Forum Discussion
AIs , walking , joint pain - small tip
I have extolled the value of walking for me whilst on Letrozole for many reasons not the least being joint pain.Been having a bit of knee pain this week that was lingering , my old sneakers were somewhat worn so bought new shoes and things seem much better. I may have learnt a lesson about the importance of supportive footwear and their impact on my joints too.
42 Replies
- I want to say welcome home @arpie but that's probably not the right phrase for you right now :/ Hang in there, we're here for you. Kate xox
- Thank you so much for that, @Romla
I am now back from Norfolk (had HEAPS of fun there, playing ukulele EVERYWHERE - on a pontoon in the middle of a lagoon, on the only roundabout in town with everyone driving past us - and also at a fundraising event for the Island!)
The hubby is currently going thru dementia assessment now. He had a brain scan yesterday, is having blood tests tomorrow, and just before I left, had an initial assessment with the GP who believe further assessment was needed by Geriatrician (mid May.) He is also getting assessed by a specialist diagnostician (who diagnosed him with the Stomach cancer back in 2010) to try & work out why he is dropping so much weight - whether it is a mental or physical condition! He has also decided NOT to compete now in the Triathlon World Champs later this year - which takes a huge weight off his mind. Maybe he as reduced his eating as he doesn't believe he needs it as he reduces his 'training' .... but this is probably the reason for his dropping weight! Down to 52kg & falling just now! :(
Hubby said he'd bought the Sunday Papers for me (as I was arriving back on Mon ....) and when I asked on Mon night - he said he'd 'got them' ..... but sadly, he got the days wrong ... I now have the Sydney Morning Herald & 2 x Daily Telegraphs - all from Monday! LOL
Dementia SUCKS! My girlfriend 'lost' her Dad when he was just in his late 50s - he was a very practical man who owned a sheep/wheat farm - who forgot everything, including all his family. :( VERY sad.
Hubby's older brother was in secure care for his final 5 years (in the USA) from Dementia. It is not a nice way to 'go'. :( Thank you for caring.
I will be seeing the oncologist in the next few weeks & have my follow up appointment with my radiologist in mid May as well. Busy Busy Busy xxxx - @arpie and anyone else who might be interested
About Somebody I Used to Know
THE SUNDAY TIMES BESTSELLER
A BBC RADIO 4 BOOK OF THE WEEK
Brave, illuminating and inspiring, Somebody I Used to Know gets to the very heart of what it means to be human.
What do you lose when you lose your memories? What do you value when this loss reframes how you've lived, and how you will live in the future? How do you conceive of love when you can no longer recognise those who are supposed to mean the most to you?
When she was diagnosed with dementia at the age of fifty-eight, Wendy Mitchell was confronted with the most profound questions about life and identity. All at once, she had to say goodbye to the woman she used to be. Her demanding career in the NHS, her ability to drive, cook and run – the various shades of her independence – were suddenly gone.
