My theory is, if women were invited from 45 (as the data shows they should be) this may in turn increase participation rates for those 50 and over - women getting into the system earlier and into a routine of screening, before the majority of menopausal symptoms arise, before having to do bowel screening, etc......If women knew that 20% of BC's are found in women 40-49 and that this only increases by 3% 50-59 then perhaps they would book an appointment.","board":{"__ref":"Forum:board:general-discussion"},"conversation":{"__ref":"Conversation:conversation:147357"},"author":{"__typename":"User","login":"JJ70"},"postTime":"2019-03-11T04:04:31.000-07:00","kudosSumWeight":4}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXwy","node":{"__typename":"ForumReplyMessage","uid":147457,"body":"Yes- i told my surgeon of the experience (not a breastscreen surgeon) and he recommended i report her. Did not have the strength or mental capacity to do so at the time. I know he spoke to the practice manager. Even today her words ring in my head- ‘reconstruction are not breasts-just lumps under the skin’. Her tactics were ruthless and very damaging. I think tomorrow i may make a phone call and see if she is still working there. Time to act now i am stronger if she has not been repromanded already. ","board":{"__ref":"Forum:board:general-discussion"},"conversation":{"__ref":"Conversation:conversation:147357"},"author":{"__typename":"User","login":"Queendonut"},"postTime":"2019-07-09T05:20:22.000-07:00","kudosSumWeight":4}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXwz","node":{"__typename":"ForumReplyMessage","uid":147358,"body":"I got mammogram reminders until I asked them to stop (as I am still having yearly mammograms with my surgeon, whose mammogram equipment is superior). I also suggested that asking why someone has not had their mammogram might be useful. If I had a bit more faith, this is one of the things that integrated health records could work on - percentage of positive diagnoses within 12 months of a mammogram, percentages of those without a check in more than three years etc etc. All I got when I spoke to Breastscreen to say I had been diagnosed and was having regular mammograms elsewhere was a fairly churlish 'so you want to be taken off our books, then?'. The answer was in the affirmative. ","board":{"__ref":"Forum:board:general-discussion"},"conversation":{"__ref":"Conversation:conversation:147357"},"author":{"__typename":"User","login":"Afraser"},"postTime":"2019-02-15T19:47:55.000-08:00","kudosSumWeight":3}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw0","node":{"__typename":"ForumReplyMessage","uid":147364,"body":"It is still very sad (dare I call it negligent!?) that those with dense breast tissue are not advised to have further screening.
It is not a difficult thing to do. :( It would take 10 seconds of time. They have to check the screens that the images are OK - so they know then & there.
If we can bring about this change alone - it will be good","board":{"__ref":"Forum:board:general-discussion"},"conversation":{"__ref":"Conversation:conversation:147357"},"author":{"__typename":"User","login":"arpie"},"postTime":"2019-02-15T23:37:59.000-08:00","kudosSumWeight":3}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw1","node":{"__typename":"ForumReplyMessage","uid":147406,"body":"@JJ70 and @arpie People slip through the nets. I had my regular Breastscreen QLD mammogram in Nov 2016 and received the \"nothing to see here\" letter - also a note that that would be my final screening with them, because I was approaching 75. Nine months later, I found physical symptoms. At the Wesley BC, neither the mammogram nor the tomosynthesis showed anything. It took 1.5 hours of a three people ultrasounding me, to find it. Stage 2 Invasive Lobular (like 20% of BCs) - very diffuse and subtle, hard to detect. Ended up being a 12 cm tumour. And papillomas in the right. I have dense breast tissue. My daughter and nieces have now all been off to have ultrasounds and will do so regularly.","board":{"__ref":"Forum:board:general-discussion"},"conversation":{"__ref":"Conversation:conversation:147357"},"author":{"__typename":"User","login":"Flaneuse"},"postTime":"2019-03-06T15:08:48.000-08:00","kudosSumWeight":3}}]},"cachedAsset({\"assetId\":\"Common\",\"assetType\":\"quiltWrapper\",\"lastModified\":\"1743643541275\",\"locale\":null,\"node\":null})":{"__ref":"CachedAsset:quiltWrapper:breastcanceraus.prod:Common:1743643541275"},"cachedText({\"lastModified\":\"1742938040000\",\"locale\":\"en-US\",\"namespaces\":[\"components/common/ActionFeedback\"]})":[{"__ref":"CachedAsset:text:en_US-components/common/ActionFeedback-1742938040000"}],"cachedAsset({\"assetId\":\"custom.widget.Custom_Footer-en-US\",\"assetType\":\"component\",\"lastModified\":\"1743643626383\",\"locale\":null,\"node\":null})":{"__ref":"CachedAsset