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Cory51's avatar
Cory51
Member
7 years ago

Last 4 weeks of chemo then mastectomy-feeling low

I am not really newly diagnosed but still have quite a ways to go to finish treatment so thought I would post on this forum. I was diagnosed in June and had a lumpectomy and wide node clearance a week later. The surgery was OK but I developed serous fluid build up in the breast post op and had to have it drained many times, finally hospitalised because the oncologist thought it was infected. Went home with a drain, which came out a week later and then another week later I started chemo, 12 weeks of AC, which thankfully is over. I am in the final 4 weeks of Taxol, which I am tolerating much better with fewer side effects. I have a mastectomy scheduled for 15 Jan (have a 4 week or so break and then 28 days of radiation) and I have chosen not to have a reconstruction. This was a choice I made as soon as the surgeon said he hadn't been able to get clear margins so a mastectomy was what was recommended. I am 67 and a reconstruction is just not something I ever considered. This week I started researching breast forms, bras, etc and became very overwhelmed. I think when I thought about surgery I put my 'nurse hat' on and thought about it clinically, how I would recover, that sort of thing. Now that it is getting closer it feels different. While chemo, especially AC, was brutal it was all inside me, something happening I couldn't see even though I knew there were toxic drugs in my body. The removal of my breast is something outside for me to see and that has really hit me hard today. I know that for now I need to concentrate on the next 4 weeks and getting through chemo but as a nurse I also crave information and so wanted to start researching the next step and what that entailed. Well I found out fast, I am overwhelmed! I guess I am feeling very emotional today and needed to share how I was feeling with others who have been through what I am experiencing. Thank you to anyone who is listening...

15 Replies

  • Hi Jenny, I am post chemo, pre mastectomy. My surgery is booked in for this Tuesday, one side only plus lymph node clearance. I have been trying not to think about my surgery. I know it has to happen and I will deal with it after. My concern is that if I think too hard I will decide to drop the whole thing and hope for the best whilst doing the complete opposite. Occupy yourself as much as possible with other things. I will not be having a recon but have decided on a tattoo after six months but before a year while the area is still numb. My surgeon said no earlier than six months but the numb area will get smaller so the sooner I have it after six months, the less I will feel it. I hate needles but really want to do this so have been researching designs and amazingly, it has lifted my spirits.
  • Thank you both for your thoughts/support. Yes Kath I feel exactly as you described, teary and so tired. xx Jenny
  • I had a reconstruction also but my final surgery really hit home that my breasts were gone forever and what has been rebuilt will never replace them. 
    Towards the end of chemo you are exhausted both physically and mentally and I remember feeling very depressed on taxol about the same point as you. Teary and just so so tired. It all seemed too much. Know that it gets better about 7 weeks post chemo a little of the old you returns as with hope. I truly believe chemo impacts on our brain chemistry hense the depression. You are doing a physical and mental marathon presently. And what I say as a fellow nurse is to accept what we can't control. Accept you will need the help of a breast form specialist who will compassionately help you through this part. For now Jen...just be kind to you. Go out with friends and family, drink the good coffee  (the one thing for me which still tasted good) I used to go to a hydro pool and just walk with my sister. The end is close and it's just exhausting but you are here heading over the finish line. 
    Kath x
  • Hi Jenny. I had a recon so I can't help you specifically, but wanted to say I feel for you. This whole thing just sucks. We've got a few nurses here, and plenty of people who haven't had reconstructions. I'm sure they'll be along shortly to help. Hang in there. Hugs, K xox
  • By the way, my name is Jenny, not Cory... just my username and a nick name from my dad many years ago...