Forum Discussion
youngdogmum
7 years agoMember
27 year old lobular carcinoma
Hi there,
I’m 27 and based in Brisbane just now.
12 days ago I was diagnosed with invasive lobular carcinoma. I don’t yet know lymph involvement but am guessing it’s likely (nothing showed on USS or palpable however.)
My surgeon has recommended a full lymph clearance.
Is there anyone else out there this young with lobular?
My biggest fear is leaving my husband behind without any children, what if my illness causes him to miss his chance of having kids with someone else one day?
Unfortunately I’m a nurse so know a bit too much about what I’m about to go through.
I have a mastectomy in 3 days and axillary clearance.
Trying to remain positive.
At what point did you ladies meet your oncologist? I’m not meeting them until next week when the final pathology/sizing etc is back after surgery and they’ve had an MDT to decide my treatment plan. Is this normal? I’m public.
I’m 27 and based in Brisbane just now.
12 days ago I was diagnosed with invasive lobular carcinoma. I don’t yet know lymph involvement but am guessing it’s likely (nothing showed on USS or palpable however.)
My surgeon has recommended a full lymph clearance.
Is there anyone else out there this young with lobular?
My biggest fear is leaving my husband behind without any children, what if my illness causes him to miss his chance of having kids with someone else one day?
Unfortunately I’m a nurse so know a bit too much about what I’m about to go through.
I have a mastectomy in 3 days and axillary clearance.
Trying to remain positive.
At what point did you ladies meet your oncologist? I’m not meeting them until next week when the final pathology/sizing etc is back after surgery and they’ve had an MDT to decide my treatment plan. Is this normal? I’m public.
61 Replies
- Doin_itMemberGosh you are young @youngdogmum!!
Will be thinking of you on Thursday & sending good wishes. Take care xx - Giovanna_BCNAMemberHi @youngdogmum wishing you all the best with your upcoming surgery and a speedy recovery. Dont hesitate to call the BCNA helpline on 1800 500 258 if you would like to speak with a cancer nurse for information and or support.
- youngdogmumMemberHi all,
I had my pre op checks today - anaesthetist, physio, surgical team etc
- anaestheist and I had a good laugh, “ what do I need to see you for” he said. The stark reality of previously being perfectly fit and healthy, no medications ever except the pill, never had any surgery etc before. I just said as an ICU nurse I know too much so please look after me on the table!
- the surgical team and I clarified my lymph plan. Grade 1/2 clearance and if the professor feels any suspicious areas he will do a total clearance if he thinks needed.
The pity stares started today, everyone double taking at my birthday and the procedure I’m having. The other breast ca lady there just couldn’t get over my age.
I asked my breast nurse (McGrath one). She said I’m the youngest shes ever seen. She’s going to ask the McGrath portal for me to see if there’s anyone else in their 20’s to chat to.
Thursday is DDAY. Wish me luck!!! Thanks all of you and keep fighting XX - AfraserMemberI too had an axillary clearance - several very suss looking nodes and the biopsied one was malignant. Turned out it was the only malignant one but it was a fair call. Mobility was fine right away, no pain, no scarring. Still a degree of numbness which presumably is there for life, but affects nothing - I don't wax but if I did I would need to be careful as I still can't distinguish hot and cold in one armpit well enough. Lymphoedema is a scary thought, doesn't always happen and can be very manageable (don't Google that one, will give you nightmares and mainly unjustifiably). Anticipating all these things appears like a way of planning, but remember they may never occur, and the anticipation may just cause you unnecessary worry. Take one day at a time, things will get much clearer when you know more precisely what you are dealing with. Best wishes.
- ZoffielMemberBonnie looks like a furfect candidate for the job of Main Support Canine. And that is excellent news about the clearance. Mxx
- Patti_JMemberWhen I had a mastectomy 16 years ago, I had an axillary clearance. There was no sentinel node biopsy available. I have never had any issues. The only thing is that I am slightly numb under my arm. Apart from that, I am able to do anything I choose to do.
I did have needling many years ago to release the tension in the place on the side of my breast where three scars intersect. - youngdogmumMember❤️Type your comment
- youngdogmumMemberHi all,
I re-read my notes and I’m actually supposed to be having grade 1 and 2 clearance.
Sorry for the confusion, I remember him initially saying total clearance. So much info in the last 10 days has gone into my brain 😬
ive tried attaching my dog photo, hopefully it works!! She’s about to turn 2, Bonnie ❤️ - Kiwi_AngelMember@youngdogmum it was just myself and hubby when I went through chemo. I was 44 when diagnosed and hubby was 41. We have no children and we had decided years earlier that wasn’t for us. Im glad that was one less thing to stress about when diagnosed. I really feel for you having to deal with the issues of fertility and children on top of everything else.
I lost my mum when I was 29 and we lost my father in law 7 years ago and then my father the year after. I’m an only child and my husband has one brother but we haven’t spoken to him or his wife since my father in law passed due to some issues we had. My mother in law has never been the most supportive or helpful as she has mental issues and due to something she did to me when I was diagnosed I haven’t spoken to her since last year.
Im lucky that I have the best husband and some great friends and work colleagues that supported me when I needed it.
I am very stubborn and being an only child I’m pretty much used to looking after myself and don’t like to put others out.
In in terms of support and knowledge this forum was another great support and I could not of got through it without everyone here. No one else knows what you are going through other than people who have done it too.
Huge hugs xoxox - SisterMemberI agree with the others. The issues with the underarm are the most difficult part (physically) with the surgery so it pays to be pushy. I have ongoing cording (I'd never heard of it before and my current GP has never heard of it but it affects many of us), have little sensation but odd pains, and worry a lot about the possibility of lymphoedema. If you need it, you need it but it's not something to go into lightly. And it's something you don't get told much about beforehand. As @zoffiel says - you will deal with this the same way as you deal with any crisis where you are the centre of attention. While I appreciated help, I didn't want to be crowded and I let some good friends deal with keeping people up to date until I got a blog sorted.