Hi there,I’m 27 and based in Brisbane just now. 12 days ago I was diagnosed with invasive lobular carcinoma. I don’t yet know lymph involvement but am guessing it’s likely (nothing showed on USS or palpable however.) My surgeon has recommended a full lymph clearance.Is there anyone else out there this young with lobular? My biggest fear is leaving my husband behind without any children, what if my illness causes him to miss his chance of having kids with someone else one day? Unfortunately I’m a nurse so know a bit too much about what I’m about to go through. I have a mastectomy in 3 days and axillary clearance. Trying to remain positive.At what point did you ladies meet your oncologist? I’m not meeting them until next week when the final pathology/sizing etc is back after surgery and they’ve had an MDT to decide my treatment plan. Is this normal? I’m public.

@"Kiwi Angel" might be able to shed some light on the experience of going through BC without family support.I have found with the exception of the practical support I received during chemo (and I run a household of seven, at the time 9 - 85 years of age), the best support I've received has been here. There's something about people who have walked this path before you that is tremendously tremendously helpful, practically and emotionally. K xox

Hi Zoffiel,He explained the pros and cons and feels that given the size of the tumour on imaging and examination he would be shocked if there wasn’t multiple nodes involved. Due to the potential false-positive rates with sentinel, he said he feels probably better for my long term outlook to safely take them all now. He described it as an “old school approach” 😂 he is a professor after all haha! Im in Brisbane and having surgery at a tertiary hospital so I don’t think its to do with lack of equipment etc..Quite isolated family wise which I know is going to be really hard. That was probably the first thing I got upset about, I thought how am I going to get through this just the two of us.my mum passed away 10 years ago (lung ca, nil family history of breast/ovarian at all)dad and I have a strange relationship. My sister is intellectually disabled and honestly won’t be much help at all.my brother is in Darwin and his wife is about to give birth to their first, as much as I’d love him here I need to let him enjoy this time as well.Hubbys family are all in Scotland, I’m hopeful they will visit.But I have some good friends around, as well as their Mums who were there with me through my Mums treatment and passing. Plus my dog I think she’s going to keep me smiling through this!!! Thank you everyone again for your comments and what not.It is so nice to hear of so many women now on the other side of treatment.

HI @youngdogmum,Just wanted to say Hi and welcome to the forum. Mine wasn't ILC so I cannot help in that respect. However, I will jump in and agree with @Zoffiel regarding the axillary clearance. I am sure you are aware It's a fairly invasive procedure with a number of risks and possible long term side effects and it generally isn't something surgeons like to do unless it's necessary. I was 45 when I had this procedure along with lumpectomy but it was done because we knew there were lymph nodes involved from the beginning, so no choice.I would say I recovered very well from it all things considered and yes your age probably will help in that respect as well. I did a ridiculous amount of exercise for both strength and making sure everything was draining well. There was minor cording at the beginning but that went quickly with exercise and physio and have been fortunate that I haven't had any trouble with lymphodema. The strength in that arm is as good as it ever was except with weight on it up high.In saying that though there are numb parts (shaving is still weird), super sensitive parts, it still pulls at full stretch, feels kind of oddly puffy at times and still tingles mildly when I use the lawn mower. That's after 2 and a bit years. As Zoffiel said, we don't want to scare you off but information is somewhat lacking at times unless you push the issues. I guess it depends on how comfortable you are with what you have been told and how content you are going to be about having had that procedure if it all comes back clear ( which of course we want it to) and wasn't necessary...Trust your instincts and never be afraid to ask as many questions as you need to.Best of luck lovely. Keep us updated with how you are going. There is always plenty of support around.xoxoxoxox

Hello there youngdogmum,I just want to say 'you go girl!'We each have our own journey, but what is important is our positivity and strength, which you have oodles of. This is my first post on this site (post op- waiting pathology results), and I am so impressed and humbled, reading members' support and encouragement.I think we all are amazing, as is youngdogmum!xx

27 year old lobular carcinoma | BCNA Online Network

61 Replies

Sister
Member
6 years ago
Great news! Best wishes @youngdogmum We'll still be here if you need us.
Zoffiel
Member
6 years ago
Moving on is good. There probably should be more of it. Onward and upward from here. Mxx
arpie
Member
6 years ago
Glad you are going OK, @youngdogmum xxxx

Yep - it surely is a roller coaster ride. My 2 year 'anniversary' of surgery was 4 weeks ago. I see my surgeon for my 2 year review next week. (Just routine)

Jump back on any time you like!! ;) Take care xxx
youngdogmum
Member
6 years ago
Well I made it, the 12/02 was my one year from USS/mammo/Bx, 13/02 was one year to diagnosis and 14th was one year to clear staging scans. I’m not very active on here anymore which is a big part of my healing and moving on, but just wanted to say wow what a fucking ride of 365 days.
Sister
Member
7 years ago
Okay...not sure then...
lrb_03
Member
7 years ago
Made sense to me, @Afraser :)
Afraser
Member
7 years ago
Sorry! Scrambled my responses!
Afraser
Member
7 years ago
Such a big thing to consider and do, well done and best wishes!!
youngdogmum
Member
7 years ago
@lrb_03
Next Tuesday 2nd April I start!
I asked about a port, it was my preference. Oncologist feels risk of infection etc outweighs benefits of having “young” veins. If we are struggling throughout they will put one in.
I wouldn’t say I have fantastic veins but they are definately there. I had to hold back pushing for a port and just let the experts make that decision!

Zoladex will continue throughout chemo and definately beyond, it will form part of my hormonal therapy.. oncologists haven’t told me which other drugs I will be on yet post chemo but they discussed new research that giving a pre menopausal woman in induced menopause (ie with zoladex) an aromatase inhibitor is now showing more promising disease free survival than tamoxifen in younger women.
That is currently their recommendation for me.

Will update you all after my first round of chemo 😬
lrb_03
Member
7 years ago
Yep, once the chemo decision was made (pre surgery for me), scared as I was, getting it started was then one step closer to surgery, and getter the cancer out.
Do you have a start date? Have you thought about a port, how are your veins (nurse speak)?

Hope it doesn't take too long to feel a bit better

Just a question, has anyone mentioned having zolodex during chemo? I think I may have read somewhere that there is a suggestion that it may also have some protective effect on future ovarian function.

Take care

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27 year old lobular carcinoma

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