27 year old lobular carcinoma

Yes exactly, my body my choice. We came to an agreement as a couple we would do one cycle to collect whatever embryos we can and then not delay treatment. 
Weve have many conversations that children may not be in the cards for us, and that’s okay. If we choose to pursue these embryos perhaps after the 5 year free mark, we will. But if that’s all too much to go through after this part and we don’t, well that’s our decision as a couple and no one else’s f***ing decision!!!! 
Grateful I have a husband who agrees having me around for many more years is better than having a baby and then none of me.

Having kids is great, but looking at the contentment of my many friends without kids, that seems to be pretty great, too.  Whichever side of the child-proof fence you sit on will have it's rewards and regrets.  Do what you can if you need to, but then just get on with it.

Yeah, it's always been the way that having a baby, or not, is up for public discussion. From the stangers or people you barely know who feel free to touch your belly, asking you if you know the gender and then criticise your choice of whether you know or not, or the unwanted advice about the number of kids you have or whether you have them or not. And the knee jerk response to tell you horror birth stories! Like the knee jerk response of people when they find out you've got BC to tell you they knew someone who died from it. Oy if I had a dollar for everytime I'd heard that one...

I agree that having kids is not the be all and end all of existence. I have them but I always wanted kids. I have several friends and family members who live full and rich child free lives.

You do you and never mind the rest of them! K xox

I found it, as many others have, extremely wearing to have to tell people what was going on all of the time, and often they didn't really get it, anyway.  I set up a blog (with hubby's help) while I was recovering from surgery, posting my updates and emotional musings in that, and gave the address to family, friends and colleagues.  This meant that I didn't have to keep going over the same things and I also think that it gave them a real look at what treatment is really like - I still had to wear the mask in public but anyone really interested knew what was going on and I know quite a few followed it.  It also has become my diary record of what the year of treatment was like as it's hard to remember some of it, after the fact.

@kmakm the worst has been the - why don’t you know the plan yet. I didnt know because  that’s how public health works! They wanted to discuss me at an MDT before giving me misleading info! But for anyone who has never had anything to do with the health system they just don’t understand these things. It gets so repetive explaining! 

I am also hating that some people find it okay to ask about fertility - I feel like saying is it really the worst thing if we don’t have kids?? People have happy lives without children all the time! 
Or friends saying “it’ll be fine in a few years you can use these embryos” — yes we could try, but as I’ve explained that involves me coming off the medicine preventing the recurrence of the cancer, highly risky. Then going through pregnancy exposing myself to all those hormones, also highly risky! Plus the general statistics of an IVF embryo actually becoming a child aren’t fantastic I’ve been well warned of that!!! 

Aside from those two things I’m coping well with all of the questions and interest. :) 

thank you @Zoffiel!!

I met with genetics, very undecided if I should go through with testing... they felt highly unlikely to have any mutations with my “risk”. Not sure it would change anything for me really if I don’t ever know the result? 

One always feels better when there's a plan.

How are you going managing the reactions of your family and friends?

Glad you're feeling OK. K xox 

Ive never figured out the emogi thing, but thumbs ups and awesomes and a few WTFs. Mxx

Hi everyone
I met with oncology today. I really liked both the consultant and registrar which is awesome. They spent time answering all of my questions. 
I have been advised due to my age they feel best to attack with full force. 
Chemo starts in 2 weeks from today - that gives me time to finalise my fertility preservation and have a week of chill. 
So my plan:
egg harvest likely Monday and they will be fertilised into embryos with my husband and then frozen in time 

following Tuesday 2/4/19 begin bi-weekly AC by four rounds followed by bi-weekly Taxol for four rounds. 

Radiation still undecided but seems likely. 

Then years of hormone treatment as lobular is so sensitive to oestrogen. 

I feel brighter just knowing what’s coming. 🤪

My cancer was also lobular and because if the size of the tumour I had to have a right side mastectomy (chose to have a bilateral mastectomy). Had 17 lymph nodes removed and one showed cancerous cells.  I did not have chemo as was told this type of cancer does not respond well to chemo. Had 5 weeks of radiation then medication.  Early problems with cording but physio provided exercises to help.  Was reassured with the treatment decisions as this was made by a large team and not just one doctor.  Be informed, ask questions but take it step by step.  I too during the early days found it difficult to be positive, waiting for all test results etc. Once I knew the course of treatment I was in a much better state of mind.  I am a lot older than you and it sucks that anyone has to go through this let alone young ladies. 

I'm glad you've decided to do IVF. I think it's important to give yourself options. Isn't technology marvellous?!

And wonderful to hear that you're recovering well. When do you think you'll start chemotherapy?

Have a beaut weekend! Kxox