Forum Discussion
Sister
6 years agoMember
@tsjlhm Emotionally, you're probably going through one of the most difficult times after diagnosis. I remember careening from despair to numbness to extreme anxiety. For most of us, once we have plan and treatment starts, we start to settle down dealing with it. As others have said, avoid Dr Google as a lot of what is on there is out of date or just plain wrong. If you must look up stuff (and we all do it), stick with reputable sites. I would second the advice to let your kids' teachers and schools know what is going on but to respect their wishes as to whether they want it more widely known. Whether your kids are self-sufficient types or completely dependent, they can be the greatest practical support system. I was amazed at how my teen and pre-teens (at the time) responded with doing stuff that needed to be done, and it's proven important for the own independence. You may get people wanting to help. It's always good to have some practical requests because you can end up with a fridge full of food that no-one wants to eat. Having school-aged kids, the best help I got was having people who were happy to have them after school if treatment went overtime or take them to sports things if I couldn't do it. The rest we could muddle through but it was really important to me that that side of things was taken care of.