Forum Discussion
Bowie
9 years agoMember
Back Again ..so much fear
Well hi to everyone lm back again ..As my first post l had the lumpectomies one in each breast ..My results came as a shock ..l have to have a double mastectomy now ..as they couldn't get it all plus has gone into my lymph nodes ..Have to have bone and body scan on Monday ..l am devastated my world is spinning lm so scared l can't do anything ..l can not have reconstruction due to my R A ..l don't now how lm going to survive .
18 Replies
- melclarityMemberHey Bowie, Ive been following your post as to where you are at, it absolutely is difficult beyond belief and I find the worst part of it is FEAR itself. Once you have more information and know what your diagnosis is and treatment moving forward you will feel more settled believe it or not strangely as you will have some control. Traces in the lymph nodes absolutely does not mean it has traveled anywhere else. I had a recurrence at the 4yr mark in 2015 and it was only because of that they took nodes which were clear but I had to have full body scans to look for traces anywhere else, thankfully there were none. I know its so damn hard, but tackle one thing at a time try and stay in the present as you go. x Hugs Melinda
- brightspaceMemberHi Bowie gladyou caught up with family please keep incontact for chit chat....phone bcna contact for assistance
All in together Bright - BowieMemberHi to all ...l was told l could not have reconstructive because my R A would compromise it due to pending infections ...l have a good day today with my grandkids and kids ..lm up and down with positive and negative thoughts ..l won't know till wed the outcome ..l am trying to be as strong as l can but am exhausted through so much worry ..l hope you all have a great when'd and Thankyou again for your support..love and hugs xxxx
- AfraserMemberHi
Weekends are not good for this sort of thing, too much time to spend thinking. You will know much more after your scan, so try hard to not be alone, not to dwell on what you don't know as it won't help. A breast care nurse will be a great help.
My cancer had spread to one lymph node and had changed type in doing so, but I am fine over 4 years on, so take heart. I had a single mastectomy with no reconstruction and no regrets. Will be thinking of you on Monday. - SoldierCrabMember@Bowie
I was TNBC with nodes involved had bilateral Mastectomy and node clearance on the left .... I am Cancer free 4.5years later.... I have chosen NO reconstruction and I am happy being flat. - primekMemberYou have so much to take in. It's been a lot for you to process. But take heart that many many women have positive nodes and are cured of breast cancer. My niece had 10 pos nodes and 14 years on she is cancer free.
Many women also have mastectomies and no reconstruction and adapt to their change. Many choose not to wear a prosthesis also and learn to be comfortable in there own skin.
I was wondering why your RA would prevent a reconstruction though. Could you enlighten us?
Hope things get a bit easier for you soon. Have you made contact with a breast care nurse for support or rang and sought counselling through the cancer council? Let us know if you need contact links.
Are you taking a friend to the appointments? It's hard to remember things so a friend can be useful not only for support but writing things down for you. Also any questions that pop in your head write down and take to the appointment. You tend to forget all of them once in the room otherwise.
Take care. Kath x - mum2jjMember@Bowie My first diagnosis I had only a lumpectomy. I also had a positive lymph node. It is now almost 7 1/2 years since that diagnosis. I did have a recurrence and end up having a mastectomy 18mths later, but almost 6 years since then. Right up until now it hasn't spread any further, so positive nodes don't always mean it has spread further.
Good luck with the scans.
Paula xx - brightspaceMember:) <3
- BowieMemberThankyou so much ..but l will try and get some sleep ...l will be in touch after the scan results ..Bless you all .love and hugs xxxx
- brightspaceMemberPlease take it easy
I have been where you are going
Yeh it does our head in ..but we are talking this through
Please contact bcna to get in phone contact with their support person
Cup of tea? Or another question
I will stay here for a while