follow-up mammogram and ultrasound
Hi all, I hope you are all keeping warm. After my xingle mastectomy last year, I had my first yearly mammogram and ultrasound review last week, and got the results from the oncology team. All clear, which is a relief. I thought I wasn't worried, but on the weekend I was tired, and spent. Maybe in the subconcious level, I was a bit anxious. I'm 42, so I will have quite a few yearly reviews from now on. I was very happy, and shared it with my boyfriend. but not sure who else I should share the good news with (extended family? friends? close work-colleagues?). I mean, its not a milestone, but its nice to know that my body is healthy. i'm just curious...Does anyone do anything special after a review appoinment? Cheers, Paulina
New NON-COMPRESSION Breast Screening available - cone-beam breast computer tomography (CBBCT)
I am amazed that this new Breast Screening option hasn't been mentioned here before - I've only just found out about it today! .... Back in the 1980s when I had my 'first' breast cancer scare, I had a 'water scan' where I had to lie face down with my breast suspended thru a hole into liquid ..... it felt really weird! I was never offered it again. (CBBCT isn't currently covered by Medicare yet - so there may be a charge of up to $300 for the screening ... but for those who HATE the discomfort and pain of a normal compression based mammogram ... this may be the one for YOU!) Cone-beam computer tomography (CBCT) is a new type of 3D imaging that has been used previously in dental, orthopaedic and ENT scans. It has now been applied to Breast Screening too, Cone-beam breast computer tomography (CBBCT) https://www.oncologyrepublic.com.au/cone-beam-breast-ct-debuts-in-australia/5147 The difference between Cone Beam CT and Cone Beam Breast CT: "Cone beam CT" (CBCT) refers to a broad X-ray technology that generates 3D images using a cone-shaped X-ray beam, while "cone beam breast CT" (CBBCT) is a specific application of this technology used for diagnosing breast cancer, offering advantages like no breast compression and better visualization of dense tissue. The core technology is the same—a cone-shaped beam—but the terms differentiate between the general technique and its particular use in breast imaging. Cone Beam CT (CBCT) General Technology: A type of X-ray technology that produces 3D images by scanning with a cone-shaped X-ray beam. Applications: Widely used in dentistry to get detailed 3D images of teeth, jawbones, and surrounding structures. Advantages: Offers higher spatial resolution than conventional X-rays and can provide complete images of dental and maxillofacial areas, aiding in precise diagnosis and treatment planning. Process: A single rotation of the X-ray source and detector around the patient captures a series of images that are then reconstructed into a 3D volume. Cone Beam BreastCT (CBBCT) Specific Application: A form of CBCT specifically designed for breast imaging. Purpose: To diagnose breast cancer in individuals with signs of the disease or abnormal mammography findings. Advantages: ◦ No Compression: Unlike traditional mammograms, CBBCT does not require compressing breast tissue, which can be more comfortable. ◦ Reduced Distortion: It minimizes distortion and eliminates superimposed tissue that can obscure areas in mammograms. ◦ Improved Visualization: Offers more precise information, potentially improving detection and aiding in accurate treatment planning, especially for dense breasts or implants. Current Status: While FDA-approved for diagnostic breast imaging, it is also considered investigational and is being used in various regions worldwide Breast cancer Cone-Beam CT (CBBCT) is a new, non-compressive breast imaging technology available in Australia, including Sydney, NSW, with facilities at more and more Radiology Practices coming soon. Breast Health Imaging (https://www.oncologyrepublic.com.au/cone-beam-breast-ct-debuts-in-australia/5147) and Macquarie University Health (https://www.mqhealth.org.au/services/find-a-service/macquarie-medical-imaging/services/cone-beam-ct) The scan involves lying down, with the breast placed into a hole in the table for a quick, pain-free 3D scan that offers higher resolution images than MRI, especially for dense breasts and implants. While not yet part of BreastScreen, it provides a more comfortable alternative to mammograms and is used with a contrast dye for enhanced diagnostic accuracy, with results sent to your referring doctor for further management planning. What is it? Cone-Beam