:component:custom.widget.Custom_Footer-en-1743643626383"},"cachedText({\"lastModified\":\"1742938040000\",\"locale\":\"en-US\",\"namespaces\":[\"components/community/Breadcrumb\"]})":[{"__ref":"CachedAsset:text:en_US-components/community/Breadcrumb-1742938040000"}],"cachedText({\"lastModified\":\"1742938040000\",\"locale\":\"en-US\",\"namespaces\":[\"components/messages/MessageBanner\"]})":[{"__ref":"CachedAsset:text:en_US-components/messages/MessageBanner-1742938040000"}],"cachedText({\"lastModified\":\"1742938040000\",\"locale\":\"en-US\",\"namespaces\":[\"components/messages/RelatedContentWidget\"]})":[{"__ref":"CachedAsset:text:en_US-components/messages/RelatedContentWidget-1742938040000"}],"cachedText({\"lastModified\":\"1742938040000\",\"locale\":\"en-US\",\"namespaces\":[\"components/messages/MessageListForNodeByRecentActivityWidget\"]})":[{"__ref":"CachedAsset:text:en_US-components/messages/MessageListForNodeByRecentActivityWidget-1742938040000"}],"coreNodes({\"constraints\":{\"id\":{\"in\":[\"community:nkyiu94732\",\"category:newly-diagnosed\",\"category:treatment-and-surgery\",\"board:living-with-and-beyond-breast-cancer\",\"category:lifestyle-and-wellbeing\",\"board:living-with-metastatic-breast-cancer\",\"board:clinical-trials-and-research\",\"category:carers\",\"category:social-zone\",\"board:general-discussion\",\"category:groups\",\"grouphub:autismspectrumdisorderandbreastcancer\",\"grouphub:bcna-mod-squad\",\"grouphub:breast-cancer-childlessness-and-us\",\"grouphub:carers-corner\",\"grouphub:christians-diagnosed-with-breast-cancer\",\"grouphub:choosing-breast-reconstruction\",\"grouphub:first-peoples\",\"grouphub:flat-chat-no-breast-reconstruction\",\"grouphub:hereditarygeneticmutationandbreastcancer\",\"grouphub:invasive-lobular-cancer\",\"grouphub:lets-talk-about-vaginas\",\"grouphub:lgbtiq-breast-cancer-network\",\"grouphub:livinginregionalruralandremoteareas\",\"grouphub:living-with-metastatic-cancer\",\"grouphub:men-living-with-breast-cancer\",\"grouphub:triple-negative-breast-cancer\",\"grouphub:triplepositivebreastcancer\",\"grouphub:young-women\",\"grouphub:work-and-breast-cancer\",\"board:news-and-events\"]}},\"first\":31})":{"__typename":"CoreNodeConnection","edges":[{"__typename":"CoreNodeEdge","node":{"__ref":"Community:community:nkyiu94732"}},{"__typename":"CoreNodeEdge","node":{"__ref":"Category:category:groups"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:autismspectrumdisorderandbreastcancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:bcna-mod-squad"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:breast-cancer-childlessness-and-us"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:carers-corner"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:christians-diagnosed-with-breast-cancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:choosing-breast-reconstruction"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:first-peoples"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:flat-chat-no-breast-reconstruction"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:hereditarygeneticmutationandbreastcancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:invasive-lobular-cancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:lets-talk-about-vaginas"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:lgbtiq-breast-cancer-network"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:livinginregionalruralandremoteareas"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:living-with-metastatic-cancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:men-living-with-breast-cancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:triple-negative-breast-cancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:triplepositivebreastcancer"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:grouphub:young-women"}},{"__typename":"CoreNodeEdge","node":{"__ref":"GroupHub:gro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The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor.
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... I received a Breastscreen NSW reminder for my 2 yearly mammogram!","id":"message:147357","revisionNum":1,"repliesCount":112,"author":{"__ref":"User:user:20667"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:general-discussion"},"conversation":{"__ref":"Conversation:conversation:147357"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:147357"},"body":"Who else has received their Mammogram Reminder after being diagnosed & treated?
Last week, I was a bit surprised to receive a reminder to have my 2 yearly mammogram as I thought there might be some sort of communication between the various health professionals & the organisation .... then again - why WOULD they know about my ILC BC? So far, I've received a written letter, an email & an SMS to my mobile phone - so they are really keen to get me back!!
