Forum Discussion
AllyJay
2 years agoMember
Hi there @lindaandchris...I'm sorry you've had to join our club, bur welcome. I think you're right that the ball won't get really rolling until the detailed (as opposed to preliminary) biopsy results get in. If the further tests you would like to have done, such as c.t., bone scan, breast mri etc are not ordered...then stand your ground and insist. One thing I've learned in my own case and also my husband's (recent heart transplant) is to put on your "bitch hat", as I call it and make it plain to whoever that you are not happy. They might have a perceived rather cavalier attitude, but you don't. You have concerns, and you want them addressed. This whole shitfest is scary, for sure...nothing like The Grim Reaper giving you a tap on the shoulder, to get you going. We're quite an eclectic lot in this group and I'm sure you'll get a lot more replies and suggestions as well as support. Big hug...Ally.