Forum Discussion
Matt
8 years agoMember
A Little Embarrassing
Hi I'm Matt
A male with breast cancer, I came across this site a couple of days ago, I've been reading a lot of blogs and has been very helpful wish I found this before I started my treatment :-),
not sure what treatment I'm on but must be a common one, I do 4 at 3 week intervals with my 4th one this Friday then change over to weekly for 12 weeks, then I go in for surgery and if all good start my radiation
so far so good on side effects not much really, lost my hair about 2-3 weeks after first treatment, a bit of constipation and sleepless nights, just last week I noticed two of my toes, one on each foot right next to the big toe went purple in colour at the top, the left toe nail changed colour to purple and the right toe nail changed to a hazy white, will I lose them,
just touching base for today and introducing myself, it is a little hard for me to talk about this but am getting better
A male with breast cancer, I came across this site a couple of days ago, I've been reading a lot of blogs and has been very helpful wish I found this before I started my treatment :-),
not sure what treatment I'm on but must be a common one, I do 4 at 3 week intervals with my 4th one this Friday then change over to weekly for 12 weeks, then I go in for surgery and if all good start my radiation
so far so good on side effects not much really, lost my hair about 2-3 weeks after first treatment, a bit of constipation and sleepless nights, just last week I noticed two of my toes, one on each foot right next to the big toe went purple in colour at the top, the left toe nail changed colour to purple and the right toe nail changed to a hazy white, will I lose them,
just touching base for today and introducing myself, it is a little hard for me to talk about this but am getting better
90 Replies
- SisterMemberPersonally, I have mostly avoided pink all of my life (perhaps started as it being what nice little girls wore) and so, have never identified with it. I agree with the Love Your Sister statement about the colour - something along the lines of it being soft and this battle against bc is not soft. And the cardboard cutout to me doesn't just look like a dunny door sign - to me it represents cookie cutter women - keep us in our box - so we'd better be soft and sweet and nice and, well...pink. And it's incredibly dated and will only become more so. It's rather cringe-worthy, to be honest and I'm speaking as a woman in her 50s - I can't imagine what a 30 yo would think of it. There's always a flurry when a well-known brand updates their look, but people get over it and no-one looks back until it's so long ago that it's nostalgia. I'm so glad that the magazine name was not changed. Before anyone gets upset with me, that is my feeling about it - I understand that others feel differently.
That's me talking of a branding that is obviously only aimed at representing women (and Love Your Sister will struggle with that, too). If we are serious about being inclusive, no matter what colour is used, the pink lady silhouette and name should be retired. Again, just my opinion and I know that others will disagree. - traveltextMember
Romla, Charter may well be beter. Perhaps we were feeling revolutionary at the time - traveltextMemberZoffiel, there is an obviously good marketing point to using pink, but I'd argue that along with the extra funds comes the knowledge that awareness among men that they get this disease is running at around 30%. Is that acceptable? After decades of pink marketing, that's the best we can do?
And after decades if research, there's still no cure. The US group Metup have a saying, Pink is Not a Cure. A few years ago I built a website for some BCO sisters who are rabid about pink. It's here, but a warning, it's pretty strident: www.pinktobersucks dot com
Sorry the system here wouldn't allow a live link due to the word 'sucks' in the domain name! - RomlaMemberSorry @ Zoffiel pink overtones is a cryptic for the feminisation by marketers of this disease - there are more examples than the colour pink. Btw pink is now trendy for blokes from what I saw at the Australian Open.
- kmakmMemberI read your manifesto @traveltext, excellent.
- RomlaMemberI read the manifesto - a great idea.Couple of observations is manifesto the best word for it with its sub tones maybe Charter ?? Also funds diverted to male breast cancer to match % male diagnoses ? Just some thoughts.It would be easier to build this if there was an easily identifiable group readily known to blokes who have a breast cancer diagnoses -is it in the My Journey Kit , are the Cancer Council aware of it ? I was looking for famous blokes who have had this diagnoses -piece of trivia Peter Criss of the band Kiss has. Also try your manifesto with the AFL which is a male dominated culture as they are co -sponsoring the Field of Women - Gillon McLaughlin may be interested as may players with family members who have experienced bc - after all the players are also a new generation too and both men and women now play the game.Field of People sounds better to me.
- traveltextMemberThat's a good idea Joannie.
- AnonymousNot applicableThe user and all related content has been deleted.
- ZoffielMemberHa. My pink bits have all changed colour and are an unpleasant shade of puce. Total body puce, really, except for flashes of grey. The only rosy pink I see now is my eyeballs in the mirror in the morning. Pink, schmink.
I get that pink shits people, particularly those of us with the disease, but it is all about the marketing and the money.
Pink? Breast Cancer. OK.
Who gives a shit what colour the logo is if it encourages the public to donate funds to research? Getting all hung up on pink not representing the multiple genders who get the disease is, in my opinion, completely missing the point. - RomlaMemberThanks @ traveltext but wouldn’t it be easier to find if it was under groups. It saddens me to hear the suggestion of the likelihood of damage to revenue raising of changing.I can pretty confidently tell you many of the women on here are heartedly sick of pink overtones - this generation have moved on yet marketing has not which may ultimately work to its disadvantage with future diagnoses. It’s anachronistic which is part of the reason Love Your Sister hit such a chord as it was so relatable to this generation with its fresh approach to marketing.