not recommended as only 1% advantage for survival. My head says listen and follow medical advise but my gut is saying go for it, need to give an answer by next week. So confused.
43 Replies
- jomareeMemberthat is me don't want the what ifs and maybes
- primekMemberI expect your stress is less now you have made the decision to go ahead with chemo. My personal thoughts were I didn't want to look back in 2 years and regret not giving it my best shot.
- kmakmMemberBloody good on you @jomaree.
I had TC, feel free to ask any questions if/when you have them. K xox - jomareeMemberThanks so much for your support. Not sure when I start but already know it is adjuvant TC (docetaxel and cyclophosphamide0 every 21 days for four cycles. Have always gone for what everyone else suggested in situations in my life and have learnt the hard way that I should have listened to myself. This is my illness and my choice I'm doing this for me because I know it feels right.
- arpieMemberYou have a plan .... you've made the tough decision ... go with it & all the best xxx
- kmakmMemberWell done on making a very difficult decision @jomaree. I'm a big believer in listening to one's inner voice, your gut. I remember ignoring it a few times in my early to mid 20s and vowing to never ignore it again. Women are schooled by the patriarchy to downplay our natural instincts, but they are powerful and we are more in touch with them than we often credit.
We are with you through chemo. You've got this! And we've got you. When you know which chemo you'll be having, let us know so those who've had the same can chime in with advice if needed.
Not everyone has a ghastly time on chemotherapy. For the bulk it's a middling affair. By no means pleasant, but doable. Keep your eyes on the prize, a cancer free life. Big hug, K xox - iserbrownMember
- SoldierCrabMemberJomaree
it is never an easy choice but going with your inner voice is so important to our mental health in the long term ...
we have your back girl - jomareeMemberWell it's D day for me, have thought long and hard the last week. Spoken to family and followed your comments. Spoke to my amazing 94yr old Mum. She had a choice in treatment for a heart condition whether to have surgery or not. She listened to her inner voice and is still with us ten yrs on by deciding against surgery. Mum said having a choice and control over your own illness is the best thing and to go with what feels right. I am going to have the chemo as I can't ignore my inner voice and need to be able to live knowing I have done everything I can.
- SoldierCrabMemberthanks @Zoffiel
for tagging me on the activity page Jomaree had already started this discussion before you tagged me ... So I am tagging you .....
@jomaree are you ok with working out the discussion boards? now ?Below are a couple of links to help you find your way around the forum and also how to find a breast care nurse and how to order a MY journey Kit if you haven't got one yet.
It can be a whirlwind when we first get a diagnosed.... Breathe and take it one step at a time.
How to post on the main forum – use this link to get to the main forum and begin a new post. https://onlinenetwork.bcna.org.au/post/discussion
Navigating the online community formerly the what and how thread.
Breast Care Nurses
https://www.mcgrathfoundation.com.au/OurMission/OurNurses/FindANurse.aspx
My Journey online tool and other resources.
My Journey Online Tool resources
https://myjourney.org.au/hp/step5https://www.bcna.org.au/resources/
BCNA Helpline 1800 500 258
If you have any questions, concerns or require any further information or support please call 1800 500 258. BCNA’s helpline will now be open from 9am-6pm Monday to Thursday and 9am to 5pm Fridays.
How to understand your pathology reports
https://www.cancer.org/treatment/understanding-your-diagnosis/tests/understanding-your-pathology-report/breast-pathology/breast-cancer-pathology.html
