Compass (ABC) The Breast Decision - NOW - should be on iView soon
Sun 18th May - Compass: The Breast Decision - now available to watch on ABC iView https://iview.abc.net.au/video/RN2411H008S00 BCNA was 'shown' in one segment. Charlotte Tottman is interviewed re her own decision on choosing to go flat and how her breasts were very important in her sex life with her husband - but they'd 'done their job' on raising her 4 children .... Yes, She misses them - but in her words, she looks in the mirror every morning for 5 secs and says she 'is not too shabby'. She encourages women to look at themselves every day for 5 secs - and to also share their scars with their partners & even their children, so that they are 'a part' of the recovery.
Partial Breast Radiotherapy
Hello 👋 community I was diagnosed with breast cancer, and while it has been surgically removed, I’m now entering the next phase of treatment. I would like to know if anyone has experience with partial radiotherapy and what side effects—both short-term and long-term—you may have encountered. I'm feeling a bit anxious about this process.
Election called
Hi everyone - it has been a while since I have posted myself but as always I love the many messages you share with each other that I have a chance to read. Last week Vicki (our Director of Policy, Advocacy and Support Services) and I were in Canberra meeting with both the Minister for Health and Shadow Minister to take them through our policy priorities. I hope you have had a chance to read them: https://www.bcna.org.au/latest-news/bcna-news/bcna-policy-priorities-2025/ These are driven by your experiences and where our Network wants the Australian Government to invest. Keep any eye out on our social media and through the Online Network on updates on commitments the parties may make. Love your work KP
More information about Elle MacPherson's breast cancer treatment
For anyone who wants to know more about why Elle may have decided not to have chemotherapy. https://theconversation.com/elle-macphersons-breast-cancer-when-the-media-reports-on-celebrity-cancer-are-we-really-getting-the-whole-story-238231
Are you a breast cancer survivor who happens to be childless?
I have been a member of this online network since 2014, just after my diagnosis. At a recent breast cancer seminar at a city near where I live, something hit me like it hasn't in all this time, the subject of survivors who happen to be childless. I thought to myself, "Noone talks about this. Why?" This has led me to do my research, as you do, I found this demographic of women are at higher risk of breast and ovarian cancer. It is explained this way, you are at a lower risk of diagnosis if you have children. Interesting I thought, Nuns are at a higher risk of breast cancer and ovarian, not that I am a Nun but an interesting statistic that gets me thinking. Which brings me to why I am posting. I am putting it out there in a courageous way to see if there is another like me. Courageous because for 30 years after my extensive efforts to go forth and multiply I walked away childless. The one thing I learned was to keep it to yourself as I found there were lots of people willing to give you their advice, just like they do with breast cancer 'cures', an emotive issue is best kept to yourself for your own emotional survival. I am running a personal survey just to see if there are other women within this network who are in the same boat as me. Does anyone else feel a little left out when sitting in a seminar and not to be included in the discussions? I tell ya, there is a real sense of alienation, but culturally we are told to, 'just get over it', which is fine and life for me has been fulfilling in spite of it all. My GP doesn't know of another single patient like me which isn't very encouraging in finding my tribe, my mother always said I am different when all you want to do is be like everyone else. So please step forward if you are like me or if you know someone who has a similar story. I feel it is a subject that needs discussion and inclusion because in society we, the childless women are 1 in 5, by choice or by circumstance. Cheers Janet4 years since BC diagnosis & joining BCNA & my surgery ...