I thought a letter explaining why I wouldn't be going back would be in order. This is what I wrote. I'll let you know if I get a reply!!
Hi guys,
I’ve received my reminder for a mammogram, but I was diagnosed with invasive lobular cancer 6 months after my previous mammogram, which wasn’t picked up by it.
There is no breast cancer (or any cancer) in my family, so this was (and still is) a real shock to me. I’ve had surgery (Jan 2018) and also radiation and am now on hormone tablets for the next 5 years+.
Apparently I have dense breast tissue, but I wasn’t advised of this by Breastscreen NSW and that it would be beneficial to have an ultrasound for earlier and better detection rates.
Breast Screen Western Australia advises their clients with dense breast tissue to do this.
It is time for Breastscreen NSW to do the same.
I will be having yearly mammograms and ultrasounds as a part of my ongoing breast cancer management, so would request that you remove my name from your reminder lists.
I only hope that I am not one of the 30% who then randomly go on to develop metastasised/Stage 4 breast cancer, irrelevant of the ‘good outcome’ of my surgery, Rads and tabs. It really is a lottery.
Much more research is needed in this area, to determine WHO will get Stage 4 and WHY? Tissue and bloods should be taken from all having surgery, to provide material for researchers to work with!
I would be interested if a radiographer could take a closer look at my last mammograms with Breastscreen NSW in 2017 ... to see if, in hindsight, anything could be detected on them, now that we know it was there all along? It was in my right breast.
What do you reckon? Not too rude?? ","body@stringLength":"2547","rawBody":"Who else has received their Mammogram Reminder after being diagnosed & treated?
Last week, I was a bit surprised to receive a reminder to have my 2 yearly mammogram as I thought there might be some sort of communication between the various health professionals & the organisation .... then again - why WOULD they know about my ILC BC? So far, I've received a written letter, an email & an SMS to my mobile phone - so they are really keen to get me back!!
I thought a letter explaining why I wouldn't be going back would be in order. This is what I wrote. I'll let you know if I get a reply!!
Hi guys,
I’ve received my reminder for a mammogram, but I was diagnosed with invasive lobular cancer 6 months after my previous mammogram, which wasn’t picked up by it.
There is no breast cancer (or any cancer) in my family, so this was (and still is) a real shock to me. I’ve had surgery (Jan 2018) and also radiation and am now on hormone tablets for the next 5 years+.
Apparently I have dense breast tissue, but I wasn’t advised of this by Breastscreen NSW and that it would be beneficial to have an ultrasound for earlier and better detection rates.
Breast Screen Western Australia advises their clients with dense breast tissue to do this.
It is time for Breastscreen NSW to do the same.
I will be having yearly mammograms and ultrasounds as a part of my ongoing breast cancer management, so would request that you remove my name from your reminder lists.
I only hope that I am not one of the 30% who then randomly go on to develop metastasised/Stage 4 breast cancer, irrelevant of the ‘good outcome’ of my surgery, Rads and tabs. It really is a lottery.
Much more research is needed in this area, to determine WHO will get Stage 4 and WHY? Tissue and bloods should be taken from all having surgery, to provide material for researchers to work with!
I would be interested if a radiographer could take a closer look at my last mammograms with Breastscreen NSW in 2017 ... to see if, in hindsight, anything could be detected on them, now that we know it was there all along? It was in my right breast.
