🌟Join the LeanOn Lymphoedema Self-Management Study
About this opportunity Have you been diagnosed with breast cancer and are currently living with, or at risk of developing, breast cancer-related lymphoedema? Researchers from Flinders University are inviting people to participate in the LeanOn Lymphoedema Self-Management Study, which is evaluating a new online platform designed to support self-care and improve quality of life for people affected by lymphoedema. Your participation will help researchers understand how well the platform supports people in managing their symptoms and navigating their lymphoedema care. What you'll do: If you choose to take part, you will: Access the LeanOn online platform. Explore evidence-based information and self-care resources. Receive a personalised care plan. Use tools to monitor symptoms and track your progress. Complete short surveys at the beginning of the study, and again at 6 and 12 weeks. Optionally participate in a feedback interview. Who can take part? 👥 You may be eligible if you: Have a history of breast cancer. Are currently living with, or at risk of developing, breast cancer-related lymphoedema. Are aged 18 years or older. Can read and understand English. Why get involved? By participating, you'll have the opportunity to: Access a new self-management support platform. Build confidence in managing your lymphoedema. Help improve resources and support available to people affected by breast cancer-related lymphoedema. Contribute to important research that may benefit others in the future. Interested? 📝 To learn more, read the Participant Information Sheet and register your interest here: If you have any questions, please contact the research team: Navaz Naghavi – [email protected] | 0433 805 014 Katia Ferrar – [email protected] | 0411 234 885
Do you wear a sleeve or glove or both?
I have lymphoedema in my arm and hand from breast cancer surgery. I am frustrated in managing it. I have tried a sleeve... my hand and fingers swelled up. I tried a glove with a sleeve and my hand puffed up. I have tried a sleeve with gauntlet (all one piece) and my fingers and hand swelled up. I am curious how many women are having hand swelling with their lymphodema? Everything in research seems to imply that most women just need a sleeve and it magically doesn't trap the fluid in their hand. I am just wondering if the images of women wearing cute sleeves to manage their lymphodema is not realistic of the real world. My question to you all is... when you lymphdema swells which parts of your arm, hand and fingers swell? And what do you wear... just a sleeve, a sleeve and a glove, a sleeve and a gauntlet or something all in one.📅Lymphoedema Association Australia - Melbourne Information Day - 20 June
If you or someone in your community is living with lymphoedema, this is a wonderful opportunity to learn, connect, and feel supported. 📅 Saturday, 20 June 2026 🕙 10:00am – 3:30pm 📍 William Angliss Conference Centre, Melbourne This informative day will cover: ✨ Understanding lymphoedema ✨ Latest research and insights ✨ Practical self‑management strategies ✨ Navigating support programs like SWEP ✨ Connecting with experts, exhibitors, and others on a similar journey 👉 Learn more or register here: https://www.lymphaustralia.org.au/eventdetails/38302/laa-melbourne-public-information-day-vic Please feel free to share this with your networks, someone out there may really need it 💗👋 Quick reminder for anyone interested in lymphoedema information and upcoming events
There’s a really helpful discussion thread on the Online Network focused on lymphoedema information and events. The thread is regularly updated with upcoming events by our Online Network members - with a special shout‑out to Kristen for consistently sharing and keeping the information current 👏💛 If you haven’t already, take a moment to check it out and join the conversation here: 👉 Lymphoedema Information & Events | BCNA Online Network Feel free to share your experiences, ask questions, or add any events or resources you know about.🗓 Lymphoedema Association Australia - Public Information Day
Lymphoedema Australia is inviting community members, carers, and health professionals to attend their Public Information Day - a special event designed to empower people living with lymphoedema with knowledge, connection, and practical tools. 🗓 Date: Saturday, 30 June 2026 📍 Location: The Angliss Conference Centre, 555 La Trobe Street, Melbourne ⏰ Time: 10.00am–3:30pm Attendees will hear from leading lymphoedema specialists on topics including: ✔ Understanding lymphoedema and its impact ✔ Treatment options and self‑management strategies ✔ Advances in clinical care ✔ Emotional wellbeing and support for daily life The day will also feature exhibitor displays, product demonstrations, and opportunities to connect with others living with or supporting someone with lymphoedema. 🎟 All are welcome - patients, families, clinicians, and anyone wanting to better understand this chronic condition. Tickets are now available through Lymphoedema Australia. 🔗 Learn more & register hereMarch 6th was Lymphoedema Awareness Day ❤️
