Hi Gurneys, thats been half of the problem i havent ever seen my oncologist but when they all had their big pow wow meeting (all the drs and sugeons do about my case and how best to proceed) my breast care nurse is my only go to person and she said "i asked the oncoligist and he said " "if she wants kids she NEEDS to save her eggs harvested NOW so i recommend surgery first to allow time for this" so my BC nurse said that she got the impression from him that i wont have any eggs left after chemo. HOWEVER my Fertility DR said "we can give you a drug to shut down your overies for overie preservation" (which i already know about and have been asking for) so now i am a little confused as I know about that drug and have asked multiple times about it but my BC nurse doesnt seem to know and neither does my surgeon so now im thinking the fertility dr will be doing it???? This is the frustrating part about not getting to see all of my drs myself but hey it is the public system. My surgeon says "im not and oncologist so i dont know" so basically only my ONCO can tell me but i wont see him untill just before cheom but I"ll defiantly be following it up with him and my fertility Dr when i see him next week. I sometimes feel like ive been the most organised and knowedgable and THEY are all just catching up....??? LOL.gurneys said:Hi, I was triple neg, 1.8 cm. 1 year on and I'm all clear. Lumpectomy, chemo then bilateral mastectomy (my choice, preventative as also BRCA2 pos).
As the others have said, don't buy into all the hype you read online about triple neg. My doctors weren't concerned about it being triple neg at all and now I've been given the all clear. If you are concerned about your fertility, speak to your oncol about the effects of chemo on your eggs. That was one of the first things my oncol raised with me.
Breathe. It's a lot to take in at the beginning and filtering through all the info. Feel free to ask any questions though.
Best of luck
Sherril