What do you reckon? Not too rude?? 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I received a Breastscreen NSW reminder for my 2 yearly mammogram!","moderationData":{"__ref":"ModerationData:moderation_data:147469"},"body":"Thanks @Blondy I don't think my records were accessed, though I'm not sure if it would have helped. But it would be good if they were reviewed. My regular GP is on sabbatical so I can't ask if she made contact. That's good yours were passed on.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":1,"repliesCount":0,"postTime":"2019-07-12T23:50:26.000-07:00","lastPublishTime":"2019-07-12T23:50:26.000-07:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"community:nkyiu94732board:general-discussion/message:147357/message:147469","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"readOnly":false,"editFrozen":false,"body@stringLength":"244","rawBody":"Thanks @Blondy I don't think my records were accessed, though I'm not sure if it would have helped. 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I received a Breastscreen NSW reminder for my 2 yearly mammogram!","moderationData":{"__ref":"ModerationData:moderation_data:147468"},"body":"@shs14. I do know that my surgeon requested my last mammogram pictures from breastscreen from the 2 years previous and got them. 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I received a Breastscreen NSW reminder for my 2 yearly mammogram!","moderationData":{"__ref":"ModerationData:moderation_data:147467"},"body":"I had my reminder last month, two months into treatment. I also had a pap smear reminder after an op to remove what turned out to be a benign polyp :/ My breast cancer lump was very far round, below my armpit in the top quadrant. I wonder if the Breastscreen would have seen it on my last mammogram, nearly two years ago, as when I went in to have the lump screened they made me do a second mammogram and turn a bit more to get it in. I'd like to share this information with Breastscreen, but I'm also angry that there is no communication between the health records to tell them I have been diagnosed with Breast Cancer, and it sounds like that is across the board?! Surely that would help with statistics etc?","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":0,"repliesCount":0,"postTime":"2019-07-12T19:49:29.000-07:00","lastPublishTime":"2019-07-12T19:49:29.000-07:00","metrics":{"__typename":"MessageMetrics","views":1},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"community:nkyiu94732board:general-discussion/message:147357/message:147467","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"727","rawBody":"I had my reminder last month, two months into treatment. I also had a pap smear reminder after an op to remove what turned out to be a benign polyp :/ My breast cancer lump was very far round, below my armpit in the top quadrant. I wonder if the Breastscreen would have seen it on my last mammogram, nearly two years ago, as when I went in to have the lump screened they made me do a second mammogram and turn a bit more to get it in. I'd like to share this information with Breastscreen, but I'm also angry that there is no communication between the health records to tell them I have been diagnosed with Breast Cancer, and it sounds like that is across the board?! Surely that would help with statistics etc?","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:147467_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:21072":{"__typename":"User","id":"user:21072","uid":21072,"login":"kitkatb","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2018-06-01T22:56:32.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/542/p8JQNT18AGRR3.jpg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:21072"},"ModerationData:moderation_data:147466":{"__typename":"ModerationData","id":"moderation_data:147466","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:147466":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:21072"},"id":"message:147466","revisionNum":1,"uid":147466,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-discussion"},"parent":{"__ref":"ForumTopicMessage:message:147357"},"conversation":{"__ref":"Conversation:conversation:147357"},"subject":"Re: So ... I received a Breastscreen NSW reminder for my 2 yearly mammogram!","moderationData":{"__ref":"ModerationData:moderation_data:147466"},"body":"I'm just gobsmacked @Queendonut , Makes you wonder how many other people she has spoken to that way. She is clearly in the wrong job. I truly hope you follow it up and make a formal complaint. I can sure understand at the time why you didn't though as we have enough shit to deal with and if you are anything like me it's not until after you think \"you know what I should have said this to her and told her where to get off\" but I literally would have been speechless as well. When you feel stronger do it. Imagine other newly diagnosed women having to put up with crap like that. Makes my blood boil. Grrrr. Like Sister I had wonderful caring staff all the way through breastscreen. Its amazing how one person can either make or break your day. xo","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"223","kudosSumWeight":1,"repliesCount":0,"postTime":"2019-07-09T17:26:34.000-07:00","lastPublishTime":"2019-07-09T17:26:34.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"community:nkyiu94732board:general-discussion/message:147357/message:147466","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"821","rawBody":"I'm just gobsmacked @Queendonut , Makes you wonder how many other people she has spoken to that way. She is clearly in the wrong job. I truly hope you follow it up and make a formal complaint. I can sure understand at the time why you didn't though as we have enough shit to deal with and if you are anything like me it's not until after you think \"you know what I should have said this to her and told her where to get off\" but I literally would have been speechless as well. When you feel stronger do it. Imagine other newly diagnosed women having to put up with crap like that. Makes my blood boil. Grrrr. Like Sister I had wonderful caring staff all the way through breastscreen. Its amazing how one person can either make or break your