Forum Discussion
Treatment decisions-Triple negative
Hi everyone
I was diagnosed with triple negative, stage 3C breast cancer in October last year. Initially I had a lumpectomy with sentinel node removal. As there were no clear margins and cancer in the nodes I then had a mastectomy and nodal clearance. I had cancer in 14 out of the 31 nodes that were removed and locally advanced.
I was diagnosed with triple negative, stage 3C breast cancer in October last year. Initially I had a lumpectomy with sentinel node removal. As there were no clear margins and cancer in the nodes I then had a mastectomy and nodal clearance. I had cancer in 14 out of the 31 nodes that were removed and locally advanced.
I have finished my AC dose dense drugs and the Paclitaxel standard care treatments. In addition to this I opted to take Carboplatin with the taxel as it had the potential to have some benefits but due to low neutrophils I missed the last dose. I start my radiation therapy tomorrow.
After radiation therapy I will have to decide whether to continue my chemo by taking another drug called Xeloda or Capecitabine. Again there is some potential to be of benefit but not clear cut and was told not to expect definitive advice on whether I should or shouldn’t take it.
I am hoping to hear from others who are in the same situation and have had to make that decision themselves.
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- Hi @Feathers I am no help as my BC was totally different. However, I wanted you to know I am sending hugs your way as you contemplate your next step. Hopefully someone will get on here soon who can help.
- Hi @Feathers, Also sending hugs your way. I am still having AC dense drugs and will have paclitaxel after that so I am interested to hear what is suggested for you. Wishing you well. xxx
- Hi @Feathers - sorry to see you here - but you are in the right spot for support and discussion on your treatment.
I'll tag @Giovanna_BCNA to maybe add "Triple Negative" to the title, then those who've gone thru that treatment may jump on when they spot the title.
All the best with your treatment decisions & ongoing treatment xx
In the meantime, here's a discussion that is also on Triple Negative ....
https://onlinenetwork.bcna.org.au/discussion/22477/triple-negative-breast-cancer#latest - Thanks for the link arpie.
Doing some research but there’s not much out there. - Hi @Feathers
If you click on this link .... it will take you to numerous TNC posts ... but remember that everyone’s case is ‘unique’ .... so try not to get too concerned, as yours may be different again.
https://onlinenetwork.bcna.org.au/search?Search=Triple+negative
When you click on Discussions, there is a “search” area that you can put any words in to search for posts relating to those words. ;)
Pall the best xx - Hi Feathers, welcome to this amazing forum.
I also was diagnosed with Triple Negative Breast Cancer back in October 2018.
I had a partial mastectomy and sentinel nodes removed , pathology results were clear margins and clear sentinel nodes.
Next step was dense dose AC every 2 weeks for 8 weeks, then 12 weekly pactlitaxel, 30 rounds of radiation.
During my dense dose AC I was admitted to hospital with no white blood cells, during a routine chest X-ray they found under my left arm ( surgery side) that I had a swollen lymph node, further investigation found that I had cancer cells in one of my lymph nodes.
So once I finished all my chemotherapy I had a full auxiliary clearance under my arm, fortunately only the one node involved out of the 16 removed.
After all my treatment I wasn’t offered any other treatment, so I’m interested in seeing what they offer you.
I would like to tell you that I am post treatment 8 months and I’m all clear . Due for my two yearly mammogram in November 2020.
I have spoken to a lot of other ladies that are cancer free after being diagnosed with Triple Negative BC, 2,4,6,8 years +.
We have all got through it and we are now survivors.
Sorry I can’t help you with your decision, as I was never offered the drugs.
You can beat this......
Stay positive, you’ve got this.
Sending hugs xx - Well done you.Mostly I am optimistic about my outcome but there are moments of doubt that creep in so it is really heartening and reassuring to hear about other people’s survival who have had a similar diagnosis.
Thanks for posting. - Hi arpie
Thanks for the heads up about the search function, it will come in handy. - https://onlinenetwork.bcna.org.au/discussion/comment/187787#Comment_187787
@Feathers
the link above you may find helpful
Take care and best wishes - Awesome find, @iserbrown - that was the most uplifting post!! xx
