Here I go again!
Hi there. Newbie to this online group. I had my first diagnosis in 2006 at 46. A grade 3 ductal cancer for which I had a lumpectomy, radiation and hormone blockers. I had Tamoxifen until developed uterine polyps (3yrs) and then switched to Arimidex (another 5 yrs). My maternal aunt had BC first in her mid 30’s and then late 50’s before she died of mets in her mid 60’s. I’d had annual mammograms since 40 because of my family history but have no genetic markers. All going well until my last mammogram which showed another BC in the same breast. This time a lobular cancer. Luckily very small and no spread but still devastating. I’ve had another lumpectomy- because I would not speak the M word! I’m now recovering from that and have started hormone blockers - again. I can’t have radiation again in the same side - which I’m thankful for - and I don’t need chemo - again very grateful. However I feel my surgeon would prefer me to have had a mastectomy ( that word I will not speak of!). I see home again in a few months and I’m thinking this is what he will recommend to keep me safe. At least I’ve had time to get my head around this and find out more about it - I just didn’t feel I could make that decision in the days between my biopsy results and surgery. Anyway I’ve been reading lots of posts here and finding out more each day. I have a bit more knowledge under my belt from my previous experience and in some ways that makes it worse! I worry about the impact of hormone blockers on my long term health and my ability to keep fit and keep the weight under control. And I’m concerned about a reconstruction and how long the recovery will be. One of the worst things about the past few weeks is that we had to cancel a much anticipated overseas trip. We haven’t travelled since 2019 so we are keen to get back travelling but not to be! I keep saying to our kids I’m not sure how many good travel years we have left and there’s so much still to see! ��🤣284ViewsSign in to react to this post3Comments74 and newly diagnosed
Well here I am just turned 74 and diagnosed a week ago with invasive lobular carcinoma. Waiting to see oncology specialists and surgeons and find out what the treatment will be. From what the breast screen doctor and my own doctor have told me it won’t kill me and will just be a bloody nuisance and inconvenience for a while. That I can handle. Telling family and friends was the hardest part this week. Feeling a little anxious and keen to get the ball rolling and get rid of this uninvited guest in my breast. Interested in hearing from others who have experienced ILC.ViewsSign in to react to this postComments
27 year old lobular carcinoma
Hi there, I’m 27 and based in Brisbane just now. 12 days ago I was diagnosed with invasive lobular carcinoma. I don’t yet know lymph involvement but am guessing it’s likely (nothing showed on USS or palpable however.) My surgeon has recommended a full lymph clearance. Is there anyone else out there this young with lobular? My biggest fear is leaving my husband behind without any children, what if my illness causes him to miss his chance of having kids with someone else one day? Unfortunately I’m a nurse so know a bit too much about what I’m about to go through. I have a mastectomy in 3 days and axillary clearance. Trying to remain positive. At what point did you ladies meet your oncologist? I’m not meeting them until next week when the final pathology/sizing etc is back after surgery and they’ve had an MDT to decide my treatment plan. Is this normal? I’m public.ViewsSign in to react to this postComments
Panic Mode
Hi Everyone, I am 48 years old and have been diagnosed with Invasive Lobular Carcinoma. I am scheduled to have a bilateral mastectomy this Tuesday 24/7/18. Any further treatment to be determined after surgery. I am at the beginning of my breast cancer journey, and somewhat aware of the difficulties ahead for me. My mother had breast cancer 10 years ago and I had investigations for a lump that turned out to be a cyst about 14 years ago, so I was having bi annual mammograms. My cancer was picked up in a mammogram on 8/6/18 and confirmed on 13/6/18. My surgeon was going away on annual leave, so put me on Tamoxifen for a about a month, stopping this about 1.5 weeks ago ready for surgery this week. Unfortunately the downside of having this time means that now it's so close, I'm in full panic mode! - clearViewsSign in to react to this postComments
No Idea what to do
Hi, I'm only newly diagnosed and not sure which way to go. I have a second meeting with my breast surgeon today and I'll see the oncologist for the first time tomorrow. I have a 6cm Invasive Lobular Carcinoma, whatever that means. Since finding out basically all I've had is more tests to see if things have spread anywhere and I'll get some of those results this afternoon. Because of the size I was thinking I might try to shrink it first but maybe I should just get everything removed. I'm fairly small in that region so losing this much will mean I lose it all. I've read so many stories and everyone seems so brave about having the whole lot removed but I just feel like I'll be missing a piece of me. Hopefully I can make some decisions soon. I also have a family cruise planned in 2 weeks that I do not want to miss. I have 7 year old twins that have been looking forward to it for too long so I don't want to do anything until after the holiday. I hope that isn't too silly. It took them months to find the problem, surely another 10 days is ok. I also don't know what to do about reconstruction or any of that at this stage. I know I would prefer to wait and do something later and get the best of the best to do it. Any recommendations there would be great. I'm based in Sydney. Thanks in advance for any advice on anything.ViewsSign in to react to this postComments
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