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Kyra's avatar
Kyra
Member
21 days ago

Do you wear a sleeve or glove or both?

I have lymphoedema in my arm and hand from breast cancer surgery. I am frustrated in managing it. I have tried a sleeve... my hand and fingers swelled up. I tried a glove with a sleeve and my hand puffed up. I have tried a sleeve with gauntlet (all one piece) and my fingers and hand swelled up.

I am curious how many women are having hand swelling with their lymphodema? Everything in research seems to imply that most women just need a sleeve and it magically doesn't trap the fluid in their hand. I am just wondering if the images of women wearing cute sleeves to manage their lymphodema is not realistic of the real world.

My question to you all is... when you lymphdema swells which parts of your arm, hand and fingers swell?

And what do you wear... just a sleeve, a sleeve and a glove, a sleeve and a gauntlet or something all in one.

4 Replies

  • I wore an off the shelf  sizes  sleeve  for a while,sometimes had to gently stretch the wrist so it wasn't tight.

    Also had a guantlet for a while,sleeve and separate glove ..farrow wraps hand brace on top..eventually a gloves and sleeve all in one  custom combo was what worked best,but therapist had to keep tweaking the measurements over  a few years .yes not many therapists have the skills to do custom compression on digits ,it is a lot harder to get right and very easy to get wrong.

    PLUS at the same time ,I had to learn a lot about lymphatic flow, pathways, skin,swelling ,muscles ,fascia,compression  and lymphodema management . Because I had to learn how to make me for the compression,not keep changing the compression every time I needed to reorder.

    I do.a  heap of .tailored gentle stretches. and  massage to live the lymph fluid  out of my lymphie arm.

    My FB and Instagram page is @Lymphoedema Lymphatics Stuff ,. Use the search tool for 'hand '.

  • I perhaps should have mentioned that I have never had any pain or discomfort with my lymphoedema. The only time I have had redness is from cellulitis, which should be treated with antibiotics as soon as possible. Lymphoedema makes a limb more susceptible to infection - scratches, cuts, sometimes just the bacteria that everyone has in their body. I’ve had a solid red rash or red splotches but either way it needs medical attention. I keep a prescription handy. Unfortunately when you’ve had cellulitis once, it makes it a little more likely to happen again. I don’t get it often but have learned to be careful! 

  • My case is the same. I developed lymphoedema a few months after my lumpectomy, and radiation contributed to it even more. I started with sleeves prescribed by my lymphoedema therapist. I have a sleeve and a glove, as well as the one‑piece style that covers part of my hand. I also purchased a night compression sleeve.

    I’m not very good with massage, so I bought a compression pump, which I like the most. I still have swelling, but I’ve never had redness since using the pump. I don’t wear the sleeves often. I’ve noticed that the best treatment for my arm is lifting it and resting it.

    I still would suggest sleeves, but they should be prescribed by professionals.

  • My lymphoedema is mainly in my arm - my hand only swells if I leave my glove off for too long. But I do! I started doing so during the early days of COVID when everyone was convinced touching anything was a problem. A fabric glove, which made washing your hands every five minutes more time consuming too, didn't seem a good idea. I found that my hand did swell a bit, but was relatively easy to massage back to some sort of 'normal'. 

    I've tried an all in one - it was badly fitted by a local supplier (my sleeve and glove are German and very good) which didn't help. It made my hand swell badly and was a cow to get on and off. So for me, it's a sleeve most of the time, the glove sometimes, and massage in between. I have had the problem for over a decade, and it is pretty stable, which helps managing it. Good luck with yours.