Forum Discussion

RiotAtMidnight's avatar
5 years ago

A tiny inflatable boat in a huge storm

Like many others, here I am joining this not-so-sought-after club- and feeling very much like a tiny inflatable boat in a stormy sea.

I‘be just been diagnosed this week, although the process has been a bit back to front due to how busy things are during COVID. It feels like everything is happening all at once. Every day this week my understanding of my situation has radically changed. My brain is struggling to comprehend.

What I know so far is that it is 99.9% likely that I have inflammatory breast cancer. Even before the biopsy the doctor was prepping me for the likelihood of chemo starting next week (🙀👎💩). But now, having received my FNA and core biopsy, the appointment has been moved up to tomorrow. Understandably I am freaking the @&$! out!

My rational brain knows this is “bad but good”. Bad news, but good to have modern medicine, urgent care, to know this is happening in my body.

I’m struggling to keep up with the pace of things, let alone telling people in my world AND figuring out what to do as a self-employed business owner.

Finally I come to my question: for those of you who have been in this “new diagnosis shock” stage, what are the things you think can wait, and what are the things a person should focus on at this time? Eg/ should I be worrying about my business right now? How much should I let everything fall apart?

Well, that turned into an essay-length vomit of all my feelings but having read other posts, I know I’m not alone in this weird state of diagnosis mind!!!

(Thank you to all the posters on this site for your generosity in sharing your painful experiences, searching the threads has been really useful and helped me to gain a little more perspective with everything I read).

33 Replies

  • Thank you so much for your reply @Abbydog. It makes me realise my brain is racing ahead very fast and I can try to slow that down. 

    These practical points and questions and really helpful. I can find little bits and pieces about being self employed and having cancer but boy, I would love to talk more with people who have done that. But that can come in time.

    I get my full diagnosis and treatment plan today, so I’m taking a deep breath and trying to remember that the urgency is “bad but good”- all of this is in order to help me. 

    Thanks again for your thoughtful reply. 
  • Dear RiotAtMidnight,
    Yes there is a lot to think about with this type of diagnosis.
    You could wait for a full plan of treatment and full diagnosis.
    Do you have a Stage and Grade for your cancer?
    Being a self-employed business owner, probably does put some pressure on you to make plans.
    You will have noticed that some of our treatments are similar, but each of our experiences can be very variable.
    Some people are able to work throughout, with minimal time off. Others are quite incapacitated. No way to predict.
    Not knowing the type of business you have, do you employ many people, or can you be replaced for odd days, or even a short stay in hospital?
    You may need to hire or increase hours for some staff, to cope with your potential absences.
    Do you have any insurances to help or fall back on? Eg Trauma/Crisis Insurance or Income Protection.
    I've only spoken of physical/practical things, you've yet to know how you will cope emotionally. 
    My story is in my profile, just click on my name to open it.
    I truly wish you well with your treatments. 
    Make lists of questions, for your Doctors. Have phone numbers ready if you need them, especially during Chemo.
    Keep in touch if you want. There is plenty more advice, amongst us ladies.