day. xo","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:147466_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:20569":{"__typename":"User","id":"user:20569","uid":20569,"login":"Sister","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2017-12-06T13:01:28.000-08:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/240/pC7X05PF585T0.jpg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:20569"},"ModerationData:moderation_data:147465":{"__typename":"ModerationData","id":"moderation_data:147465","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:147465":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20569"},"id":"message:147465","revisionNum":1,"uid":147465,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-discussion"},"parent":{"__ref":"ForumTopicMessage:message:147357"},"conversation":{"__ref":"Conversation:conversation:147357"},"subject":"Re: So ... I received a Breastscreen NSW reminder for my 2 yearly mammogram!","moderationData":{"__ref":"ModerationData:moderation_data:147465"},"body":"I'm appalled by everyone's experiences with Breastscreen. I have nothing but praise for the staff at Breastscreen SA. I would be facing a very different future if not for them and I was treated with nothing but gentle respect by all but 1 doctor (who burst into the ultrasound room during my callback visit to tell me I had to sign something and have a biopsy). However, everyone else was excellent and I think, watched me for cues as to how to treat me.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"213","kudosSumWeight":2,"repliesCount":0,"postTime":"2019-07-09T16:16:37.000-07:00","lastPublishTime":"2019-07-09T16:16:37.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"community:nkyiu94732board:general-discussion/message:147357/message:147465","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"472","rawBody":"I'm appalled by everyone's experiences with Breastscreen. I have nothing but praise for the staff at Breastscreen SA. I would be facing a very different future if not for them and I was treated with nothing but gentle respect by all but 1 doctor (who burst into the ultrasound room during my callback visit to tell me I had to sign something and have a biopsy). However, everyone else was excellent and I think, watched me for cues as to how to treat me.","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:147465_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"User:user:17306":{"__typename":"User","id":"user:17306","uid":17306,"login":"iserbrown","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2015-07-12T16:59:09.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/images/dS0xNzMwNi1pSjI3dGM?image-coordinates=29%2C0%2C562%2C532"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:17306"},"ModerationData:moderation_data:147464":{"__typename":"ModerationData","id":"moderation_data:147464","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:147464":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:17306"},"id":"message:147464","revisionNum":1,"uid":147464,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-discussion"},"parent":{"__ref":"ForumTopicMessage:message:147357"},"conversation":{"__ref":"Conversation:conversation:147357"},"subject":"Re: So ... I received a Breastscreen NSW reminder for my 2 yearly mammogram!","moderationData":{"__ref":"ModerationData:moderation_data:147464"},"body":"Definitely write and seek clarity. It's not her role to undermine the surgeon nor to make the newly diagnosed patient feel worthless Best wishes Take care ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"174","kudosSumWeight":1,"repliesCount":0,"postTime":"2019-07-09T16:09:06.000-07:00","lastPublishTime":"2019-07-09T16:09:06.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"community:nkyiu94732board:general-discussion/message:147357/message:147464","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"182","rawBody":"Definitely write and seek clarity. It's not her role to undermine the surgeon nor to make the newly diagnosed patient feel worthless Best wishes Take care ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:147464_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:147463":{"__typename":"ModerationData","id":"moderation_data:147463","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:147463":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20667"},"id":"message:147463","revisionNum":1,"uid":147463,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-discussion"},"parent":{"__ref":"ForumTopicMessage:message:147357"},"conversation":{"__ref":"Conversation:conversation:147357"},"subject":"Re: So ... I received a Breastscreen NSW reminder for my 2 yearly mammogram!","moderationData":{"__ref":"ModerationData:moderation_data:147463"},"body":"That's disgraceful, @Queendonut - definitely needs reporting if you haven't done so far - in writing is SO much easier than by phone too - you can go over it again & again til you're happy with it. It is also a written record that they have to respond to by law. If you get someone on the phone, it could be the cleaner!!
BreastScreen are now going to review my Mammogram films against the one the local radiographer took - even tho THEY didn't see it either - it was the ultrasound that picked it up. Tho the surgeon could see it on the films, when I saw him on my first appointment in Jan 18.
The Nurse Counsellor is one of the ones I've been emailing and was a tad 'off' to start off with but when I shot her the email about the disgusting review letter - she had to agree & then became more 'chatty'.
","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"222","kudosSumWeight":0,"repliesCount":0,"postTime":"2019-07-09T15:48:32.000-07:00","lastPublishTime":"2019-07-09T15:48:32.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"community:nkyiu94732board:general-discussion/message:147357/message:147463","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"906","rawBody":"That's disgraceful, @Queendonut - definitely needs reporting if you haven't done so far - in writing is SO much easier than by phone too - you can go over it again & again til you're happy with it. It is also a written record that they have to respond to by law. If you get someone on the phone, it could be the cleaner!!
BreastScreen are now going to review my Mammogram films against the one the local radiographer took - even tho THEY didn't see it either - it was the ultrasound that picked it up. Tho the surgeon could see it on the films, when I saw him on my first appointment in Jan 18.