Woohoo! This year was the first year that I didn't actually 'remember' that Jan 5th was the anniversary of my actual diagnosis of BC ...... so that must be a good sign! So - today - it is now 4 years ago since I joined BCNA (at the suggestion of a girlfriend in Qld who had been diagnosed a few years earlier) .... and a few days later, Jan 15th, I had my surgery. What a roller coaster ride it has all been .... lots of tears, anger, melt downs, but there's also been lots of laughs and education - all emotions are a part of this shitty disease - but, newbies, take note - it DOES get better! During this time, I've really appreciated all the support & info & camaraderie from the group - but especially the wonderful friendships that I've made along the way - with regular PMs within 'The Famous Five' over the years .... xx. So ... a big THANK YOU to all of you who've helped make a difference All the best to those who've been recently diagnosed ...... reach out, lean on us, ask questions, and we'll do our best to offer support and info to help get you thru the rough bits xx take care, stay safe
Help with decision on breast reconstruction
Hi, Last February in Townsville I was diagnosed with breast cancer. It was not in the nodes, but had spread from the ducts. Because of COVid19 I had three lots of surgery in March. The first was a lumpectomy, then the surgeon realised there was still some remaining in the breast so she went in a week later, removed the residue and transferred some tissue from the side of the breast to the front of the breast for aesthetic reasons. That surgery was not successful afterwards as the blood wasn't flowing as it should, so she went back in a week later to see if she could fix it, but did explain that the breast would have to be removed if she could not fix the problem. She took the breast. No chemo or radiation, and an excellent recovery. But no matter what I do I am always lopsided, and my new puppy has already put two holes in my prosthetic breast so I decided to look into a reconstruction next year. I went to see the reconstruction surgeon in Brisbane yesterday. He explained both options to me. I do not like the idea of implants, but the other option involves 7 or 8 hours of surgery. My concern is not that, but rather that I have a fat stomach, so I am wondering if he does the surgery that takes some skin and tissue from my lower abdomen, will I end up with a flat abdomen but still have the fat on my upper abdomen, (under my breasts). I am 65 years old in a couple of weeks. Hoping to speak to some-one who has had this surgery, so I can be clear in my mind that it will make me feel better not worse.
Isolation and staying happy
Today’s my Birthday 🎂. I received a lovely message from Jennyss wishing me a HB🌹 thank you so much xxx today is also the day I was diagnosed with Breast Cancer. It’s a day I’ll always remember but am so grateful for . very blessed to be here . I hope you’re all staying safe and well in theses challenging times ♥️♥️♥️
What the heck is going on with this BC thing????????
Ok, so I know the figures are 1 in 8 or 1 in 7 depending on which article you read but honestly. When I was diagnosed I knew one of my friends sister had had breast cancer and my family history 3 generations ago. That was it. I would see the bookings come through at work averaging one or two breast surgeries a week and sometimes there would be a few weeks with none at all. Now. WOW! 4 - 6 a week with the majority being 45-55yrs and a definite rise in under 40's. One of my friends mother in law diagnosed last year and now her mother last week. my daughters friends mother, a close work collegue a couple of months ago, a collegues sister a week after that, a collegues daughter around the same time. One of the senior medical consultants. A client drops a horse off to me and has to run or she'll be late for radiation! Bugger me. I get in to work today and ask where so and so is. "Oh, haven't you heard" She's been diagnosed last week and is off for bilat mx and ax clearance. All of these people I know in my little circle diagnosed within the last 12 months. Seriously what the heck is going on?
Just touching base :)
Hi lovelies I've just got back home from surgery last Thursday :). On the pre-op scans they found a 2nd mass which had been "overshadowed" by the main mass on previous checks, so that's been taken away as well. Lumpectomy (with the 2 masses) & full axillary lymph clearance (lymphs were already proven as malignant in the initial biopsies) & I must say that the surgical team did a very lovely job with the lumpectomy :) I have the surgical follow up appointment next Friday (before people start their Xmas breaks) & the 1st MDT meeting after Xmas will be 7th January. So it's a quick trip down to Tassie on New Years day to see our daughter. The poor thing only just moved to Tasmania & 2 weeks later I rang her to say "It's all okay, BUT Dad's just had a Heart attack!" & then 2 weeks after that I rang her again to say "It's all okay, BUT I've got Breast Cancer!"... I figure we'd better see her just to prove that we really ARE both okay before we start getting organised for the next steps, with Chemo starting sometime in January :) Happy holidays to all everyone. <3