Breast CT (CBBCT) is an imaging technology that uses a cone-shaped X-ray beam to create high-resolution, 3D images of breast tissue. Pain-Free and Compassionate: Unlike traditional mammograms, CBBCT scans do not involve breast compression, which makes it a more comfortable experience for many women, especially those who avoid screening due to discomfort. How it Works: Patients lie down on a table, and their breast is positioned in a hole for a quick scan (about 7 seconds per breast). Contrast dye may be used for greater visibility. Key Advantages: Better for Dense Breasts: CBBCT is particularly effective for women with dense breasts or breast implants, as it provides better visibility compared to traditional mammograms. High-Resolution 3D Images: It produces 3D images that are of higher resolution than MRI, leading to more accurate diagnosis. Faster Scans: Each breast is scanned in a very short time, resulting in quick results. Availability in NSW Breast Health Imaging (https://www.oncologyrepublic.com.au/cone-beam-breast-ct-debuts-in-australia/5147) has brought CBBCT to Australia for the first time, with services available for women with dense breasts and implants. Other Providers: Other private practices and services are also adopting this technology, with plans for broader availability in the future. What to do if you would like to have CBBCT Scanning: 1 Consult Your Doctor: Discuss your breast health concerns with your doctor to see if a CBBCT scan is appropriate for you. 2 Referral: You will need a referral from your doctor to a facility offering this service. 3 Follow-Up: After the scan, return to your doctor to discuss the results and any necessary management plans.BreastScreen NSW now to advise of Breast density
Nine News, this evening, advised that BreastScreen NSW (BSNSW) will be advising clients of their Breast Density from now on and the risk is poses - and this should hopefully result in earlier detection of breast cancer in women who have Dense Breast Tissue. Only Tasmania, Qld and Northern Territory now, do NOT advise of Breast Density in Australia. BCNA's Vicki Durston was also interviewed. (It should be available to view on Nine News shortly.) Dense Breast Tissue is often associated with younger women - but I was in my late 60s, when diagnosed - hardly 'young'! 😉 Dense Breast Tissue shows as 'white' on a Mammogram - as does many BC Tumours. WHITE ON WHITE = INVISIBLE! My own BC (Invasive Lobular Cancer) - and many more members - was missed by the BreastScreen Bus in my NSW home town, just months before my GP detected it when she checked (even tho I'd told her my Screening was clear!) ..... I was called back for 2 more screenings (told there was a problem with the initial screening) before a biopsy was suggested - which showed my Tumours. It is particularly important for those with Invasive Lobular Breast Cancer - as it doesn't show as a 'tumour' as such ..... is it more 'strand like' and is even MORE difficult to identify in a mammogram. This confirms that BC tumours do NOT necessarily show on the mammogram - especially if Rural/Regional/Remote women are relying on BreastScreen Buses ... which do NOT have the latest 3D machines/tomosynthesis on board the buses. 🙁. If YOU live in rural/regional/remote areas .... make sure you advise your daughters/sisters/any female to get checked at a PROPER radiography facility & do NOT just rely on the BreastScreen Buses! From age 40 (not age 50 as BSNSW continues to advertise!) There is NO upper limit either .... so if you are older than 74 - make sure you ring & book, every 2 years! Women with Dense Breast Tissue should be advised to have an Ultrasound and possibly an MRI to identify if there is an issue - with a biopsy to confirm the presence of BC.
Election called
Hi everyone - it has been a while since I have posted myself but as always I love the many messages you share with each other that I have a chance to read. Last week Vicki (our Director of Policy, Advocacy and Support Services) and I were in Canberra meeting with both the Minister for Health and Shadow Minister to take them through our policy priorities. I hope you have had a chance to read them: https://www.bcna.org.au/latest-news/bcna-news/bcna-policy-priorities-2025/ These are driven by your experiences and where our Network wants the Australian Government to invest. Keep any eye out on our social media and through the Online Network on updates on commitments the parties may make. Love your work KPChannel 9 News Tonight - how Mammograms are helping identify heart disease!