Philosophical, profoundly moving, insightful and ultimately full of hope, Somebody I Used to Know is both a heart-rending tribute to the woman Wendy once was, and a brave affirmation of the woman dementia has seen her become.Reviews
“A landmark book” – Financial Times
“Revelatory” – Guardian
“Usually the experience of someone living with dementia is lost; known only partially even to their loved ones. The miracle of this work is that it managed to capture the experience, and hold it up for the rest of us to see” – Telegraph
“Remarkable ... Mitchell gives such clear-eyed insight that anyone who knows a person living with dementia should read this book” – Siobhan Murphy, The Times
“The world could do with more Wendy Mitchells ... This is a book from which we can all learn” – Jackie Annesley, Sunday Times
“A lucid, candid and gallant portrayal of what the early stages of dementia feel like ... This memoir, with its humour and its sense of resilience, demonstrates how the diagnosis of dementia is not a clear line that a person crosses; they are no different than they were the day before” – Nicci Gerrard, Observer
“A brave and illuminating journey inside the mind, heart, and life of young-onset Alzheimer's disease” – Lisa Genova, neuroscientist and author of 'Still Alice',
“With humour, truth and grace, this book [gives] a unique insight into what it's like to live with Alzheimer's” – Spectator
“I am so impressed with Wendy Mitchell's attitude and ability to explain her experience - she is both an inspiration and a guide. I think this book will be extremely helpful to people who are trying to come to terms with dementia, in their own lives, or the lives of their family and friends” – Michael Palin,
“An absolutely compelling account of life with dementia ... A testimony to human spirit and ingenuity” – Jan R Oyebode, Professor of Dementia Care, University of Bradford,
“An extraordinary book about a little-understood disease. Awe-inspiring, courageous and insightful. I would recommend it to everyone” – Rosie Boycott, writer and activist,
“Nothing is more frightening than dementia, says Wendy - and yet, every day, she chooses to face her fears head on. By sharing her story Wendy challenges assumptions and ignorance about dementia. Read this amazing book. It will change a lot of people's minds about what it means to have the disease” – Professor Pat Sikes, University of Sheffield,
“This is an eloquent and poignant book. Those of us who have gone on the heartbreaking journey of losing a loved one to dementia have wondered what they were feeling. Wendy Mitchell's courageous and unflinching account lets us know” – Patti Davis, author of 'The Long
Wendy Mitchell spent twenty years as a non-clinical team leader in the NHS before being diagnosed with Young Onset Dementia in July 2014 at the age of fifty-eight. Shocked by the lack of awareness about... Read more
- Bugger @arpie wrong web address will try again.
- @arpie I just remembered your husband was having a dementia assessment. I have been reading a lot lately about a woman called Wendy Mitchell who was assessed with early onset dementia at 58. She has just written a remarkable book called Somebody I Used To Know which many are talking about. I have bought a copy - you might like to read about it online.
https://youtu.be/Tlbw4Ci1Sho - @eastmum
- Isn't it funny, just a new pair of shoes can make all the difference. I went in on the two for one sales and got two new pair so I am set for ages.
My hubby did the same and just went to BigW for the Dunlop wides in size 14. He lost one pair though. My son who usually has to pay nearly $300 for a good pair of shoes stole one of hubbys pair. At $39 that's a huge monetary difference and he said he can't say they are any different to the high cost ones. Just as good and 1/8th of the price is even better. - A friend's mum had the same as me at 65 - lumpectomy & tabs for 10 years (not sure about the radiation) and is now 95!! I like that (sort of! Not sure HOW I'll be at 95!!) A scary thought! LOL Her daughter can't really remember her having many side effects.
My sister in law has suggested I get a hormone 'test' done before I start - to see what my levels are now (which makes sense to me - cos if they are REALLY LOW .... do I even need to do the tablets?!) - and then get them checked yearly thru the process, to monitor the changes.
As I understand it, oestrogen is produced in the breast fat tissue & other 'fatty areas' in the body, even if your ovaries are removed?
So ... my question is - do 'larger' i.e. overweight women produce MORE oestrogen than smaller/slim women? Do larger women have worse side effects from the tablets? I wonder if any studies have been done on this?
I am off to Norfolk Island tomorrow to strum ukulele for a week or so ....I will not be home til the 24th .... so chances are, I may not have much internet access over there as their internet/wifi is very limited (they have their own network, and not tied in to Telstra or any of the others.) Any phone calls to or from the island can cost $20-30 EACH!!
Take care, ladies - give yourselves a BIG pat on the back for what you are going thru so bravely! And thank you for all your sage comments on all the forum topics. Great Stuff. - PS @arpie there was a huge amount in the press in 2016 about side effects of statins you might be able to find it online. I am not suggesting going off them as I gather changing the type of statin can help.I did also read that they are the most heavily prescribed pill in Australia but maybe diet modification and exercise can also help.
- @arpie my aunt had breast cancer in her early 40s and had a double mastectomy in 1968. Her scars I saw years later from the side of her nightie were angry still , extensive and horrific. She died 2008 and not of cancer.
