Forum Discussion
cactusk
2 years agoMember
Here we (I) go
Diagnosed ductal last week - lumpectomy tomorrow.
feeling sad but relieved & nervous & a bit scared. Likely radio or hormone therapy after - we’ll see.
reading these threads I know I’m not alone, even though I’m by myself right now.
onward , right?
feeling sad but relieved & nervous & a bit scared. Likely radio or hormone therapy after - we’ll see.
reading these threads I know I’m not alone, even though I’m by myself right now.
onward , right?
51 Replies
- Pommy8MemberI have to say when I sent my test off it was a relief it was 3 weeks of not thinking about or pretending I hadn't got it.
Good luck. - cactuskMemberUpdate: Met with my Medical oncologist and her resident yesterday - really lovely humans and felt so much better after my 90 minute consultation. We've decided to do the oncotype DX - fits my current results.
I was so dispirited to find that I'm in the 'grey area'. Red flags: 2 mets (1 micro and 1 macro) in the 2 nodes they removed, lymphovascular invasion and they can't do more surgery given where the tumour was.
Good things are very high ER+ percentage so we're confident that any hormone therapy will be well received. I know that radio is in my future - crossing everything that the the genome test will come back with the news I'm hoping for. I realise that I now need to wait again (!) but my anxiety is so much better given i realise where we'll go with either result. Gosh, rollercoaster is right. - Pommy8MemberNightmare keep strong sending hugs x
- cranky_grannyMember@cactusk. Have a perusal through the friday funnies on here i do when im a bit down. I go to the older posts also the is wise words which has some great sayings etc. it can help take your mind off the worry. I will sometimes end up searching the web for more of them. Or you tube for funning clips. Usually animals or kids doing the funny stuff kids do.I’ve gone back to my sewing and crocheting my brain needs to concentrate on laying out the pattern pieces and cutting them out. Check out creative corner there is some very clever people posting on there. You might get some inspiration from them.
- cactuskMemberThank you @cranky_granny
i think this is the first time - so far - that I’ve actually felt scared.
that’s what is getting to me right now.
day at a time , today is a tricky day.
x - cranky_grannyMember@cactusk Sometimes i wish they had gone back in and taken more lymph nodes. With cancer in 4 auxiliary nodes instead they went for double the amount of radiation to a a wider area. So much for that. Now metastatic but hey it could have already been floating around just looking for somewhere comfy to settle in and grow. There are no 100% guarantees in this roller coaster. What was done was done with the knowledge available at the time. Mind you I refused to see that particular rad oncology after he stuffed up by refusing to do targeted radiation on the bone met and his whole bedside manner left me cold and feeling like a piece of meat I only saw him 3 times in the whole of my treatment.
Well Im still alive getting what i can out of life and as long as treatment keeps working I’ll keep riding the roller coaster. Find somethings to laugh at. And look forward to retirement. - cactuskMemberMAJOR FRUSTRATION
met with Radiation oncologist today - who disagrees with the surgeon.
suggested another surgery MAY be better given 2 sentinel nodes showed cancer
still waiting to see medical oncologist later this week.
also fears my radio-therapy will be ‘interesting’ given previous thyroid cancer.
aArghhhh!I know the MDT need all the information but the indecision over next steps is getting to me.
we are now facing 2 treatment issues- breast and axilla/nodes.
talk about rollercoaster - Pommy8MemberDid you send your biopsy to America?
I'm 59 sent mine off money well spent but like anything no guarantee it came back would not benefit me xhemo.
But had radiation and now hormone tablet so far so good.
A few hiccups but those 2 things fine.
Good luck - cranky_grannyMember@cactusk enjoy Christmas and new year. I hope your treatment goes smoothly Chemo isn’t like it was years ago where one size fits all and things can be adjusted if needed.As for the unhelpful friends I just changed the subject as best i could if my bodyguard wasn’t around. The one that got me the most after initial treatment was finished was oh i thought you were over all that cancer stuff. Some people are just clueless. I found my cancer really has sorted out the real friends. They’re the ones that said how can I help not come out with a pile of dribble.
- arpieMemberTake care & all the best for your appointments @cactusk. xx