The Nurse Counsellor is one of the ones I've been emailing and was a tad 'off' to start off with but when I shot her the email about the disgusting review letter - she had to agree & then became more 'chatty'.
","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:147463_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"User:user:21472":{"__typename":"User","id":"user:21472","uid":21472,"login":"Queendonut","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2018-10-22T02:29:48.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/avatarstock/p8PPD0ZOMY9F1.png"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:21472"},"ModerationData:moderation_data:147462":{"__typename":"ModerationData","id":"moderation_data:147462","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:147462":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:21472"},"id":"message:147462","revisionNum":1,"uid":147462,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-discussion"},"parent":{"__ref":"ForumTopicMessage:message:147357"},"conversation":{"__ref":"Conversation:conversation:147357"},"subject":"Re: So ... I received a Breastscreen NSW reminder for my 2 yearly mammogram!","moderationData":{"__ref":"ModerationData:moderation_data:147462"},"body":"Am definitely looking into making a formal complaint today- even if she is not still there. Breastscreen also need to be aware and accountable for their staff!","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"159","kudosSumWeight":1,"repliesCount":0,"postTime":"2019-07-09T15:24:36.000-07:00","lastPublishTime":"2019-07-09T15:24:36.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"community:nkyiu94732board:general-discussion/message:147357/message:147462","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"customFields":[],"readOnly":false,"editFrozen":false,"body@stringLength":"159","rawBody":"Am definitely looking into making a formal complaint today- even if she is not still there. Breastscreen also need to be aware and accountable for their staff!","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:147462_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"User:user:757":{"__typename":"User","id":"user:757","uid":757,"login":"Zoffiel","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2010-05-08T11:40:26.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/7LUPVY61P0TR/pIWGAT5JZIPEL.jpg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:757"},"ModerationData:moderation_data:147461":{"__typename":"ModerationData","id":"moderation_data:147461","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:147461":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:757"},"id":"message:147461","revisionNum":1,"uid":147461,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-discussion"},"parent":{"__ref":"ForumTopicMessage:message:147357"},"conversation":{"__ref":"Conversation:conversation:147357"},"subject":"Re: So ... I received a Breastscreen NSW reminder for my 2 yearly mammogram!","moderationData":{"__ref":"ModerationData:moderation_data:147461"},"body":"Off with her head @Queendonut .
She's probably been pulling similar shit on people for ages, relying on her victims to be too shellshocked to call her out.
I know it can be exhausting, stressful and upsetting to make complaints, but her behaviour was disrespectful bordering on abusive. You wouldn't take that from someone behind a supermarket checkout, don't put up with it from her either. Mxx ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":1,"repliesCount":0,"postTime":"2019-07-09T13:25:48.000-07:00","lastPublishTime":"2019-07-09T13:25:48.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"community:nkyiu94732board:general-discussion/message:147357/message:147461","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"429","rawBody":"Off with her head @Queendonut .
She's probably been pulling similar shit on people for ages, relying on her victims to be too shellshocked to call her out.
I know it can be exhausting, stressful and upsetting to make complaints, but her behaviour was disrespectful bordering on abusive. You wouldn't take that from someone behind a supermarket checkout, don't put up with it from her either. 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I received a Breastscreen NSW reminder for my 2 yearly mammogram!","moderationData":{"__ref":"ModerationData:moderation_data:147460"},"body":"@PattiJ. I've used breastscreen for as long as I can remember. I was diagnosed after finding my own lump just short of my 2 yearly screen. If I hadn't of found it or ignored it, it would have been picked up for sure What a horrid experience for you to have at the bra shop. I've gone to Debras in Sydney for many years and after my surgery they couldn't have been more caring. @ queendonut, it makes one wonder if these heartless people choose to work in a profession where they have access to the vulnerable so as to inflict the most pain. Verbally or otherwise. If you let it affect you still, then she has done her job. I hope you can rid yourself of letting it still affect you as it's not good for your well-being and at this stage you are number one, it's all about getting you better, mentally as well as physically. 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If I hadn't of found it or ignored it, it would have been picked up for sure What a horrid experience for you to have at the bra shop. I've gone to Debras in Sydney for many years and after my surgery they couldn't have been more caring. @ queendonut, it makes one wonder if these heartless people choose to work in a profession where they have access to the vulnerable so as to inflict the most pain. Verbally or otherwise. If you let it affect you still, then she has done her job. I hope you can rid yourself of letting it still affect you as it's not good for your well-being and at this stage you are number one, it's all about getting you better, mentally as well as physically. 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