Living with lymphoedema after breast cancer can feel like an emotional rollercoaster. It’s okay to feel upset or overwhelmed by the experience of a chronic condition. Whether it’s impacting your body image or your relationships, your feelings are valid. The good news? As you learn to manage the physical symptoms, the emotional weight often lifts too. Steps to support living with lymphoedema: ✨ Talk to your team: Reach out to your breast care nurse, GP, or therapist. ✨ Access help: Ask your GP about a Mental Health Treatment Plan and/or a Chronic Condition Management Plan for Medicare-subsidised support. ✨Connect: Sharing experiences with others who "get it" can make all the difference. Our incredible Online Network is here for you, please reach out whenever you need to chat. For more information and support call our Helpline on 1800 500 258 between Monday – Friday 9am – 5pm.🌿 Share Your Story for Lymphoedema Awareness Week – March 2–8 🌿
We’re looking for people in our Online Network community who have been diagnosed and are living with lymphoedema to share lived experience stories as part of Lymphoedema Awareness Week March 2 – 8. Your experience can help others feel understood and raise awareness of the reality of living with lymphoedema. Looking for people open to sharing their photo and experience on; 💡 What do you want people to know about living with lymphoedema? 💡 What advice would you give to someone who’s just been diagnosed? You story is so important and has a powerful impact. Thank you for considering being part of this important awareness week. If you’re interested in sharing your story, please send Christina_BCNA a private message or comment ‘learn more’ below
Do you have lymphoedema?
The ALERT (Australian Lymphoedema Education, Reseach and Treatment) team at Macquarie University are looking for people living with primary or secondary lymphoedema to complete an online survey which will help them to develop appropriate patient information resources. You can complete the survey via this link: https://mquni.au1.qualtrics.com/jfe/form/SV_721VztSK5hUBU8K
Looking for recommendations in Sydney
Hi all, I have some practical things that I’ve been struggling with and I figured I’m unlikely to be the first. I had a single mastectomy and auxiliary lymph node removal in November and have been having issues finding bras - I’m 35 so I’m looking for something with underwire and padding that also has a pocket for the prosthetic. No such bras seem to be available at the list of stores given to me by the breast care nurses. My scar goes across where the nipple would be rather than where an underwire sits so I’m still able to wear underwire comfortably and since my remaining breast is a DD going without underwire, padding and structured support isn’t my favourite. The berlei post surgical bra was fine for around the house but don’t work under a lot of my wardrobe and again, the support issue is a problem. I figured a good option was to get a couple of my favourite bras tailored to add the pocket. Problem is trying to find someone who can do that sort of work is proving very difficult. The one guy I found in balmain showed me a method that looks like it’ll damage the bra and not have a great result. So any recommendations would be amazing. Also looking for inner west lymphatic drainage massage recommendations (that don’t cost the earth). Any suggestions for how to minimise lymphadema risk and tricks and hints for getting used to it all would be much appreciated. My hope is for a reconstruction but my surgeon says that’s about two years away. Thank you so much katherine
Lymphedema - working with keyboard and mouse
Been awhile since I have been here but looking for some advice. I was diagnosed with Lymphedema in my hand and lower arm 13 months after breast and auxiliary clearance due to the cancer spreading to the nodes. The last 12 months I have been using compression garments, massage the area regularly and have a lymphatic massage every 3 weeks to help reduce it and keep it soft. But am having problems with it not being stable and goes up and down quite a bit. But not as bad as when I was first diagnosed. i work full time( supposed to be only part time but you know what it’s like) and use a mouse and keyboard heavily and unless I win lotto I have another 20 years or work still to go I am doing a stint of bandaging at the moment and will be getting a custom sleeve and glove to see if that helps at all Is anyone else in a similar situation with work, did you notice if keyboard and mouse usage made it worse, any tips to help flares up, etc would be really appreciated
