So stressed Triple neg 5cm need positive stories

Tripple QLD said:

So stressed out. Just diagnosed with nearly 5cm triple neg idc at 33yo, no children yet, with very likely node involvement (not enough cells for conclusive but looks very likely in an enlarged node underarm)  but all other scans and tests show no other cancer. I need to hear from others with same type and relative size and years beyond to have a positive outlook. Can't sleep, can't eat after seeing surgeon today - mastectomy surgery within next 2 weeks and auxiliary clearance then chemo and radiation. I am just so stressed about weather I bother saving my eggs as I read the outlook isn't that good for large triple neg but all I've ever wanted is children but no point if I won't be around.  please I need to hear from others who have positive stories even ones with reoccurrence of large triple neg idc. Thank you.

I was 52 when diagnosed with TNBC, I'm looking at testing around $600

A positive gene mutation doesnt guarantee what type of breast cancer you get (or that you will even get it for sure) I know younger women with tnbc often do carry the gene but not all. The appointment will assess risks etc. And determine if you qualify. Do you have daughters that may inherit? It's easier to start with you as the 1st to be tested. Neg ...it stops with you. 

Hey! YES I had testing done, my Surgeon referred me to Familial Cancer Centre at the Royal Melbourne Hospital. It cost me $800 and was not rebateable grrr. They keep changing the criteria so am unsure what it is now if you qualify for it through Medicare. I only had my Mum who had BC when she was 40 survived 26yrs and they say died to unrelated Cancer. No other history in the family. My Surgeon urged for it eventhough I was only ER+ because I had a recurrence within 4yrs and was heading for a Mastectomy, so he wanted to be sure. It came back negative and the Geneticists agree that a double was unnecessary that in light of the recurrence a single was advisable. Having done it 2 weeks ago pathology came back and the breast tissue was all clear. So Clear going into 2 yrs now. It doesnt matter where you go, if you fit the criteria it will cost you nothing, if you don't it has dropped I think to about $600 right now. Hugs Melinda xo

I think @Melclarity had private testing?

You may have a history there? I am the first in my family to have TNBC so haven't had testing, however have just enquired about meeting with a geneticist as there is a strong family history of every other type of cancer in my family.  I don't think I will qualify for free testing.  Does anyone know how much private testing is?

Hi I'm a TNBC and started chemo last week.  I'm not sure whether to do the BRCA or other gene testing or not?  my grandmother died of cancer aged 53 in the 60s, but apart from her I know nothing about my grandmother's family cancer histories.  Never ever met or heard anything abiut them. Not sure whether I should check or not. I'm 50, and TNBC normally happens to younger women too, not women in their fifties??..or ?.Confused 

Fran you summed up very well what this forum is about - we all get it and we all try and help or make you laugh if we can!  The so called friends, we all come across those, very insensitive but if the boot was on the other foot, look out!  I had a dear friend of 40 years which I lost through this process and now I am not interested in revisiting that friendship.  This BC keeps giving, but it's places like this forum that helps us to get through and become focussed on the now and not the what if!
Take care and sending you a virtual hug xx :smiley:

i have to admit when i first had genetic testing and found out i was brca1 pos trip neg 4cm breast cancer i did freak out a bit had so called friends say oh no does that mean your gonna die , i honestly thought that was it , and had some well meaning women that had read about triple neg say there isnt a cure  and son on i was a mess , but many women on here gave me hope and the strength to just do what i had to and as i said may 15th this year is 10 years for me , I know things can change in a flash but i live life to the full and do as much as i can while i can. and what ever tomorrow has in store i will cross that bridge if i have to when it gets here. so thanks to all you wonderful ladies that gave me hope and love and internet  hugs. ..franp

in my last posting feb 20 it read i had vidulant chemo meant to say adjuvant chemo think my spell check was on holidays lol hope you are feeling a bit better. everyone here is wonderful and you can say and ask anything no mater how silly or embarrassing you my feel as we have all been there,