I’ve just seen an advert for Channel 9 News tonight - showing how Mammograms are helping to identify Heart Disease! Sounds interesting!! It could be worth watching ….. https://baker.edu.au/research/clinical-trials/mammogram-heart
to biopsy or not
I have recently found a lump (2 months ago) which I initially thought was due to my cycle but soon realized that even after my periods the lump still remained. I went to my doctor who then referred me for a mammogram and ultrasound. I arrived for my appt where I was told they weren't really keen on giving me a mammogram due to my age (36) and thought it best just to do the ultrasound, so I had the ultrasound and then started to get dressed, as i was doing so the radiologist told me not to bother as she thinks it would be best to do a Mammogram now. (after this i realised that they must of spotted something on the ultrasound). So i had the mammogram also on the same day. A few days later i went to see my GP for the results and was told they had seen dilated ducts with soft tissue present in my left breast and the radiology doctor has suggested a biopsy. My GP rang the radiology centre to speak to the Dr who wrote up my report and confirm whether it would be a FNA or Core biopsy, to which he confirmed a Core biopsy. A week later I went for my core biopsy appt at the same place i had mammo/ultrasound. Once again they decided to do a quick ultrasound and called the on duty Dr in to view. i was then told by this Dr (not the same guy that wrote up my initial report) that they wouldn't be doing the biopsy as he didn't see it as necessary. So didn't end up having any type of biopsy done on the lump. I now am very confused and worried that something has been missed as i can still feel the lump (it feels like a small rock covered in gravel) I have an appt with my GP next Tuesday but am unsure of what he is going to say. Im a single mother with 2 children and don't feel comfortable waiting a few months to see if the lump grows but i am unsure if i should get a second opinion or even where to go to get one. I have also reviewed the initial mammo/ultrasound report where the Dr states a biopsy is suggested. it also states that i have heterogeneously dense breasts whish makes it harder to spot any calcifications or masses on mammogram. Im confused as they obviously spotted something on the first ultrasound to warrant them wanting to do a mammo after firstly saying they didn't think it was needed .
First Scan post treatment’s Advice
Hi guy’s next week I’m going for my first mammogram and ultrasound since surgery and treatments I was wondering is 5 months after finishing radiation a normal time frame for scans i haven’t had a mammogram or scan since January 2020 when diagnosed and getting checked pre treatments also I noticed that my appointment with surgeon after scans is 2 weeks later would they really make you wait 2 weeks to notify you if something was wrong. scan day anxiety is setting in
I'm not impressed!
TL;DR - If you are a patient at public hospital in Brisbane, check your mammogram & ultrasound appointments. They may no longer be there. I had my second year mammogram and ultrasound today. It sounds so simple! I was diagnosed in late February 2018 by (private breast clinic) and referred immediately by my GP to a public hospital as they have a great reputation for dealing with breast cancer. And at the time, yes, they were fantastic. I was seen within about 2 weeks (on a Monday) and a week later I was admitted and have my lumpectomy on the next Monday. Wonderful! Public system at its finest! Nasty tumour ripped out, sentinel node biopsied. All good. I was assigned a breast care nurse (2 actually who job shared) and had follow ups with the surgeon and visited the Breast and Endocrine Clinic as required. Fantastic! Delays to appointment times but meh, it is what it is. No complaints. In March 2019 I had my first annual check up. Queried the technician about getting a 3D mammogram. Apparently the machine has the capability of doing this but no one was prepared to pay for the licence to activate it and turn it on. Had an ultrasound - technician noted a couple of cysts but nothing concerning. Had the follow up appointment for test results at the BE Clinic. Saw a random doctor who claimed to be some kind of breast specialist. I was also told I'd never see my surgeon again. She said the report was all clear. Yay! Great news! However, when I specifically asked about cysts, she said oh no, there aren't any. Hmmm suspicions raised. I asked about breast density. She couldn't give me a definitive answer. I asked what stage was my cancer (knowing it was Grade 3 but not stage). Oh, the response was, we don't use stages any more. Uh really??? Totally forgot at the time to ask for a copy of the report. When I followed up about a week later, breast care nurses said, not our problem. Email these people. So I dutifully emailed my request and heard nothing. And still heard nothing. Followed up 2 weeks later to be told they had never received the original request. <cough bulls*t> Eventually got the report and it was a drawing with some scribbles on it. Not exactly a professional document. So 2 days ago, I was mentally prepping for my exam this year and received a phone call from Qld XRay at 5 pm the day before my exam saying they are going to schedule my annual appointment. WTF? Apparently the public hospital have outsourced their mammograms and ultrasounds to Qld XRay and did this in November 2019 and obviously didn't tell anyone. Qld XRay also thought my appointment was 4 April and not 4 March. I told her, no no no, it's definitely 4 March and I'm holding the appointment letter in my hands right now. Of course, no availability on 4 March so I was rescheduled to 5 March. Not too bad, just one day delay. I can cope. But how furious I would have been if I'd turned up at the public hospital to find out it had been cancelled with no notice. Thank goodness I did get the phone call. So today I rock up to Qld XRay and I am very impressed that the first thing they do is give me a 3D mammogram. No mucking around with old 2D stuff. Excellent!! Ultrasound very thorough and I'm totally on board with the lovely staff. And the best thing is you have access to a Qld XRay online portal and can see your images within a few hours! No report thought until you've seen a doctor, then it becomes available. Anyway, they contacted the public hospital to get copies of last year's scans and results and hospital promptly tells them that they have no record of me. That there are no scans or results in their system. Are you #(*&ing kidding me? This after receiving a text message today reminding me of my follow up appointment at the hospital for next Monday. So Qld XRay has had to send off requests on my behalf to private breast Clinic and Breast Screen Qld (where I had a couple of scans done about 6-7 years ago) to try and source comparison scans. All of which is going to delay my report getting to my various doctors. So the public hospital - not good enough!!! Not happy at all. I don't know what's happened there over the last 1-2 years but something's not right internally. I shall be very interested to see what happens at my appointment at the BE Clinic next Monday. Sorry for this long and ranting post but I just had to vent. We rely on this stuff to go smoothly.
