Forum Discussion
Advice on making treatment decisions
Hi all. I thought this would all be cut and dry. Im still waiting after x3 appointments with surgeons for a recommended treatment plan. They were waitng to MRI results as iver xmas the radioligist w...
Hi there @Megs04, I am also a public patient and I agree with @kezmusc about the Patient Representative Officer or Liason Officer (same person, different titles used). When people try to brush me off regarding my request, whatever it is, by saying that the person I want to speak to is busy at the moment, or it will take time to find somebody to do whatever (typically find a nurse who is qualified to access my port) or somesuch crap, my usual comeback it," Oh never mind, I don't mind waiting...I've brought some sandwiches, iced tea and my knitting. I'll wait." I then unpack my knitting, grub and tea. That usually puts some energy into their efforts. After about half an hour, I then drop the Patient Rep bomb, and that is 100% guaranteed to get them moving.