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Jennib's avatar
Jennib
Member
12 years ago

Newbie

Hi all, I am new to all this so apologies if I get it wrong. I am a 41 year old mother of one and have just been Diagnosed with TNBC invasive grade three. I have had breast surgery and my ovaries removed and will start chemo on the 28th of this month. So much has happened in the last 4 weeks that it just doesn't seem real. I am a little worried about the chemo and really do not know what to expect. Any help or suggestions would be greatly appreciated. Jen

18 Replies

  • Hi Bel...seems that being in our fabulous 40's is a bit dangerous.... Well I start chemo next Wednesday and to be honest am feeling a little freaked out. Was ok up till yesterday and then started thinking about it. Not too concerned about going bald...have too much hair and it may be a nice change. Ha ha....My 13 year old daughter is struggling a little - keeping it all locked up inside. With the TNBC did you have more intensive chemo? I still don't know what regime I will be on....before the knew it was TNBC they said chemo every 3 weeks..then the dr said that was going to change when they found it was TNBC. Does that mean tablets or more iv??? I suppose it is the fear of not knowing.....all will be revealed next week. Thanks for your support! Xx jen
  • Thanks Nellie! I suppose I am preparing myself for the worst so that if t is any better than soul destroying I have been a winner!!! Always look on the bright side of life...da da da da da da da da!! chemo starts next week and I am quietly stressing...swimming hard under the surface. I will make it...I have to. What are taxol treatments? Are you in Brisbane? Hope all goes well for you..xx jen
  • Thanks deb.....support is a wonderful thing...this site is such a good place to spill your beans without have to apologize later! Hoping you are doing well with your treatments... Jen
  • Hi Jen,

    Give it a couple of weeks & you'll be used to the terminology :)

    I was told because of my age (41), being TN & the aggressiveness that yes, I was going to be hit hard with the chemo. I'm on AC (Doxorubicin & Cyclophosphamide) once every 3 weeks for 12 weeks. Then I move onto the Paclitaxel (Taxol) every week for 12 weeks. I was due to have radiation after the chemo 5 days a week for 4 weeks, but I've since tested positive to BRCA 1, so will be skipping the radiation & having a hysterectomy & double reconstructive mastectomy instead :P

    Do you have a "Welcome to Chemo" type visit at the hospital before you start? I did a few days before, that 's when they told me the types of chemo, duration & what to expect. My what to expect part wasn't nearly as helpful as the ladies here & I still had a major melt down when the canular went in the 1st time. They also gave me a walk through the chemo ward & I met a few nurses.

    As for tablets, you'll be send home with a bag of meds to help prevent the nausea. Keep a record of how you feel day to day. I didn't vomit, but didn't feel great either, on my 2nd dose, they added extra meds to the chemo line that stay in me system for 5 days...worked a treat ;)

    Are you having the BRCA tests done?

    I'll be thinking about you next Wednesday. Next Friday is my last AC.

    Stay strong, Sam xoxox

  • Hi Jen,

    Give it a couple of weeks & you'll be used to the terminology :)

    I was told because of my age (41), being TN & the aggressiveness that yes, I was going to be hit hard with the chemo. I'm on AC (Doxorubicin & Cyclophosphamide) once every 3 weeks for 12 weeks. Then I move onto the Paclitaxel (Taxol) every week for 12 weeks. I was due to have radiation after the chemo 5 days a week for 4 weeks, but I've since tested positive to BRCA 1, so will be skipping the radiation & having a hysterectomy & double reconstructive mastectomy instead :P

    Do you have a "Welcome to Chemo" type visit at the hospital before you start? I did a few days before, that 's when they told me the types of chemo, duration & what to expect. My what to expect part wasn't nearly as helpful as the ladies here & I still had a major melt down when the canular went in the 1st time. They also gave me a walk through the chemo ward & I met a few nurses.

    As for tablets, you'll be send home with a bag of meds to help prevent the nausea. Keep a record of how you feel day to day. I didn't vomit, but didn't feel great either, on my 2nd dose, they added extra meds to the chemo line that stay in me system for 5 days...worked a treat ;)

    Are you having the BRCA tests done?

    I'll be thinking about you next Wednesday. Next Friday is my last AC.

    Stay strong, Sam xoxox

  • Thanks Sam....getting the BRCA test is a hard one...do I want to know? I have a 13 year old daughter so it is a real predicament for me.... Congrats on your last chemo! Bst wishes for your next treatments. Xx jen
  • Only my last AC....then 12 weeks of taxol :) Finish date is 6th December.

    I was busting to find out about the BRCA genes, bummed that I'm positive, but glad I know. It's helped make descisions about my future treatment & has enabled my mum & cousins to be tested. When my kids are 30, they too will be tested.