Anniversary
Today is the first anniversary of my mammogram. I was pretty stony faced. Nine months before my sister had died from breast cancer and I was resentful of the inefficiency at the front desk, the pink positivity messages and images plastered everywhere, and the long wait, despite the fact I had an appointment. I was asked if I wanted to take part in a study comparing detection results between 2D and 3D mammograms. I'd be randomly assigned. Always happy to be part of a medical study I said yes. I got 2D. It was a shabby shabby building, not a nice environment. The woman doing the mammogram was professional. Serious, but pleasant enough. She made small talk about kids, mine, hers. I get it, but I really didn't want to talk. I just wanted it over and done with, to get the hell out of that dingy place. The mammogram was uncomfortable but no more than that. As I was getting dressed she said sorry, I just need to do one more. Why? The image is a bit blurred, it's not unusual, the plates might have shifted slightly. Bra off and back I went. After it was all done she wished me good luck. Why? With the teenagers she said. Oh yes, you too. I left, recovered my mood and congratulated myself on getting it done, how efficient and good I am. Virtuous even... The boob she re-imaged (blurred image my foot) was the right one with the tumour in it, and three weeks later I knew what the good luck wishes meant. It's weird how the anniversaries of trauma are unsettling. I mean, time is a manmade construct and it's just another day determined by how long our planet takes to travel round the sun, right? I mentioned it to the psych on Thursday and she said the memories trigger our nervous systems to 'remember' as well, and we physically relive our response. I don't have trauma round that mammogram, but three weeks from now I won't be able to say 'this time last year I was happy' etc. My naive innocence was about to end and as I approach that time I am feeling unsettled by it. I theory my life is better now. I'm certainly healthier with, as far as I'm aware, a body free of cancer. However in fact, I'm sadder, sorer, mutilated, diminished and more tired. It's difficult to feel it's a victory. I hope the second anniversaries are better than the first ones. How are your anniversaries?So ... I received a Breastscreen NSW reminder for my 2 yearly mammogram!
Who else has received their Mammogram Reminder after being diagnosed & treated? Last week, I was a bit surprised to receive a reminder to have my 2 yearly mammogram as I thought there might be some sort of communication between the various health professionals & the organisation .... then again - why WOULD they know about my ILC BC? So far, I've received a written letter, an email & an SMS to my mobile phone - so they are really keen to get me back!! I thought a letter explaining why I wouldn't be going back would be in order. This is what I wrote. I'll let you know if I get a reply!! Hi guys, I’ve received my reminder for a mammogram, but I was diagnosed with invasive lobular cancer 6 months after my previous mammogram, which wasn’t picked up by it. There is no breast cancer (or any cancer) in my family, so this was (and still is) a real shock to me. I’ve had surgery (Jan 2018) and also radiation and am now on hormone tablets for the next 5 years+. Apparently I have dense breast tissue, but I wasn’t advised of this by Breastscreen NSW and that it would be beneficial to have an ultrasound for earlier and better detection rates. Breast Screen Western Australia advises their clients with dense breast tissue to do this. It is time for Breastscreen NSW to do the same. I will be having yearly mammograms and ultrasounds as a part of my ongoing breast cancer management, so would request that you remove my name from your reminder lists. I only hope that I am not one of the 30% who then randomly go on to develop metastasised/Stage 4 breast cancer, irrelevant of the ‘good outcome’ of my surgery, Rads and tabs. It really is a lottery. Much more research is needed in this area, to determine WHO will get Stage 4 and WHY? Tissue and bloods should be taken from all having surgery, to provide material for researchers to work with! I would be interested if a radiographer could take a closer look at my last mammograms with Breastscreen NSW in 2017 ... to see if, in hindsight, anything could be detected on them, now that we know it was there all along? It was in my right breast. What do you reckon? Not too rude??
